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Dr. Bob is Robert Hsiung, MD,
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Posted by fluffy on September 26, 2004, at 17:57:16
In reply to Re: Seroquel - nope » BarbaraCat, posted by katia on July 14, 2004, at 20:42:11
Hi everyone,
I wanted to re-connect with this thread, as it has proven to be my main support group. Barb-cat and I had an aside on the social board. Katia--are you still following? How are you doing? I was thinking about all of you this morning.
Well my short-lived experience with abilify was nothing short of a nightmare. Just goes to show that those clinical trials can look downright seductive, but everyones' mileage varies! I had an awful spin-out... First I felt great--I had more energy and spark than I'd felt in years. then I started having awful panic attacks and jagged ups and downs in my moods. When I went off, I ended up in a pile of depression for a couple of weeks.
I tried going back to taking Risperdal, hoping it would get me back to where I was before...at least apathetic is better than suicidal depression, right? Well it didn't help me sleep anymore, and it seemed to stop working altogether.
Now I'm still on that teensy pinch of Risperdal, and taking 12.5 mg of Seroquel. Seroquel is helping me sleep so far. The first day was hell. But it got into my system fast, and boy do I sleep! I'm hoping that if we continue to go up on it, I'll continue to improve. I'm rapid cycling right now, and it's hell. I have 3 good days and 3 bad days a week. I really hope to not fall into my Fall depression this year.
everyone please keep your fingers crossed for me. I'm going through a tough time right now. And I'm scared because i'm at the end of conventional treatment options. I want so desperately to stop rapid cycling!
Update me on y'all's progress...
take care,
katy
Posted by Barbaracat on September 26, 2004, at 20:00:32
In reply to Re: Seroquel - nope, posted by fluffy on September 26, 2004, at 17:57:16
Sorry the Abilify didn't work out, Katy. It's a bummer when you get your hopes up, thinking that maybe this one will make a difference. But when it makes you feel worse, arghh... Listen, here's a simple suggestion but maybe worth trying. Seems to be that the reason Seroquel is such a powerful sleeper is due to it's anti-histimine properties, really targets those histimine receptors. So a trial would be to try some generic benedryl caps - dihydro blah blah, don't remember the full name. Works very well as a sleeper (50-100mg) and some people find their depression responds to such an anti-histamine. If you're taking Seroquel mainly for it's sleepy quality then maybe benedryl will work and you won't be messing with your dopamine? A thought.
How am I? I'm doing so-so, mainly because my physical symptoms from fibromyalgia, or whatever the hell this thing is, are active. I feel tired, bunged up, toxic, and my day/night cycles are weird. Got some labs back and my cortisol is doing strange things, as in my adrenals are making enough cortisol just fine, but the target organ's receptors aren't receiving it. So all my hormones are real real low. I don't know what this means and my Dr., dear fellow, seems like a dunce to me, although he comes highly recommended from reputable sources. Lousy bedside manner is all, I hope. So I dunno what it might mean. But when my energy is too low to drag my butt out for some exercise, my mood disintegrates. So there you have it. I feel like crap.
With all the very serious junk we live breathe and eat, it's surprising anyone is moderately healthy or sane. I don't think I know a single person in that boat (except maybe the Dalai Lama - but can't say I really know him).
So hang in there, girlfriend. We're all going through this for some dang reason. - BCat
Posted by katia on September 28, 2004, at 2:03:00
In reply to Re: Seroquel - nope » fluffy, posted by Barbaracat on September 26, 2004, at 20:00:32
HI Fluffsters and BarbCat!
Good to hear from the two of you. Today as I was making my bed (yes ,making my bed!), I thought, umm I bet I hear from the psychobabbler gals today. And lo and behold here you are.No, Katy, I wasn't in the loop on the social aside. I imagine you weren't in the loop either about the loss of Barb's cat, Merlin and my dog, Rock in July. We were corresponding tons on the grief board for awhile sharing very similar experiences.
