Psycho-Babble Medication Thread 510796

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Re: Other rEEG locations?

Posted by Cairo on June 18, 2005, at 12:06:11

In reply to Re: the clinic/doctor I'm going to » 4WD, posted by KaraS on June 17, 2005, at 22:40:39

Dr. Emory's site lists links to only Drs. Schiller and Hoffman. Any idea who else can do the rEEG on the east coast or in the South, but works with CNS Response?

Cairo

 

Re: Other rEEG locations? » Cairo

Posted by 4WD on June 18, 2005, at 15:19:42

In reply to Re: Other rEEG locations?, posted by Cairo on June 18, 2005, at 12:06:11

> Dr. Emory's site lists links to only Drs. Schiller and Hoffman. Any idea who else can do the rEEG on the east coast or in the South, but works with CNS Response?
>
> Cairo


Hi Cairo,

There's a place on that site where you can contact them by email. You tell them where you live and someone will email you back and tell you if there is a clinic or doctor near you who does it. I emailed them, two days later got back a nice response telling me that unfortunately there was no doctor in my area.

Hope this helps.

Marsha

 

Re: KaraS

Posted by ravenstorm on June 21, 2005, at 14:06:06

In reply to Re: Other rEEG locations? » Cairo, posted by 4WD on June 18, 2005, at 15:19:42

Thanks for the babble mail. I haven't been well enough to be on the computer for a few days.

I am a bit concerned about the person who had to keep trying out different meds even after the rEEG. I mean, I thought that is what the rEEG was suppossed to eliminate: the trial and error process. What went wrong with her tests. Or could she not stand the side effects of the meds. That is my concern. A medication might "match" to fix my symptoms, but what if I am so sick on it I can't take it? (I get severe stomach problems, nausea from almost everything!)

Thanks! Keep us posted

 

Re: KaraS » ravenstorm

Posted by KaraS on June 21, 2005, at 17:37:43

In reply to Re: KaraS, posted by ravenstorm on June 21, 2005, at 14:06:06

> Thanks for the babble mail. I haven't been well enough to be on the computer for a few days.
>
> I am a bit concerned about the person who had to keep trying out different meds even after the rEEG. I mean, I thought that is what the rEEG was suppossed to eliminate: the trial and error process. What went wrong with her tests. Or could she not stand the side effects of the meds. That is my concern. A medication might "match" to fix my symptoms, but what if I am so sick on it I can't take it? (I get severe stomach problems, nausea from almost everything!)
>
> Thanks! Keep us posted


Hi,
Unfortunately, not being able to physically tolerate medication(s) that will probably work for you (based on the rEEG) is always a concern. The rEEG will only tell you what it thinks will work for your brain, nothing else.

The reason I was given that it took so long for this particular person to get results was that she had several other issues going on that weren't yet addressed by the time she started the rEEG. It turned out that once she started working with a holistically oriented MD and she got tested and treated for many other things that were throwing her system off, that she started to respond to the rEEG recommendations. (I don't remember all of her issues but I know that she had hormonal problems, thyroid issues that hadn't been recognized and a problem breaking down or utilizing one of the B vitamins (B6 I think?) along with allergy issues). Dr. Emory does have you test for thyroid problems when you start out with him or you can give him prior results. She used tests from a previous doctor or lab that weren't all that accurate. In her case, she ended up having her new MD and Dr. Emory working closely together and coming up with solutions for her. She now takes Parnate, amino acids, hormones, Armour thyroid, vitamins and supplements, B12 shots, enzymes and uses a lightbox. Her "cure" involved a lot of other things besides what Dr. Emory deals with because her situation warranted it. She now considers herself 100% better though.

I hope that my situation is less complicated and that the rEEG alone will be enough for me. I personally feel that for a lot of us who are treatment resistant, that there probably are other factors invovled for us, however, so I wouldn't be surprised if I need to have some other things in my system checked out.

Kara


 

Re: rEEG validation

Posted by Cairo on June 21, 2005, at 21:12:12

In reply to Re: KaraS » ravenstorm, posted by KaraS on June 21, 2005, at 17:37:43

I'm having a very difficult time bringing up studies regarding the use of rEEG and medication response/prescribing. Most point back to Dr. Emory or the other listed on his website.

