Posted by KaraS on July 19, 2005, at 17:55:48
In reply to Re: got an rEEG, posted by ravenstorm on July 18, 2005, at 20:55:45
I don't know where to start on addressing your disappointment with rEEG. I feel especially bad because I feel that I was at least partly responsible for your trying it. That's why I hesitated initially about giving out the information before I had a chance to test the waters out myself. In this case, at least so far, I'm still feeling positive about things so my delaying posting the information might not have made a difference.
I know how much hell it is to go off of medication. I'm so sorry you had to suffer through that. I tried to do it for this test but was a total mess. I couldn't sleep and the panic was starting in again. Dr. Emory told me to try to take 12.5 mg. of doxepin per night and that he'd work around that in the test. That worked out well otherwise I just couldn't have survived until the test. It obscured the results slightly but it's the only way I could have done it.
I think you started out on the wrong foot with this guy you were dealing with. I wonder if you would have had a better experience had you spoken with Dr. Emory in person and dealt with only him. He isn't the best at explaining things to begin with and sometimes he's off in his own head with what he's discussing but I did manage to get my questions answered. I could see, however, where it would be difficult to do over a conference call.
In terms of the history, I think he doesn't care to know everything because he wants to see it with a fresh set of eyes. He said he has seen people come in to his office with all kinds of different diagnoses and they will end up with similar rEEGs so the diagnoses are meaningless to him. He asked me questions about what I tolerated only as they related to the rEEG results. "The tests show that x would be good for you, have you ever tried x?" OR "I bet the SSRIs didn't work for you at all" OR "Wellbutrin or desipramine are the only two antidepressants that I can see here that might help you somewhat on their own ... Have you ever tried either of them before?" Therefore I have no problem with his not taking a history ahead of time. Had he come up with things to try that haven't worked for me before and continued to insist on them, then I'd be feeling very differently about his not taking my history upfront.
I really wish you had been able to talk to Dr. E. directly over a longer period of time and in person. Maybe you could send a letter to Dr. Emory saying that you were disappointed with the results and why. I bet if it were a nice letter, then he would respond. I could also mention something to him if you like. It may not help but since you've already invested the time, energy and money, it might be worth a shot. I am a good judge of character and I have no doubt that Dr. E. cares deeply about patients and really want things to work out.