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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 15 of 15. This is the beginning of the thread.
Posted by Phillipa on November 8, 2009, at 12:09:59
Just thinking when did you say hey I'm treatment resistant? Was it a life event that was the beginning of meds? Illness? Change in Life Circumstances? Phillipa
Posted by Maxime on November 8, 2009, at 13:51:37
In reply to When Did You Say 'I'm Treatment Resistant'?, posted by Phillipa on November 8, 2009, at 12:09:59
When I had tried 4-6 different meds and nothing worked.
Posted by delna on November 8, 2009, at 16:15:30
In reply to When Did You Say 'I'm Treatment Resistant'?, posted by Phillipa on November 8, 2009, at 12:09:59
> Just thinking when did you say hey I'm treatment resistant? Was it a life event that was the beginning of meds? Illness? Change in Life Circumstances? Phillipa
Post Geodon....
when I had to get off geodon and I tailspinned back into my former state.
I realized that I had been depressed/unstable my whole life (since 12) and completely non-functional. I had tried really hard to be 'normal' ,keep a job and have a life but I just couldn't do it. I stayed in bed all day,cried all the time and couldn't function like others around me. People just thought it was 'me' (and so did I). I just thought I was a weak person and 'different' (in that I thought life was a punishment) .
Only my sis didn't think like that and pushed me to see pdocs( mainly because I was suicidal all the time). Somehow I thought that was normal- being suicidal, that is.So for me meds came years after I had been formally (and wrongly) diagnosed (18).
I took my first med at 24 and only because I made another suicide attempt. Post that I tried so many drugs but I kept relapsing,not responding or was unable to tolerate side effects so I was never really okay (in retrospect).I only realized that once I took Geodon (33). That's the first time I accepted that I was ill because Geodon made me realize what normal felt like.
(I've had feelings of being not-depressed in the past but only when I have been hypomanic or high on ADs.)
So now that I cant take APs, I feel I am treatment resistant.Since the only one drug that has ever worked on me and made me functional(without crippling side effects) is one that I cannot take. Nor can I take any in that class, which are promising.
Plus the failed parnate attempt didn't help matters.
Now I have to go backwards and revisit the old drugs (like effexor) with different add-ons and now a mood stabilizer. I'm not too hopeful though.Wow, i went on and on.....
sorry, I just needed to share here. I feel quite alone. No one else understands why I feel so hopeless. they think there are tons of effective drugs out there (that make you normal) and that new ones keep flooding the market weekly.Love
D
Posted by delna on November 8, 2009, at 16:20:06
In reply to Re: When Did You Say 'I'm Treatment Resistant'? » Phillipa, posted by delna on November 8, 2009, at 16:15:30
Posted by ricker on November 8, 2009, at 17:51:36
In reply to When Did You Say 'I'm Treatment Resistant'?, posted by Phillipa on November 8, 2009, at 12:09:59
> when did you say hey I'm treatment resistant?
About 10 years ago, or, 975 empty pill bottles :-)
Posted by Phillipa on November 8, 2009, at 19:27:14
In reply to Re: When Did You Say 'I'm Treatment Resistant'? » Phillipa, posted by delna on November 8, 2009, at 16:15:30
Delna so sorry didn't realize you'd suffered so long must be a way for the geodon again. Love Phillipa
Posted by Phillipa on November 8, 2009, at 19:28:22
In reply to Re: When Did You Say 'I'm Treatment Resistant'?, posted by ricker on November 8, 2009, at 17:51:36
Ricker that's a whole lot of meds. Love Phillipa
Posted by Sigismund on November 8, 2009, at 20:35:10
In reply to Re: When Did You Say 'I'm Treatment Resistant'? » Phillipa, posted by delna on November 8, 2009, at 16:15:30
>they think there are tons of effective drugs out there (that make you normal) and that new ones keep flooding the market weekly.
You're right....I believe there are people who think this.