Other than UCLA, is there anyone/place doing studies on the effectiveness of rEEG? I've raised the issue of it for my daughter who is a very tough case, but my husband wants to see institutional studies.

Help, anyone? Thanks.

Cairo

 

Re: rEEG validation » Cairo

Posted by KaraS on June 22, 2005, at 3:14:09

In reply to Re: rEEG validation, posted by Cairo on June 21, 2005, at 21:12:12

> I'm having a very difficult time bringing up studies regarding the use of rEEG and medication response/prescribing. Most point back to Dr. Emory or the other listed on his website.
>
> Other than UCLA, is there anyone/place doing studies on the effectiveness of rEEG? I've raised the issue of it for my daughter who is a very tough case, but my husband wants to see institutional studies.
>
> Help, anyone? Thanks.
>
> Cairo


Unfortunately I can't help you. I couldn't find much info on this either. Dr. Emory told me that UCLA has its own version of rEEG now. I don't know what that's called but maybe they have more test results on their version. (Then again, even if they did, you might wonder about their subjectivity.) The problem is who is going to pay for a study of the efficacy of rEEG. Certainly not the drug companies who are only interested in promoting their own medications.

I decided to try it based on the little I read, the posts here from Dr. Hoffman and the anecdotal reports from someone who has gone through it (she also told me about 2 people she knows who got great results). The process makes sense to me intuitively and I'm so tired of just trying different things randomly. I decided that all of these things together were enough for me.

Kara

 

Re: rEEG validation

Posted by ravenstorm on June 23, 2005, at 21:43:39

In reply to Re: rEEG validation » Cairo, posted by KaraS on June 22, 2005, at 3:14:09

Kara-I remember from past posts you being very oppossed to SSRIs (which I can certainly understand!). Will you take an SSRI if the rEEG recommends it?

 

Re: rEEG validation » ravenstorm

Posted by KaraS on June 24, 2005, at 3:52:09

In reply to Re: rEEG validation, posted by ravenstorm on June 23, 2005, at 21:43:39

> Kara-I remember from past posts you being very oppossed to SSRIs (which I can certainly understand!). Will you take an SSRI if the rEEG recommends it?


Gee, was it that obvious? I guess I have come across as very opposed to SSRIs. I suppose it's because I have always felt flat and apathetic on them. I think I harbor some anger at all of the time I've wasted trying one after another of them without much luck. Then after I came here, I read so many stories of people with the SSRI apathy and my anger grew.

Back to your question, which was a good one. I have thought about the possibility of the rEEG showing an SSRI for me. I think that looking back, the SSRIs gave me incomplete responses. Maybe I needed a mood stabilizer and/or a stimulant and/or something else in addition to them. Maybe if I had been able to tolerate Wellbutrin, the combination would have been good and I wouldn't have such little respect for the SSRIs now. So I guess the answer to your question is that yes I would be willing to try an SSRI again but only if some other medications are recommended in combination with it. If only an SSRI is indicated for me, then I wouldn't bother and I'd have lost all respect for the rEEG process.

Kara

 

Re: rEEG validation

Posted by ravenstorm on June 24, 2005, at 8:21:30

In reply to Re: rEEG validation » ravenstorm, posted by KaraS on June 24, 2005, at 3:52:09

Keep us posted. I have my fingers crossed for you. When are you getting the rEEG done?


 

Re: rEEG validation » ravenstorm

Posted by KaraS on June 24, 2005, at 19:22:17

In reply to Re: rEEG validation, posted by ravenstorm on June 24, 2005, at 8:21:30

> Keep us posted. I have my fingers crossed for you. When are you getting the rEEG done?

I'm still trying to get my blood test results transferred over to Dr. Emory's office. The clinic I went to previously has been negligent in sending out my results. Once Dr. E's office has this info, then they'll schedule the rEEG for me. I might have to get the tests redone because of the noncooperative clinic but that would mean paying $500 out of pocket that I don't have. GRRRRRRR! I'm very frustrated right now.

