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Re: New informed consent procedure

Posted by wendy b. on October 26, 2001, at 8:26:39

In reply to Re: New informed consent procedure, posted by Dr. Bob on October 25, 2001, at 8:25:39

> > [The] view ... of the Department of Health and Human Services ... is that research is "systematic investigation ... designed to develop or contribute to generalizable knowledge."
> > I'll submit this to [my IRB], and we'll see what they say.
> They have in fact deemed this research -- the "generalizable knowledge" is how online communities work and affect the mental health of their members -- and have approved it.
> > What I am envisioning is a warning message that new registrants would have to go "through" to register their name here--I am thinking that this step could create a moment of thought about this that could really help.
> >
> > What do you think?
> It's now considered research, so explicit informed consent -- just such a "moment of thought" -- is now required. As Noa suggested, I've incorporated this into the registration process. To be consistent, everyone, and not just new registrants, will need to consent.
> I'd be interested in feedback. If you don't want to consent to post something, just email me directly:
> Bob

Dear Bob,

The only thing I'd like to *Register*, after having gone through the entire process last night - including taking the little 'test' - is that it's cumbersome. Of course, you can't help it if your IRB changed what you have to do in order to keep the site going. Whether or not PsychoBabble is 'research' proper is their call, obviously. You're just a member of the faculty, who cares about what you think, right? :-]

Also, I'm getting paranoid about my screen name now! But as Phillybob says more eloquently in the post above from February, I have nothing to hide, my comments and contributions are real and from the heart... oh well, let's just quote him:

"[I personally do not care of my own privacy and am very comfortable in my own being and with the words
that emanate from me in the hopes that they will help others ... which ultimately is what I believe this board
is all about.]"

Hope there ensues a good discussion about the re-registration process... Is there any way to tell how many people have done this since you posted it yesterday? I'd be interested.

Thanks, as always, for maintaining and monitoring the site as conscientiously as you do,





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