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Re: Squiggles and K withdrawals » J. Wesley

Posted by Squiggles on December 24, 2002, at 11:12:58

In reply to Re: Squiggles and K withdrawals » Squiggles, posted by J. Wesley on December 24, 2002, at 10:43:10

J. Wesley,

I am infact comforted by your concern. I will
be happy to answer your questions, because
i feel i was ill enough to die.

My husband was the one who told me to up the dose
when he saw me in that state, which i did, first
0.250 and then 5.0 and eventually 1.0 and after
1.50 - that is what i am at now.

My mother came and she was very concerned about
my state and actually dragged my dr. to the phone
from another job she was doing. My mother described
the symptoms and my dr. said i had withdrawals.

In the meantime i did not get better, and i was
so frightened i went to emergency; i got some
movement tests and the young dr. could not find
anything.

Then i called a private doctor, who saw me and
thought maybe the spine had something to do with it
and definitely the withdrawal. She ordered an
Electroencephalogram, an X-RAY for the spine and
a nerve (for hands) test.

The EEG was OK though the nurse told me i may have
looked up a neurologist and also i went quite late
after the event - if it was a seizure it may not
have shown. The neurologist told me i did not have
carpal tunnel, but the nerves in the hands were ok.

When I saw my dr. he asked what i thought it was --
and i said i thought it was encephalopathy and he
asked why and i said i read it in The Merck.

Anyway, he said if i wanted to get off i would have
to wait another 6 months ( which i dared not do
after that experience); and i asked if i could bring
it up again to 1.50 and he said that was fine if i felt
more comfortable.

So, i had to raise the dose to stop the most severe
symptoms, but the remnants of that are still with me
though fading.

I would not blame my dr. - I think many drs. are
unfamiliar with these drugs. I mean it is hard
to believe that 1.0 mg (after 15 yrs may be different
though) could cause such distress and misery.

Squiggles


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poster:Squiggles thread:132986
URL: http://www.dr-bob.org/babble/20021223/msgs/133091.html