Thanks for your support. I'll definitely keep you posted.

K

 

Re: got an rEEG

Posted by ravenstorm on July 18, 2005, at 20:55:45

In reply to Re: rEEG validation » ravenstorm, posted by KaraS on June 24, 2005, at 19:22:17

Well, I got an rEEG and got the results today. Feel like I wasted a lot of money and time and am now off all my meds.

I contacted CNS response and they put me in touch with this guy in Chicago who has just been a horrendous pain in the *ss. I assumed he was a psychiatrist or neurologist or someone who does EEGS. Nope. But thats another story. He just made everything horrible and difficult.

I finally got the rEEG done no thanks to him. I actually was off all medications for nearly a month because I didn't want a lot of withdrawal effects showing up on the rEEG. Unfortunately, I started having about seven hour long panic attacks everynight about two weeks out from stopping meds and so started taking Kava Kava. At first that was like a God send, but after the first week, I was so tired I could barely function. I also reallize in retrospect it made me really depressed but I kept taking it until two days before the test (thats how long they said I could take it until) because I was still so traumatized by what had happened the previous week. Well the day of the test I was still totallly out of it from the Kava. I really think it affected my results, but they don't seem to think herbs do much and weren't concerned when I indicated I felt like I was nearly falling asleep during the test.

Anyway, my results are a total bust. Lots of medications recommended that have not worked for me or that make me worse or that are intolerable. Worse yet, the doctor who then consulted with my pdoc (Dr. Hamlin Emory--I believe this is who you are seeing Kara)came up with some recommendations even though they were not indicated by matching anything in the data base. AND for him to do that when he hadn't even talked to me about my med history just stuns me. I don't know why CNS response referred me to the guy I went to in Chicago who I told my history to and had to pay a consult fee to when they had already decided that DR. Emory would consult with my pdoc WITHOUT EVER TAKING MY HISTORY.

So, despite the fact that I didn't rate an "S" for any of the mood stabilizers, he said based on what my rEEG looked like I should take neurontin and trileptal(Again, even though they don't match anything in the data base which I thought was the whole point of this freakin' test) and then add an activating AD like WB or desipramine.

Uhh, yeah. This is where a med history might have come in real handy for him. 1)took neurontin, made me real depressed and literally so tired could not get off the coach. Tried to say something about this during the conference call. He wasn't really listening

2)WB made me insane with anxiety. It took two freakin' months to get anywhere close to back to my normal level of horrible anxiety after that little trip to hell. Oh and did I mention that I was put on the neurontin to try to cope with the WB anxiety. So, I've already been on two of the three meds he would like me to take and it was a total bust.

3)Anything with norepenephrine makes me anxious, irritable and angry: remeron, WB etc etc but that is pretty much what was recommended for me in terms of ADs.

4)recommended both lorazapam and Klonopin, both of which I have paradoxical reactions to.

THIS WAS MY LAST RESORT. I CAN'T PLAY RUSSIAN ROULETTE WITH THESE MEDS ANY LONGER.

I AM CRUSHED.

 

