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Dr. Bob is Robert Hsiung, MD,
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Posted by Fi on October 10, 2004, at 14:25:20
In reply to Thank you for the support Falls and » Fi, posted by Dinah on October 10, 2004, at 9:47:58
Hopefully, your therapist and the board can help you stick at this very hard task.
Good luck.
Fi
Posted by Dinah on October 12, 2004, at 8:12:09
In reply to Re: Thank you for the support Falls and » Dinah, posted by Fi on October 10, 2004, at 14:25:20
Bad maybe, but not suicidal.
Let's see. My parents didn't make me furious yesterday, so I had a respite from constant adrenaline surges.
My mom broke the two day lead time rule, and I did what she asked anyway. So I was a bit angry with her and with me. But I reminded her of the rule and told her she lucked out this time, which dissipated the anger a bit. Unfortunately, I did it in front of the person they hired to help around the house AND the physical therapist, so I probably came across as cold, but oh well...
It also embarassed me to see her being herself. Ordering the poor woman around in her usual nitpicking way that has more to do with her revelling in having power than it does with actual comments on the work. She looooves having employees. But I managed to say the mantra I developed as a child. "I am not my mother. People realize that I am not my mother. What she does is what she does, not what I do. People know that."
I hope that mantra's true. :(
I got out of the house to the office yesterday, which forced me into work mode at least a bit. And gave me a few hours to not miss Harry on my lap or next to me on the bed.
Oh, and I didn't have a full fledged migraine, just a mild optical migraine.
And today I really need to get something out ASAP, so that's occupying part of my mind.
If my parents don't keep reopening the wounds, at least for a few days, maybe just maybe I'll be able to regain some resiliency.
Posted by fallsfall on October 12, 2004, at 11:09:46
In reply to Hey! I don't feel so bad this morning., posted by Dinah on October 12, 2004, at 8:12:09
You deserve a small respite. Breathe deeply and enjoy it.
Posted by Larry Hoover on October 12, 2004, at 12:43:01
In reply to Hey! I don't feel so bad this morning., posted by Dinah on October 12, 2004, at 8:12:09
> My mom broke the two day lead time rule, and I did what she asked anyway. So I was a bit angry with her and with me. But I reminded her of the rule and told her she lucked out this time, which dissipated the anger a bit.
The boundary setter (you) has every right to rescind a boundary now and again, if it's expedient to do so. It is wise to remind the other party not only of the existence of that boundary, but also that you are consciously tossing them a bone. It was still your decision. That's the new theme.
Di, give it some time. Change doesn't come in a day. It took a long time for things to get messed up. It's going to take a bit of time to organize things anew.
Adults are no different than kids. They like easily understood limits. So long as they're reasonable and respectful limits or boundaries, they stand a very good chance of enduring.
Don't be too surprised if the caregivers you've arranged for aren't already fully aware of the need for boundaries.
One day at a time. Live it one day at a time. If that's too much, live it one hour at a time. I've been down to living one second at a time, on occasion. But sometimes a single second was sufficient to allow a new reality a chance to exist.
I'm very optimistic about what you've been describing these last few days, despite the fact you're so tired.
Take care of yourself, okay?
Lar
Posted by Dinah on October 12, 2004, at 16:29:57
In reply to Re: Hey! I don't feel so bad this morning. » Dinah, posted by Larry Hoover on October 12, 2004, at 12:43:01
Another caving by me. It's never going to stop.
I'm calling today for Luvox. :(
Posted by AuntieMel on October 12, 2004, at 17:24:33
In reply to Another request, another great reason, posted by Dinah on October 12, 2004, at 16:29:57
Dinah - it's hard to break years of training, no matter how much you try.
Try not to think of them as a "cave" but as a temporary lapse. Just re-dedicate you to keeping your boundaries and carry on.
Do you have caller-id and a machine? Maybe it would be harder to ask if she can't read your reaction. If not, it at least gives you time to think out a response.