I'm sorry to hear about your rapid cycling. You know, I've never rapid cycled so much as when I was on a med that didn't work for me. I really know what that term means just from my experience last year of being on ADs solo. So maybe once you get that med out of your system, you'll be better. Seroquel is still with me. I'm down to 1/4 of 25mg now. I was up to 25mg a night and even 75mg when I was off all meds but the said.
I've been trying to ween myself off. I'm doing better I think. I'm still on the same 450mg Trileptal and 12.5 Paxil and fish oil. Let me know your progress on Sero. Are you still on depakote?Barb cat, good to hear from you. And sorry you're not feeling well. I'm feeling good partly because I took two weeks off of work, quit drinking during that time (took a break), started writing (hopefully a book) about Rock and the tradegy of the Pit Bull breed. You know one thing that makes my mood swing? No outlet for creativity! It's great when it starts flowing. I also bought a piano! Living beyond my means...
How's the new house hunt going? I think I went slightly hypo the other week? maybe. I was planning on flying to Asheville, NC and buy a plot of land from the equity I've already made. I thought about you and thought you should move there too! You'd probably miss the west coast though. How're you doing with Merlin?
take care you two-
Katia
Posted by fluffy on September 29, 2004, at 12:03:25
In reply to Re: Seroquel - nope, posted by katia on September 28, 2004, at 2:03:00
Hi you guys..great to hear from you.
Barb-cat--poo poo about the fibro stuff. As if being bipolar isn't enough, huh? I hope you're feeling better today.
Katia--you sound well. Curious why you're cutting down so much on the seroquel? Do you just not want to take too many drugs?
Well I'm hanging in there with the Seroquel. It's been a week now, and I haven't suffered any major side effects besides the sleepiness, which I needed. I've been sleeping a solid 7-8 hours every night. I just moved up to 25mg last night, and I've been a tad woozy this morning. But I know I'll adjust to it. I'm not just using it as a sleep aid. ('sides--I HATE how Benadryl makes me feel--it's much worse!) I know I need some extra help in the mood stabilization department. Risperdal seemed to work for that, but made me feel apathetic. So hopefully, the seroquel will work, but work better w/o that unpleasant effect. The atypical AP's are all so different in terms of how they effect people. I've been a lot more stable this week over last. So there's hope after all. Once we get it up to a decent dose, we'll slip the ol' Risperdal out of the picture and see how I do.
I'm still taking Depakote at 750mg, but it just doesn't cut it alone. I still rapid cycle on it, only it's less intrusive than before Depakote. (I was ultra-ultra rapid cycling before!)
Posted by katia on September 29, 2004, at 12:58:06
In reply to Re: Seroquel - maybe!, posted by fluffy on September 29, 2004, at 12:03:25
>> Katia--you sound well. Curious why you're cutting down so much on the seroquel? Do you just not want to take too many drugs?
Hey Katy,
Yes, that's probably it. I just don't want to be taking all these pills unnecessarily. I was also sleeping like a rock for 10 hours and probably need to cut back. Now I'm sleeping about 7-8. i think 9 is perfect for me. It was also during my two week vacation I took (stayed around the house) didn't drink anything and didn't have much stimulation in my life so I calmed down some. Now that I'm back at work and all the wooo wooo stimulation, I feel a bit more wired. It's probably b/c I'm PMSing too. So I'm at 1/4-1/3 tab of 25mg.
I was also feeling slightly cognitively slow and i bump into things all the time. so I"m just experimenting.
When I was on Depakote at 750mg I feel like I was worse off than when I was on lower doses. That's just my sensitive system though. I almost rapid cycled when on too many meds moreso than it was bare minimum.It's funny how you started on Trileptal and it didn't work b/c of the s/e and vice versa for me with Depakote. Lithium did to me what it did to you - slow drooling zombie-ville.
Seroquel has been great for me over the past year. I noticed it made me feel slightly depressed in the mornings of taking it. But so many variables...I think that adjusted. I have never found anything that knocks me out like Ser. Good it's working for you.