Re: got an rEEG » ravenstorm

Posted by 4WD on July 18, 2005, at 22:29:16

In reply to Re: got an rEEG, posted by ravenstorm on July 18, 2005, at 20:55:45

> Well, I got an rEEG and got the results today. Feel like I wasted a lot of money and time and am now off all my meds.
>
> I contacted CNS response and they put me in touch with this guy in Chicago who has just been a horrendous pain in the *ss. I assumed he was a psychiatrist or neurologist or someone who does EEGS. Nope. But thats another story. He just made everything horrible and difficult.
>
> I finally got the rEEG done no thanks to him. I actually was off all medications for nearly a month because I didn't want a lot of withdrawal effects showing up on the rEEG. Unfortunately, I started having about seven hour long panic attacks everynight about two weeks out from stopping meds and so started taking Kava Kava. At first that was like a God send, but after the first week, I was so tired I could barely function. I also reallize in retrospect it made me really depressed but I kept taking it until two days before the test (thats how long they said I could take it until) because I was still so traumatized by what had happened the previous week. Well the day of the test I was still totallly out of it from the Kava. I really think it affected my results, but they don't seem to think herbs do much and weren't concerned when I indicated I felt like I was nearly falling asleep during the test.
>
> Anyway, my results are a total bust. Lots of medications recommended that have not worked for me or that make me worse or that are intolerable. Worse yet, the doctor who then consulted with my pdoc (Dr. Hamlin Emory--I believe this is who you are seeing Kara)came up with some recommendations even though they were not indicated by matching anything in the data base. AND for him to do that when he hadn't even talked to me about my med history just stuns me. I don't know why CNS response referred me to the guy I went to in Chicago who I told my history to and had to pay a consult fee to when they had already decided that DR. Emory would consult with my pdoc WITHOUT EVER TAKING MY HISTORY.
>
> So, despite the fact that I didn't rate an "S" for any of the mood stabilizers, he said based on what my rEEG looked like I should take neurontin and trileptal(Again, even though they don't match anything in the data base which I thought was the whole point of this freakin' test) and then add an activating AD like WB or desipramine.
>
> Uhh, yeah. This is where a med history might have come in real handy for him. 1)took neurontin, made me real depressed and literally so tired could not get off the coach. Tried to say something about this during the conference call. He wasn't really listening
>
> 2)WB made me insane with anxiety. It took two freakin' months to get anywhere close to back to my normal level of horrible anxiety after that little trip to hell. Oh and did I mention that I was put on the neurontin to try to cope with the WB anxiety. So, I've already been on two of the three meds he would like me to take and it was a total bust.
>
> 3)Anything with norepenephrine makes me anxious, irritable and angry: remeron, WB etc etc but that is pretty much what was recommended for me in terms of ADs.
>
> 4)recommended both lorazapam and Klonopin, both of which I have paradoxical reactions to.
>
> THIS WAS MY LAST RESORT. I CAN'T PLAY RUSSIAN ROULETTE WITH THESE MEDS ANY LONGER.
>
> I AM CRUSHED.
>

Ravenstorm

I am so sorry. I know how it is to get your hopes up so high and then have them crushed. And I understand exactly how you feel about the Russian Roulette thing. It really is a crapshoot.

I wish there was something I could say that would make you feel better but I can't think of anything. I can tell you to hang in there and all that but I'm sure you've heard it before. Just know that we all out here care about you and feel for you. If nothing else, you've given your brain a break from meds. Maybe now it might respond better to something that worked fairly well in the past?

I think I must have a similar chemistry to you. Wellbutrin made me more anxious as did nortriptyline. And I had paradoxical reaction to ATivan as well. Right now I'm limping along on Celexa 10mg which works a bit for depression but not for anxiety. So I take Klonopin, as little as I can get by with.

Please do try to hang on. We care about you.

Marsha

 

Re: got an rEEG

Posted by Phillipa on July 18, 2005, at 23:01:39

In reply to Re: got an rEEG » ravenstorm, posted by 4WD on July 18, 2005, at 22:29:16

Oh Great! I have a consult at the Washington DC Taste and Smell Center next month. Means a lot of travel and money. Supposed to be the best. I t seems that the more specialized the doctor the worse results. I'm so sorry about your tests. I hope this doesn't happen to me but I've already been to Wake Forrest Taste and Smell and I'm afraid the same thing will happen here. Chemist said not to go. Fondly, Phillipa

 

Re: got an rEEG » ravenstorm

Posted by KaraS on July 19, 2005, at 1:56:59

In reply to Re: got an rEEG, posted by ravenstorm on July 18, 2005, at 20:55:45

Hi ravenstorm,

I'm so sorry to hear that this didn't work out for you. I do know that the rEEG is supposed to show what would be good for your brain - but that it can't say how your body will react to the medication. Because of that, it's not surprising that it would recommend medications that you coudn't tolerate.

Ironically, I had the rEEG last Friday and will be meeting with Dr. Emory tomorrow morning. I know that Dr. Emory hadn't wanted to talk about my history of medications before the test. I'm assuming that tomorrow we'll discuss that as it relates to my results.

My eyes are really tired from an exam today so I don't have the focus to thoroughly reply to your post tonight.

