Posted by farshad on April 1, 2018, at 2:15:22
In reply to Re: How are you doing? » farshad, posted by ed_uk2010 on March 31, 2018, at 13:06:51
> Hi Farshad,
>
> Yes, people do care. If they didn't, they wouldn't be asking about you or logging on to have a conversation. It's also good that you have an appointment soon.
>
> >I think I have a tumor in the paraventricular nucleus that constantly releases CRH.
>
> To be absolutely honest, it is extremely unlikely that you have a brain tumour. I'm not sure why you would think that you do. You haven't mentioned any test so far that suggests you have a tumour releasing CRH. The genetic tests you did from an online source certainly don't suggest this.
>
> I think it's important to make it clear that finding Zyprexa calming does not in any way prove that you have elevated CRH. A very high proportion of people find Zyprexa calming irrespective of CRH. Plus, a lot of people find Zyprexa calming even when other meds haven't helped.
>
> From what you say, you seem to have had mental health symptoms for a long time, not just recently. Am I right? Brain tumours do not cause long term mental health symptoms in isolation.... This is because, if a brain tumour was the cause of your mental health symptoms, you would have been physically very ill a long time ago.
>
> >So Im gonna ask for an MRI scan.
>
> I think you would find that reassuring, but it's not the first step....
>
> First of all, if you have neurological symptoms such as visual loss, you doctor would do a neurological examination. As a rule, people with rapid onset neurological symptoms over a few weeks would usually have an MRI. If you have had mental health symptoms for several years and no neurological dysfunction, this would not usually be a reason to do an MRI.
>
> >I do have a tumor I will get gamma knife surgery but if I cant for some reason have that particular surgery, since I dont want them to open my skull.
>
> Gamma Knife isn't actually surgery. It does not involve opening the skull. Gamma Knife is a special type of radiotherapy (radiation treatment) for brain cancers. From what you had said, there isn't any reason why you should think you have cancer though.
>
> I think you should discuss all your concerns with your doctor, and get an examination done to put your mind at rest. The doctor may also do some blood tests like you wanted before.
>Well like I said im not gonna argue with you if I have a tumor or not I will just have to see and find out.
I believe its a benign tumor (non cancerous) so it doesent spread anywhere and its just in one part of my brain in the paraventricular nucleus .
I believe I have had this since I was 10-11 years old.... the older I got the more anxiety I got this would make sense since this mean the tumor got bigger more cells built up and pressing the CRH harder..
I know gamma knife is radiotherapy . I maybe worded it wrong when I said surgery I thought you could call it a surgery since it invovles operating on a person from doctor. and I havent even told you my symtomps but here are some: blurry vision , loss of balance, headache/pressure, sometimes tinnitus to name a few..
I will discuss this with my doc but since You asked I thought I would explain where im at right now.
poster:farshad
thread:1097352
URL: http://www.dr-bob.org/babble/20180331/msgs/1097885.html