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Re: Triggering- my Pain is impossible to live in » kerria

Posted by Tamar on August 2, 2005, at 19:37:14

In reply to Re: Triggering- my Pain is impossible to live in, posted by kerria on August 2, 2005, at 11:11:03

Hi Kerria,

> Tamar- what kind of Dr diagnosed your friend's pain that was called something like "Pelvic venous congestion? When i looked up a search on that i found that i have a lot of the conditions to cause that- four babies and i have a small frame- also i did backpacking and a lot heavy lifting at work. The pain is so severe though- it's not just an aching.

I’m pretty sure my friend was diagnosed by a gynaecologist who specialized in the condition. I think she had to travel a long way to see him (very painful for her, but worth it for the diagnosis).

My friend’s pain was definitely not just an aching, so it might fit your situation too. My friend’s pain was so severe she had to give up work. She couldn’t travel more than about 20 minutes by car (if she did, the pain became much worse for several days). If fact, she hardly ever left the house. The pain you describe sounds a bit like my friend’s, which is why I thought of it. Maybe you don’t have the same condition, but it might be worth looking for a doctor who knows about it so you can explore the possibility.

My friend had similar frustrations to yours. She had to find the specialist herself. It seems so hard to get people to help. I’m sorry you’re having such a struggle with the doctors and I hope you find a diagnosis soon.





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