I'll talk to you more about it tomorrow after my appointment. I'm feeling less hopeful though, I can tell you that...

Kara

 

Re: got an rEEG » Phillipa

Posted by Phillipa on July 19, 2005, at 17:16:33

In reply to Re: got an rEEG, posted by Phillipa on July 18, 2005, at 23:01:39

Kara Good luck! Please let us know how it goes. I'm starting to wonder about all these sophisticated tests and specialty centers. Fondly, Phillipa

 

Re: got an rEEG » ravenstorm

Posted by ed_uk on July 19, 2005, at 17:22:30

In reply to Re: got an rEEG, posted by ravenstorm on July 18, 2005, at 20:55:45

Hi,

....but have you ever tried desipramine for depression? It's not like Remeron or Wellbutrin.

~Ed

 

Re: My rEEG appointment was very positive

Posted by KaraS on July 19, 2005, at 17:25:01

In reply to Re: got an rEEG, posted by ravenstorm on July 18, 2005, at 20:55:45

First of all, I like Dr. Emory. I think he's caring, a bit eccentric and really quite brilliant. So far I like working with him. It's sometimes hard to get an answer quickly from his staff because you can rarely get a live person on the line, but that's been my only complaint so far.

Today we went over the rEEG results. He loves going over them with you. They're impossible for someone like me, who hasn't been trained, to fully comprehend, and he isn't great at explaining things (though he really enjoys doing it). I got enough out of it so that I get the gist of the results and the rationale behind his prescriptions for me though.

I thought initially that the test results would be fed in to a computer which would show what medications worked for other people with similar brainwave patterns. But I don't think it's quite like that. It's more that the rEEG measures the various brainwaves (alpha, beta, theta) in various regions of the brain. It measures voltage and something else. He sees where you're deficient and where you have too much of both of these factors in all areas of the brain. He then prescribes accordingly as he or his database knows which medications effect which brainwaves in specific areas and in which direction. For instance, he knew that doxepin, the medication I take a small amount of now, would decrease the voltage of the alpha waves in a certain part of my brain.

I thought I'd have a very low voltage brain because I have no energy or motivation and I'm slow thinking but It turned out that I have a very high voltage brain in many areas i.e. alpha waves in a particular area were extremely high. The betas were extremely low in a particular area. He could see why the SSRI medications didn't help me much. They took care of my anxiety but they actually hindered me in other ways (for instance they would raise the alphas in a particular region where they were already way too high).

He could knew that I need stimulation - that I have an attention deficit problem. He said, "I bet no one has noticed that before" - referring to the attention deficit problem. I told him that I had but no other doctors had. So he's prescribing dexedrine for me. I started on Ritalin a while back but it put me to sleep so I thought that amphetamines wouldn't work either. He said that Ritalin wouldn't work for me according to the rEEG but that these should. We'll see. I'm crossing my fingers.

Lastly, to address my anxiety he recommended a mood stabilizer. He thought Klonopin would be a good choice for me to try first as it has mild mood stabilizing properties. He also mentioned Lamictal and Topomax could be tried instead.

He doesn't think I'll even need an antidepressant. He said that the only one he could even see prescribing for me would be Wellbutrin. I didn't tolerate that well when I tried it a few years back anyway though I'd be willing to try it again if necessary. I asked him about an MAOI for me and he said that they would be much too high voltage for me. It's difficult for me to understand how I can be so high voltage and still need stimulants but I suppose not having enough dopamine available to me is a separate issue from voltage.

Anyway, I'm encouraged so far. We'll see what happens as I try his recommendations.

Kara

 

Re: got an rEEG » ravenstorm

Posted by KaraS on July 19, 2005, at 17:55:48

In reply to Re: got an rEEG, posted by ravenstorm on July 18, 2005, at 20:55:45

Hi again,

I don't know where to start on addressing your disappointment with rEEG. I feel especially bad because I feel that I was at least partly responsible for your trying it. That's why I hesitated initially about giving out the information before I had a chance to test the waters out myself. In this case, at least so far, I'm still feeling positive about things so my delaying posting the information might not have made a difference.

