Posted by alfbarks007 on February 12, 2014, at 12:28:01
In reply to Re: Taking Risperdal in the morning vs at night?, posted by Willful on February 12, 2014, at 10:21:30
wow your post made me cry but not in a bad way but in a good way. you summed up so much of how I feel and what my life is like on a daily basis and has been for so many years if no and decades. Actually that was not my first seizure. My first one was when I was 17 and had been up all night riding from Minnesota to Colorado two weeks after giving birth and had been sleeping in the back of a pick up so was very tired and hungry and the early morning light and watching the trees go by seemed to be enough to trigger that first strobe seizure. My 2nd one was right after giving birth but I can blame that one of preeclampsia which then they put me on Dilantin which after a year or so caused severe bleeding gums so they were in the process of switching me to phenobarbital and I did not follow suit and stay on Dilantin long enough for the phenobarbital to kick in and take over and again had been up all night at a party (I was 17 then 19 with both these) and I had to walk across a bridge that had a chain link fence and I was trying to get over it and I felt the aura coming on and made it to the corner drug store before having yet a 3rd grand mal, that was in 1976 and my next one was in 1994 so a long time to live in a sheltered away from the sun and strobes and that is how my whole life has been...and each day is just a struggle to get out and feel like I can enjoy something like a nice mountain road trip but I wait for cloudy days, love cloudy days so I can feel so functional. Colorado has too many sunny days and I want to move to Seattle so I can have something of a life in the clouds.
So I did talk to a counselor not too long ago when I was given the Risperdal and asked him about the PTSD because it has crossed my mind too and he said I don't fit the bill for it yet the psych nurse says I do.
I did some research after your post on meds that help with PTSD and though not really advocated as one I found several excellent reports of Buspar. I even found papers that specifically say it does not affect seizure or epilepsy disorders. So many wonderful reviews on this med that I may have to ask psych nurse for a trial of it. As for living with so much innerturmoil that I cant enjoy much that is something that you hit right on the head! Are you a psychic? what are you? you are so correct on so many things like you looked right into my life! are you a spy? Between you and Eric you have both given me some really good insight but nothing can quell this fear of taking the Risperdal with the seizure risk even how small it is. I was going to retake it last night and had it in my hand with a glass of water and somehow ended up flinging it across the room instead with all the good and bad flashing through my mind with it and thee only bad was that stupid dam dumb fear of having a seizure. its funny that I've intentionally looked up advil to see if it can cause seizures and yes it can but I continue to take it as needed for pain but now with a tinge of fear to it but yet I take it anyways...I don't know if it is because this med is an antipsychotic that makes the fear worse of what the heck the deal is but I wish I could pull that fear right out of my brain and flush it down the toilet. I'm sorry I tend to drag on and on with my posts, I guess I have to lot to get out though this is not a therapy board and you are all so helpful and I can say how much I appreciate it all your help and everyone elses too..
poster:alfbarks007
thread:1060511
URL: http://www.dr-bob.org/babble/20140123/msgs/1060594.html