Posted by 4WD on July 18, 2005, at 22:29:16
In reply to Re: got an rEEG, posted by ravenstorm on July 18, 2005, at 20:55:45
> Well, I got an rEEG and got the results today. Feel like I wasted a lot of money and time and am now off all my meds.
>
> I contacted CNS response and they put me in touch with this guy in Chicago who has just been a horrendous pain in the *ss. I assumed he was a psychiatrist or neurologist or someone who does EEGS. Nope. But thats another story. He just made everything horrible and difficult.
>
> I finally got the rEEG done no thanks to him. I actually was off all medications for nearly a month because I didn't want a lot of withdrawal effects showing up on the rEEG. Unfortunately, I started having about seven hour long panic attacks everynight about two weeks out from stopping meds and so started taking Kava Kava. At first that was like a God send, but after the first week, I was so tired I could barely function. I also reallize in retrospect it made me really depressed but I kept taking it until two days before the test (thats how long they said I could take it until) because I was still so traumatized by what had happened the previous week. Well the day of the test I was still totallly out of it from the Kava. I really think it affected my results, but they don't seem to think herbs do much and weren't concerned when I indicated I felt like I was nearly falling asleep during the test.
>
> Anyway, my results are a total bust. Lots of medications recommended that have not worked for me or that make me worse or that are intolerable. Worse yet, the doctor who then consulted with my pdoc (Dr. Hamlin Emory--I believe this is who you are seeing Kara)came up with some recommendations even though they were not indicated by matching anything in the data base. AND for him to do that when he hadn't even talked to me about my med history just stuns me. I don't know why CNS response referred me to the guy I went to in Chicago who I told my history to and had to pay a consult fee to when they had already decided that DR. Emory would consult with my pdoc WITHOUT EVER TAKING MY HISTORY.
>
> So, despite the fact that I didn't rate an "S" for any of the mood stabilizers, he said based on what my rEEG looked like I should take neurontin and trileptal(Again, even though they don't match anything in the data base which I thought was the whole point of this freakin' test) and then add an activating AD like WB or desipramine.
>
> Uhh, yeah. This is where a med history might have come in real handy for him. 1)took neurontin, made me real depressed and literally so tired could not get off the coach. Tried to say something about this during the conference call. He wasn't really listening
>
> 2)WB made me insane with anxiety. It took two freakin' months to get anywhere close to back to my normal level of horrible anxiety after that little trip to hell. Oh and did I mention that I was put on the neurontin to try to cope with the WB anxiety. So, I've already been on two of the three meds he would like me to take and it was a total bust.
>
> 3)Anything with norepenephrine makes me anxious, irritable and angry: remeron, WB etc etc but that is pretty much what was recommended for me in terms of ADs.
>
> 4)recommended both lorazapam and Klonopin, both of which I have paradoxical reactions to.
>
> THIS WAS MY LAST RESORT. I CAN'T PLAY RUSSIAN ROULETTE WITH THESE MEDS ANY LONGER.
>
> I AM CRUSHED.
>Ravenstorm
I am so sorry. I know how it is to get your hopes up so high and then have them crushed. And I understand exactly how you feel about the Russian Roulette thing. It really is a crapshoot.
I wish there was something I could say that would make you feel better but I can't think of anything. I can tell you to hang in there and all that but I'm sure you've heard it before. Just know that we all out here care about you and feel for you. If nothing else, you've given your brain a break from meds. Maybe now it might respond better to something that worked fairly well in the past?
I think I must have a similar chemistry to you. Wellbutrin made me more anxious as did nortriptyline. And I had paradoxical reaction to ATivan as well. Right now I'm limping along on Celexa 10mg which works a bit for depression but not for anxiety. So I take Klonopin, as little as I can get by with.
Please do try to hang on. We care about you.
Marsha
poster:4WD
thread:510796
URL: http://www.dr-bob.org/babble/20050718/msgs/529945.html