Posted by Dr. Bob on October 25, 2001, at 8:25:39
In reply to Re: Institutional Review Board policies, posted by phillybob on February 3, 2001, at 8:38:17
> [The] view ... of the Department of Health and Human Services ... is that research is "systematic investigation ... designed to develop or contribute to generalizable knowledge."
> I'll submit this to [my IRB], and we'll see what they say.
They have in fact deemed this research -- the "generalizable knowledge" is how online communities work and affect the mental health of their members -- and have approved it.
> What I am envisioning is a warning message that new registrants would have to go "through" to register their name here--I am thinking that this step could create a moment of thought about this that could really help.
> What do you think?
It's now considered research, so explicit informed consent -- just such a "moment of thought" -- is now required. As Noa suggested, I've incorporated this into the registration process. To be consistent, everyone, and not just new registrants, will need to consent.
I'd be interested in feedback. If you don't want to consent to post something, just email me directly: firstname.lastname@example.org