Posted by partlycloudy on October 12, 2004, at 17:52:40
In reply to Another request, another great reason, posted by Dinah on October 12, 2004, at 16:29:57
This is as new to you as it is to her - easy, easy. Don't beat yourself up, please.
pc
Posted by Dinah on October 14, 2004, at 21:21:05
In reply to Re: Another request, another great reason » Dinah, posted by partlycloudy on October 12, 2004, at 17:52:40
Realized that part of both ends of the problem is that I'm scared my dad's going to die. The fear feeds the anger, and also prevents me from keeping strong boundaries. I'm afraid he'll die and I'll hate myself forever.
I went out of my way to care for Harry in his last year. We didn't take any vacation, I spent a fortune. I worked from home as much as possible so I could help him. And when he died I felt happy to know that I had done what I could.
How will I feel when my Dad dies?
He's not a perfect man by any means, but he loves me and did his best by me. How could I live with myself if I did less for him.
I realize that some things I just can't do. I can't help him with body functions or bathe him. I can't take him into my home. But the other things I can do I should do gladly out of love.
My therapist says I need to learn to live within my emotional limitations. That if I can't learn to do that it'll kill me. And yes, I can't do this. This is clear. I'm basically nonfunctional. But it doesn't matter if I can't, I have to or die trying. Because I can't live with myself otherwise.
I'm scared to think of my father dying, for a myriad of reasons. He's my daddy and I love him. He's left me in a very awkward position with the rest of my family, estate wise. He always took care of me, even if I took care of him too.
It scares me to see him like this. His belly is all distended, and the doctors said his liver is so bad that his kidneys are malfunctioning and his abdomen is filled with urine. I can't think this is a good thing. He's so weak. They're going to do an ultrasound next week, and put in a needle to drain the fluids. I'm going to be in deep doo doo at work if I go, but I can't not go. He asked me to bring him. I'm afraid he's going to die soon.
I pray the Luvox works, because I'm pretty sure what will happen to me if it doesn't.
Posted by Skittles on October 14, 2004, at 21:24:10
In reply to Can't do it, not going to try., posted by Dinah on October 14, 2004, at 21:21:05
Posted by Dinah on October 14, 2004, at 22:56:36
In reply to Can't do it, not going to try., posted by Dinah on October 14, 2004, at 21:21:05
Did some internet research. But they did get enough right to concern me. My mother says two of the doctors said a life expectancy of no more than two years, but you can't believe my mother.
He *looks* bad. He looks such a way that the kidney failure that my mother mentioned doesn't seem unlikely, though I can't believe what she says.
I guess I'll find out when I take him to the three doctor appts next week. When I'm going to work, I'm not sure.
Posted by Pfinstegg on October 15, 2004, at 15:27:40
In reply to As usual my parents got quite a bit wrong, posted by Dinah on October 14, 2004, at 22:56:36
Dinah - I'm so sorry. It sounds as though your father may have both kidney and liver failure (liver failure is the one that causes abdominal distention), He can live quite a long time with these- it could be years, but it could also be more like months.
I lost both of my parents in the last eight years, and I am trying to think what things helped me and them the most, and what things didn't so much. I think the physical things- care - were the most draining and the least rewarding. Turning all of that over to home health care aides was a huge relief, as I didn't have to deal so much with their fear, resentment, balkiness, etc. I was more in a position to choose what our interactions woud be like, and I tried hard to make them positive. One of the best things was just sitting with them, and encouraging them to recall the happiest moments in their lives- and to share them withh me (I learned a number of things I'd never known). It seemed to help them be more peaceful to remember meaningful moments, and to have me acknowledge them. Then, when they were very ill, it helped to stroke their hair, faces and hands, and thank them for being my parents. They were pretty awful parents, but even so, there were things to love and appreciate about each one. I know you know all these things, and are already doing them, but I just wanted to post to say that I'm glad you are back here and in touch with us. If you hadn't been by today, I was going to put in a call for you. Things just aren't right when you're not here. Still, that's quite selfish, as you've got your parents, your own family, more therapy appointments than usual- and work to fit in somehow. Really glad you posted today, though.
