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Re: Triggering- my Pain is impossible to live in kerria

Posted by Tamar on August 2, 2005, at 21:32:45

In reply to Re: Triggering- my Pain is impossible to live in, posted by kerria on August 2, 2005, at 20:13:42

Hi kerria,

> Your friend's pain and limitations sounds just like mine. i can barely drive short distances since i came off of the pain medicines that worked for me. Driving far is too painful. Since my medicines changed , i can't do anything. i don't think i can even go the work tomorrow.

Yes, there are definite similarities. Of course, they may be coincidental. But the similarities could point to a similar condition.

> Do you remember what the treatment was for the problem? Was it successful? Is she still in pain now?

She's still in pain, but not as much. I'm not sure exactly what the treatment was, but I think she has to rest quite a lot. She was advised to have a hysterectomy, but she wanted children so she has to wait.

> What City is the dr located in? i live on the east coast. i'd do anything to find an answer to this terrible problem.

My friend lives in the UK, and I'm not sure exactly where her doctor was (somewhere in northern England is all I can remember), but I think a transatlantic trip might be too painful for you in any case. Sorry I can't be more help about that. However, I'm sure there must be doctors on the East Coast who have experience with this condition. If you can track down a support group for the condition they might be able to put you in contact with a doctor.

You might find more information at and

Good luck.




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