I know how much hell it is to go off of medication. I'm so sorry you had to suffer through that. I tried to do it for this test but was a total mess. I couldn't sleep and the panic was starting in again. Dr. Emory told me to try to take 12.5 mg. of doxepin per night and that he'd work around that in the test. That worked out well otherwise I just couldn't have survived until the test. It obscured the results slightly but it's the only way I could have done it.

I think you started out on the wrong foot with this guy you were dealing with. I wonder if you would have had a better experience had you spoken with Dr. Emory in person and dealt with only him. He isn't the best at explaining things to begin with and sometimes he's off in his own head with what he's discussing but I did manage to get my questions answered. I could see, however, where it would be difficult to do over a conference call.

In terms of the history, I think he doesn't care to know everything because he wants to see it with a fresh set of eyes. He said he has seen people come in to his office with all kinds of different diagnoses and they will end up with similar rEEGs so the diagnoses are meaningless to him. He asked me questions about what I tolerated only as they related to the rEEG results. "The tests show that x would be good for you, have you ever tried x?" OR "I bet the SSRIs didn't work for you at all" OR "Wellbutrin or desipramine are the only two antidepressants that I can see here that might help you somewhat on their own ... Have you ever tried either of them before?" Therefore I have no problem with his not taking a history ahead of time. Had he come up with things to try that haven't worked for me before and continued to insist on them, then I'd be feeling very differently about his not taking my history upfront.

I really wish you had been able to talk to Dr. E. directly over a longer period of time and in person. Maybe you could send a letter to Dr. Emory saying that you were disappointed with the results and why. I bet if it were a nice letter, then he would respond. I could also mention something to him if you like. It may not help but since you've already invested the time, energy and money, it might be worth a shot. I am a good judge of character and I have no doubt that Dr. E. cares deeply about patients and really want things to work out.

Kara

 

Re: got an rEEG » Phillipa

Posted by KaraS on July 19, 2005, at 18:06:28

In reply to Re: got an rEEG » Phillipa, posted by Phillipa on July 19, 2005, at 17:16:33

> Kara Good luck! Please let us know how it goes. I'm starting to wonder about all these sophisticated tests and specialty centers. Fondly, Phillipa


Thanks. Just told you more than you'd ever need or want to know in another post here. I have yet to learn that sometimes less is more. Anyway, let me know how it goes for you with the smell and taste specialists (assuming you stay with your decision to go there).

K

 

Re: got an rEEG

Posted by ravenstorm on July 19, 2005, at 20:46:00

In reply to Re: got an rEEG » ravenstorm, posted by KaraS on July 19, 2005, at 17:55:48

Please do not feel you are responsible for me trying this. You are not at all.

I am envious of your session. We were given only 10min with Dr. E and my whole experience with dealing with the company was very disorganized and not very professional. I wish desperately that I had gone to California and dealt directly with him. I also feel at this point that I would need the rEEG done again, because I really don't believe the Kava was out of my system, even though I followed their guidlines. I tried to express this to someone at CNS response but they just pooh-poohed it and never passed the information on to Dr. Emery. I believe because Kava is an herb they don't take it seriously. It affected me dramatically. I even had sexual side effects from it and the last week I took it I was an absolute zombie, which didn't clear for several days beyond the 48 hours they told me to stop taking it.

I just feel like my test was compromised and then I never even got asked by him, have you tried this med before? like he asked you. I don't think they should refer people out if they are going to get sub standard care. Certainly if I knew the difference between the treatment you received and that I received I would have gotten on a plane to California without question. I wasn't that impressed with how CNS response handled all this.

I supposse I can always start all over with another scan etc. But I just don't know.

I'm glad you had a more positive experience. Lamictal and Topomax weren't even listed on my form to be rated!

I don't know if you would want to mention this all to him or not. I think he should certainly know that if I had known the level of care I got would be so far below what you got I would not have hesitated in going to California. No one at CNS response ever indicated this would be the case. I also don't know if he would let me redo the test due to the Kava issue. If he wouldn't, there isn't much point anyway.

Good luck to you. I am very envious.

