Posted by Bob on March 19, 2001, at 23:08:13
In reply to Re: Topamax Experiences: Long Term Use, posted by o2manyfish on March 18, 2001, at 2:17:05
> Hi There, I thought I would add some insight. I have been on Topamax for almost a year at 200mg a day. I was prescribed the Topamax to handle seizures and other problems created as a result of Encephalitis in the brain.
>
> I had my first bout of Kidney stones after about 3 months on the Topamax. Then starting in September of last year the kidney stone occurrence became every 2 weeks. The Topamax has now damaged my kidneys.
>
> Also as a result of the dry mouth I have ended up with severe peridontal damage on the jaw bone underneath the gum line.
>
> I am now weaning myself off the Topamax and am trying to find a new anti-seizure medicine to supplement it. I can't continue treatment for any of my other issues until I am off the Topomax.
>
> Other side effects I had with the Topomax included the inability to sleep regularly (2 hrs a night) until exhaustion set in, taste issues - I lost the ability to taste textures -- All sodas taste flat for example.
>
> I am now down to 100mg of topamax everyother day and it barely maintains me on the edge of functionality and seizures.o2manyfish:
Could you please elaborate on how exactly the Topomax damaged your kidneys and the bone in your jaw for those of of who are taking comparable levels of the med? Needless to say, you have scared the you know what out of me! There is no evidence I have seen in the literature that Topirimate causes lasting permanent kidney damage, and you did not get specific about what happened to you.
Bob.
poster:Bob
thread:50878
URL: http://www.dr-bob.org/babble/20010319/msgs/56954.html