Katia
Posted by Barbaracat on October 1, 2004, at 20:29:37
In reply to Re: Seroquel - maybe!, posted by katia on September 29, 2004, at 12:58:06
Hi Katy, Hi Katia!
These up and downs. I like the ups better. Who doesn't? Things can feel so icky at times, this crummy feeling that makes everything seem so hard. I don't want to take any more meds. I'm on SJW, lithium, and thyroid mainly for the mood stuff and I guess I'm willing to put up with the nasty stuff because it eventually goes away.Katia, you mention looking for land in Asheville, NC? That's a lovely area. I grew up on the East Coast and spent some time in the Carolina's. If I ever move again, it will be to another country, especially considering the next 4 years. I've been devoting all my free time working real hard on the election campaign. Guess we can't get into politics here, but I think you can imagine who I'm stumping for. Hint: not a four letter word.
I look at my little box and my picture of Merlin and feel like I went through a dimension into another reality and back again. I miss him very much, but time takes away the sharp pain and replaces it with a sweetness. Loss of a loved one is terrible, but what is there to do? It just is. You begin to think differently about it with each occurrence. I'm still reeling from my Mom's death nearly two years ago but I don't feel crazy around it any longer. The fear of the pain of loss has been the biggest issue in my life. Knowing this has been a great help.
Talk to you soon, maybe over in Social.
Love, Barbara
Posted by katia on October 2, 2004, at 0:38:39
In reply to Hi Katy and Katia » katia, posted by Barbaracat on October 1, 2004, at 20:29:37
Hey You!
Yes, these ups and downs. And even tho' we have experience with them; each one feels like truth, the end of the world, nothing will change from this state of mind and I'm stuck forever! And then it changes. The waves of moods. I'm learning to ride.
> Hi Katy, Hi Katia!
> These up and downs. I like the ups better. Who doesn't? Things can feel so icky at times, this crummy feeling that makes everything seem so hard. I don't want to take any more meds. I'm on SJW, lithium, and thyroid mainly for the mood stuff and I guess I'm willing to put up with the nasty stuff because it eventually goes away.
>
>I just took my Trileptal and Seroquel. I get a funny feeling in my lungs after taking Tri/sero. mix. like a relaxation mellowing. It's great.
Katia, you mention looking for land in Asheville, NC? That's a lovely area. I grew up on the East Coast and spent some time in the Carolina's.
**I did too! I grew up in Va. and lived a lot in NC as well. Moved out here in 95.
If I ever move again, it will be to another country, especially considering the next 4 years. I've been devoting all my free time working real hard on the election campaign. Guess we can't get into politics here, but I think you can imagine who I'm stumping for. Hint: not a four letter word.
** you and about 45% of americans (pending on the election results) want to move abroad. I chalk it up to a divide in consciousness. And I'm doing my part in supporting the non-four letter word candidate, but there's such a divide; it's not a matter of "convincing" someone. Convincing the four letter word supporters is like teaching physics to a child. You just can't break thru' the barrier that is called lack of consciousness sometimes. I think it's beyond logic. There is a real battle with old energy fighting to stay alive and new energy emerging. You know what I mean? Something major is going on beyond politics. And I think it can carry over to the world scene too. another debate on another board.
Back to meds..how is SJW working for you? Isn't that like a SSRI? I'm on a SSRI now - Paxil and for some reason (possibly Tri and Ser.) I"ve not gone too crazy. I went crazier on Effexor and WB. Odd eh? Most BPs do the opposite.
> I look at my little box and my picture of Merlin and feel like I went through a dimension into another reality and back again. I miss him very much, but time takes away the sharp pain and replaces it with a sweetness. Loss of a loved one is terrible, but what is there to do? It just is. You begin to think differently about it with each occurrence. I'm still reeling from my Mom's death nearly two years ago but I don't feel crazy around it any longer. The fear of the pain of loss has been the biggest issue in my life. Knowing this has been a great help.**I still light candles EVERY DAY for that little Bull boy of mine. Big stuff is happening with my inspiration and Rock's story coming out on paper.