 

Re: got an rEEG » ravenstorm

Posted by KaraS on July 19, 2005, at 21:48:24

In reply to Re: got an rEEG, posted by ravenstorm on July 19, 2005, at 20:46:00

> Please do not feel you are responsible for me trying this. You are not at all.
>
> I am envious of your session. We were given only 10min with Dr. E and my whole experience with dealing with the company was very disorganized and not very professional. I wish desperately that I had gone to California and dealt directly with him. I also feel at this point that I would need the rEEG done again, because I really don't believe the Kava was out of my system, even though I followed their guidlines. I tried to express this to someone at CNS response but they just pooh-poohed it and never passed the information on to Dr. Emery. I believe because Kava is an herb they don't take it seriously. It affected me dramatically. I even had sexual side effects from it and the last week I took it I was an absolute zombie, which didn't clear for several days beyond the 48 hours they told me to stop taking it.
>
> I just feel like my test was compromised and then I never even got asked by him, have you tried this med before? like he asked you. I don't think they should refer people out if they are going to get sub standard care. Certainly if I knew the difference between the treatment you received and that I received I would have gotten on a plane to California without question. I wasn't that impressed with how CNS response handled all this.
>
> I supposse I can always start all over with another scan etc. But I just don't know.
>
> I'm glad you had a more positive experience. Lamictal and Topomax weren't even listed on my form to be rated!
>
> I don't know if you would want to mention this all to him or not. I think he should certainly know that if I had known the level of care I got would be so far below what you got I would not have hesitated in going to California. No one at CNS response ever indicated this would be the case. I also don't know if he would let me redo the test due to the Kava issue. If he wouldn't, there isn't much point anyway.
>
> Good luck to you. I am very envious.


I'm also surprised that they didn't take the Kava issue more seriously. I was explicitly told that herbs and supplements could throw the test off. I wasn't even supposed to take vitamins, and especially not fish oil, because they could compromise the scans.

I am going to tell Dr. Emory about your case the next time I see him. Since CNS Response is his company I'm sure he'd be concerned that things weren't handled well with you. I really think you should write a letter though so that you have all of your issues stated and see if he offers anything to help you out. If anything, I would think that he might reinterpret the results taking the Kava into account the way he did for the doxepin.

Is California a long flight from where you are?


 

Re: got an rEEG

Posted by ravenstorm on July 19, 2005, at 21:59:02

In reply to Re: got an rEEG » ravenstorm, posted by KaraS on July 19, 2005, at 21:48:24

I'm from the midwest, but the flight wouldn't bother me.

 

Re: My rEEG appointment was very positive » KaraS

Posted by dazedandconfused on July 20, 2005, at 11:05:58

In reply to Re: My rEEG appointment was very positive, posted by KaraS on July 19, 2005, at 17:25:01

Kara,
Just to let you know I am following this thread w/ great interest! I am sure a lot of others are lurking also. Please do not hesitate to post your results / progress. It is how we all learn.

I wish you all kinds of luck and good wishes! I admire your courage in going forward w/ this.

Dazed

 

Re: My rEEG appointment was very positive » dazedandconfused

Posted by KaraS on July 20, 2005, at 13:57:17

In reply to Re: My rEEG appointment was very positive » KaraS, posted by dazedandconfused on July 20, 2005, at 11:05:58

> Kara,
> Just to let you know I am following this thread w/ great interest! I am sure a lot of others are lurking also. Please do not hesitate to post your results / progress. It is how we all learn.
>
> I wish you all kinds of luck and good wishes! I admire your courage in going forward w/ this.
>
> Dazed


Thanks for your kind words but it really was more desperation than courage.

Now I'm in my fear of medications stage where I'm looking at all of the negatives about the medications I've been prescribed. That usually delays my start a bit but I will post when I have some results to report.

K

 

Re: My rEEG appointment was very positive » KaraS

Posted by dazedandconfused on July 20, 2005, at 16:39:44

In reply to Re: My rEEG appointment was very positive » dazedandconfused, posted by KaraS on July 20, 2005, at 13:57:17

It takes courage to continue to forage on...don't sell yourself short!

Good luck w/ starting the meds.

dazed


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