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Re: Triggering- my Pain is impossible to live in

Posted by kerria on August 3, 2005, at 10:21:30

In reply to Re: Triggering- my Pain is impossible to live in Ľ kerria, posted by Tamar on August 2, 2005, at 19:37:14

> Hi Kerria,
>
> > Tamar- what kind of Dr diagnosed your friend's pain that was called something like "Pelvic venous congestion? When i looked up a search on that i found that i have a lot of the conditions to cause that- four babies and i have a small frame- also i did backpacking and a lot heavy lifting at work. The pain is so severe though- it's not just an aching.
>
> Iím pretty sure my friend was diagnosed by a gynaecologist who specialized in the condition. I think she had to travel a long way to see him (very painful for her, but worth it for the diagnosis).
>
> My friendís pain was definitely not just an aching, so it might fit your situation too. My friendís pain was so severe she had to give up work. She couldnít travel more than about 20 minutes by car (if she did, the pain became much worse for several days). If fact, she hardly ever left the house. The pain you describe sounds a bit like my friendís, which is why I thought of it. Maybe you donít have the same condition, but it might be worth looking for a doctor who knows about it so you can explore the possibility.
>
> My friend had similar frustrations to yours. She had to find the specialist herself. It seems so hard to get people to help. Iím sorry youíre having such a struggle with the doctors and I hope you find a diagnosis soon.
>
> Tamar
>
>
Thank you so much, Tamar. i'm going to look for a gyn dr that specializes in that disorder.
If you don't mind me asking- you don't have to answer- but
is your friend better? What was the treatment? Was it surgery that helped? Nerve blocks? Medication? Does she still have to go or is the pain resolved?

Thanks so much, Tamar.
Take care,
kerria


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