Posted by AuntieMel on October 15, 2004, at 15:40:45
In reply to Can't do it, not going to try., posted by Dinah on October 14, 2004, at 21:21:05
Then I vote for you not to try. Spend as much or as little time with him as you emotionally can, but make it quality time. Get a tape recorder and ask him to tell you stories about his life. Laugh about the things you remember together. Look at pictures together.
Enjoy what you can.
Posted by Dinah on October 15, 2004, at 18:24:05
In reply to Re: Can't do it, not going to try. » Dinah, posted by AuntieMel on October 15, 2004, at 15:40:45
I'll do my best, but my father *hates* that sort of thing. He's so far refused to tell stories into a tape, and I started long before he had anything wrong with him. If I try to tell him how much he's meant to me, he'll say something rude. I'll do it anyway. I know the rude is just a surface thing. Maybe a few layers deep into the surface. :)
Posted by Dinah on October 15, 2004, at 18:32:09
In reply to Re: As usual my parents got quite a bit wrong » Dinah, posted by Pfinstegg on October 15, 2004, at 15:27:40
I have this bizarre gift of being able to see when dogs are going to die. I've only been wrong once, and that was with my dad a few years ago; I guess it's because he's not a dog.
He's got that look that's got me scared again though.
If I do happen to disappear, don't worry too much. My therapist is making hospital noises. I'm a bit annoyed with him. You're supposed to be honest with them, and I'm in no immediate danger. I hope he doesn't choose that route. It could be a serious rupture in the therapeutic relationship.
I'm going to do my best to do what I know is the right thing. I sure wish my parents would make it as easy as Harry did, though. :)
And I'm going to take the time (that I don't have) to bring him to his tests and procedures over the next couple of weeks. Maybe I'll learn something that doesn't come through my mother.
Thanks for thinking of me. I'm selfishly glad to know that my presence is important to you. :)
Posted by gardenergirl on October 15, 2004, at 22:03:29
In reply to Re: As usual my parents got quite a bit wrong » Pfinstegg, posted by Dinah on October 15, 2004, at 18:32:09
I'm so sorry you are going through this. It does sound really upsetting and scary. Your intuition is something you rely on, so I can understand your fear.
Please know you are in my thoughts.
gg
Posted by Dinah on October 16, 2004, at 11:23:14
In reply to ((((((Dinah))))))) » Dinah, posted by gardenergirl on October 15, 2004, at 22:03:29
Fortunately I have past experience that I can be wrong about humans. There must be different dynamics at work.
Another truck ran me over. Well, the whole family really. MIL is in ICU, husband fainted at hospital on hearing talk of living wills and now his OCD is acting up. I think the protective function of OCD really does bear investigating. It is so much safer to focus on fears you know are unrealistic about germs on a hospital floor than it is to focus on realistic fears of parents dying.
My poor son. We're trying to prepare him generically for death, without saying too much about any one grandparent. Husband's family prefers denial, and I must say it's worked well for them. Don't want to mess with what works.
Posted by Dinah on October 16, 2004, at 12:30:25
In reply to Re: Thanks » gardenergirl, posted by Dinah on October 16, 2004, at 11:23:14
in my life right now.
I need an injection of life.
Posted by fallsfall on October 16, 2004, at 14:02:25
In reply to Death, death everywhere, posted by Dinah on October 16, 2004, at 12:30:25
(((((Dinah)))))
I wish I knew something to say that would be helpful for you, but I am at a complete loss...
Please know that I'm thinking of you, and would be happy to hear you vent anytime.
Posted by 64bowtie on October 16, 2004, at 15:10:08
In reply to Can't do it, not going to try., posted by Dinah on October 14, 2004, at 21:21:05
(((Dinah))),
>
> I pray the Luvox works, because I'm pretty sure what will happen to me if it doesn't.
><<< Please picture your son looking up at you lovingly... Its not as much about you as you might think... And no, he won't get over it! Please remember that less is more, and do your best with less (to worry about)... Please don't leave your son unfinished... He will need your help (not your sanity) till he's 25... (You might need your sanity, but he doesn't need it for you to be helpful to him). When he's 25, you're "off-the-hook"... (parental hook)
Rod
PS: You'll be important to me long after your son turns 25...