Posted by bleauberry on November 9, 2009, at 16:28:29
In reply to When Did You Say 'I'm Treatment Resistant'?, posted by Phillipa on November 8, 2009, at 12:09:59
I don't believe in treatment resistance. To me it means, in its simplest crudest fashion, wrong diagnosis, wrong treatment.
Take me for example. There isn't a psych med on the planet that is going to convince borrelia, bartonella, or babesia (the bad guys of Lyme) to pack up their bags and leave. They are going to keep partying and pissing and pooping all over my serotonin and dopamine no matter what the psychiatrist prescribes. That is, unless it happens to maybe be an antibiotic, an anti-inflammatory, an anti-autoimmune, and an immune balancer. In that case, the depression goes completely bye-bye in a few months, and the patient feels like they did 20 years ago before depression ever hit. No psych med is going to do that if the proper diagnosis is not made.
Sad thing. A proper diagnosis is rarely attempted or even considered.
But I'm different, right? No. Treatment resistance means something else is going on. And whatever it is, the preponderance of the evidence strongly suggests that whatever it is, the tools of the psychiatrist are not within that arena.
Posted by zzzz7 on November 9, 2009, at 17:58:34
In reply to Re: When Did You Say 'I'm Treatment Resistant'?, posted by Sigismund on November 8, 2009, at 20:35:10
Last year, one year ago when I realized that I was no longer able to control my depression on .1mg of SSRIs and such.
Posted by Phillipa on November 9, 2009, at 18:20:33
In reply to Re: When Did You Say 'I'm Treatment Resistant'?, posted by zzzz7 on November 9, 2009, at 17:58:34
So basically when meds didn't work or pooped out right? Might be something to this illness theory. Phillipa
Posted by bleauberry on November 11, 2009, at 18:05:15
In reply to Re: When Did You Say 'I'm Treatment Resistant'?, posted by Phillipa on November 9, 2009, at 18:20:33
> So basically when meds didn't work or pooped out right? Might be something to this illness theory. Phillipa
Well, it's actually not theory at all Phillipa if we look at the stories of those whos depression happened to vanish when they treated their illness thoroughly. The web and forums and journals and TV shows are packed full of these fascinating accounts.
They are only theories in the eyes of scientists, doctors, researchers, and pessimists. They are already fact in the lives of real patients.
Not to make it sound like everyone who pinpoints their illness and treats it will be free of some kind of depression treatment, because sometimes permanent organic damage happens. One guy for example was cured of all his strange ails with LDN, but still had some lingering depression. It took a daily dose of DLPA to completely overcome that, kicking in rapidly and completely (not unusual once the illness is out of the way). Prior to that, trials of DLPA for him were troublesome and unrewarding.
Posted by Phillipa on November 11, 2009, at 22:11:21
In reply to Re: When Did You Say 'I'm Treatment Resistant'? » Phillipa, posted by bleauberry on November 11, 2009, at 18:05:15
I know interesting that the lymes was diagnosed within two weeks of my thyroid going out of wack. And now the osteoporosis, bowel problems, wierd anxiety no ad's don't help. Seems my whole body is immune to meds and all things but stress. Love Phillipa ps first ad was after those dx
Posted by floatingbridge on November 13, 2009, at 20:05:34
In reply to When Did You Say 'I'm Treatment Resistant'?, posted by Phillipa on November 8, 2009, at 12:09:59
> Just thinking when did you say hey I'm treatment resistant? Was it a life event that was the beginning of meds? Illness? Change in Life Circumstances? Phillipa
When my current pdoc said I was. I had not heard the term before. That was, of course, after at least 10 years of treatment and many ssri's and snri's, a few AP's and depakote.
fb
Posted by Phillipa on November 13, 2009, at 20:18:18
In reply to Re: When Did You Say 'I'm Treatment Resistant'? » Phillipa, posted by floatingbridge on November 13, 2009, at 20:05:34
fb appointment today? Sure does sound tx resistant. Love Phillipa
This is the end of the thread.
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