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Re: Institutional Review Board policies

Posted by Dr. Bob on January 27, 2001, at 0:36:09

In reply to Re: Institutional Review Board policies, posted by danf on January 25, 2001, at 5:19:05

> There are 2 very different issues here.
>
> The first: does an IRB need to decide if a support board is research, in & of itself ?
>
> The second question is: Does an IRB need to give consent when public information is used to write a paper that compiles information & draws conclusions.

I was thinking something like that myself. I don't think I need their approval to make this board available, but I may need (should ask for) it to write about it.


> It would be interesting to compare PB with other like forums on the Internet. There would be many ways to go with that idea.

I agree! What other boards would be good "guinea pigs"? Maybe Tapir is mentioned the most often?


> Dr. Bob, one would think this isn't necessary, but perhaps when people register, you could offer a brief, very prominent warning message about the benefits of choosing a non-identifying screen name

Currently, under where you enter your "name", it says: "Does not have to be your real name; consider your privacy." "Not" is in bold, and "privacy" is a link to "How private are things here?" in the FAQ. This does fall short of *recommending* something other than your real name, however...

> the "intimacy" of the exchanges can sometimes create an illusion of being in a group with closer boundaries than are really there.

That's an excellent point. Some people refer to "disinhibition" online, but that makes me think of being drunk, whereas I think the key is a feeling of safety, so lately I've been thinking of it as "cybersecurity"...


> the involvement of more minds, and a diversity of viewpoints can improve collective activity.

It pains me a little to admit it :-) but this reminds me of something I added to my home page after the big crash:

Now, how are we to recognize Nature's most excellent web sites? ... whatever does not kill them makes them stronger. --Ecce Homo (adapted), Friedrich Nietzsche, 1889

Bob


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