Posted by 64bowtie on October 16, 2004, at 15:17:11
In reply to Death, death everywhere, posted by Dinah on October 16, 2004, at 12:30:25
> in my life right now.
>
> I need an injection of life.(((Dinah))),
"Keep coming back! It really works"
(here at Babble toooo)...a slogan on a 12 step birthday card,
"Keep coming back till you want to....."Rod
Posted by Dinah on October 16, 2004, at 16:12:46
In reply to (((Dinah))) picture your son looking lovingly, posted by 64bowtie on October 16, 2004, at 15:10:08
D*mn it.
I found myself reassuring my son last night that everything would be ok no matter what happened, because Mom and Dad would be here to watch out for him.
And then I thought about my plans and felt a bit sick.
And then I was talking to my husband this morning about his Mom, and he told me how much he needed me. He's promised that he'll outlive me, but he wanted me to reassure him that it wouldn't be for many many years. And I felt a bit sick again.
It's so much easier to be selfish and only think about how much I hurt. And how I can't bear to hurt like this.
It's a lot harder to look in the faces of people who are also hurting, and know I could hurt them more.
Which still leaves me caught in the headlights.
Posted by gardenergirl on October 16, 2004, at 16:38:55
In reply to You just may be right » 64bowtie, posted by Dinah on October 16, 2004, at 16:12:46
Dinah,
I wish the headlights weren't so intense. Can you just kind of squat or sit down for a bit and get out of the light and regroup? You've got way too much on your plate right now. Truly you are in the sandwich generation, and that doesn't mean that you are getting P B and J sustenance. You know, I think there might be support groups out there for sandwichers.And there is always Babble. Hang in and hang on. I hope the Luvox starts doing it's thing. Maybe time for an increase? You know you best.
(((((Dinah))))))
gg
Posted by Dinah on October 16, 2004, at 17:12:09
In reply to Re: You just may be right » Dinah, posted by gardenergirl on October 16, 2004, at 16:38:55
I guess the thing I'm worried about with support groups is that it'll make me feel worse. I'm really not doing all that much for my parents. Other people are doing a whole lot more for their parents.
My therapist says I need to learn to live within my emotional limitations. That I just couldn't expect myself to do as much as some people do. That there was nothing wrong in being emotionally limited, but that the problem came when I refused to recognize them (like someone not living within their financial limitations). I thought for a while about being offended, but decided I hadn't the energy. I thought that was so un-CBT of him. Isn't he supposed to encourage me to overcome my emotional limitations?
Posted by gardenergirl on October 16, 2004, at 19:36:22
In reply to Sandwich generation support groups » gardenergirl, posted by Dinah on October 16, 2004, at 17:12:09
Well, I'm not a huge CBT'er, so I can't really answer that question. But I suppose there are some areas when it's more therapeutic to teach coping and compensation versus attaining a new level or skill.
I remember an activities director at the nursing home where I used to work who told me that her father was in another facility not that far away, but that she could never visit him due to the nature of their relationship. She had struggled and struggled with that decision, but finally realized that it was okay. And she also realized that just as she was providing support and caring to the residents at our facility, someone was doing the same for her father (at least as much as he would allow in) at the other home.
I know your situation is different, and I can see how it would be upsetting if "supercaregiver" were in a group, or even some that just weren't supportive of individual needs. I support your decisions, because I know you don't make them lightly. I know you agonize over them. But you can only do what you can do. And you are the top priority for your care, followed (my values here, not necessarily anywone else's) by your son and your husband. Then what's left can work its way out.
Warmly,
gg
Posted by AuntieMel on October 16, 2004, at 23:02:48
In reply to Sandwich generation support groups » gardenergirl, posted by Dinah on October 16, 2004, at 17:12:09
<<<My therapist says I need to learn to live within my emotional limitations.
Maybe it's like having a baby...it starts small, then as it increaces in size the belly grows to fit.
But if you were to shove the full grown baby into the belly - something bad would happen.
If you live within your emotional limits, then the capacity will grow. But if you try to stretch the limits too far.....something bad will happen.
Oohhh - that was bad. I hope you get the idea...
This is the end of the thread.
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