Good to hear from you. Are you still coming out for Thanksgiving?
Katia
Posted by katia on October 13, 2004, at 15:21:18
In reply to Hi Katy and Katia » katia, posted by Barbaracat on October 1, 2004, at 20:29:37
I'm on Paxil (have been for five months) at a low 12.5mg. I'm also on about 12mg of Seroquel for sleep and 450mg of Trileptal. I've been dxed as BPII over a year ago.
I'm feeling quite confused, bump into things, have bad spatial judgment. I had a terrible serotonin syndrome (withdrawal) with Effexor and Zoloft. With effexor before I even tapered down to quit. I feel moody and irritable and anxious at times. Paxil or mood disorder?
I've read that being on long term AD use for BPs is not good. Is five months or longer considered long term? Not sure that the Paxil is doing anything good for me. I still have dips in moods. good days and bad. As if I'm not on any medication at all.Just wondering what the opinion/consensus is out there on PB board about AD use for BPs (used in conjunction with a mood stablizer of course)? Is the Paxil causing these symptoms that mimic my mood disorder? Hoping to hear back from multiple people.
Thanks-
Katia
Posted by theo on October 13, 2004, at 18:04:59
In reply to Paxil use for Bipolar II question??, posted by katia on October 13, 2004, at 15:21:18
> I'm on Paxil (have been for five months) at a low 12.5mg. I'm also on about 12mg of Seroquel for sleep and 450mg of Trileptal. I've been dxed as BPII over a year ago.
>
> I'm feeling quite confused, bump into things, have bad spatial judgment. I had a terrible serotonin syndrome (withdrawal) with Effexor and Zoloft. With effexor before I even tapered down to quit. I feel moody and irritable and anxious at times. Paxil or mood disorder?
>
> I've read that being on long term AD use for BPs is not good. Is five months or longer considered long term? Not sure that the Paxil is doing anything good for me. I still have dips in moods. good days and bad. As if I'm not on any medication at all.
>
> Just wondering what the opinion/consensus is out there on PB board about AD use for BPs (used in conjunction with a mood stablizer of course)? Is the Paxil causing these symptoms that mimic my mood disorder? Hoping to hear back from multiple people.
> Thanks-
> KatiaAt such a low dose of Paxil, I would question the Seroquel or the Trileptal doses as a possibility.
Posted by katia on October 13, 2004, at 18:43:50
In reply to Re: Paxil use for Bipolar II question?? » katia, posted by theo on October 13, 2004, at 18:04:59
> At such a low dose of Paxil, I would question the Seroquel or the Trileptal doses as a possibility.
Trileptal and Seroquel are at LOW doses too. This maybe feels like that Seroton. syndrome? Some people are sensitive to SSRIs.
Posted by theo on October 14, 2004, at 7:20:22
In reply to Re: Paxil use for Bipolar II question?? » theo, posted by katia on October 13, 2004, at 18:43:50
> > At such a low dose of Paxil, I would question the Seroquel or the Trileptal doses as a possibility.
>
>
> Trileptal and Seroquel are at LOW doses too. This maybe feels like that Seroton. syndrome? Some people are sensitive to SSRIs.
>I have never tried Seroquel or Trileptal, but have tried several mood stabilizers and they caused me to bump into things and feel a little off balance. Paxil never did that to me.
Posted by Ritch on October 14, 2004, at 10:18:52
In reply to Paxil use for Bipolar II question??, posted by katia on October 13, 2004, at 15:21:18
> I'm on Paxil (have been for five months) at a low 12.5mg. I'm also on about 12mg of Seroquel for sleep and 450mg of Trileptal. I've been dxed as BPII over a year ago.
>
> I'm feeling quite confused, bump into things, have bad spatial judgment. I had a terrible serotonin syndrome (withdrawal) with Effexor and Zoloft. With effexor before I even tapered down to quit. I feel moody and irritable and anxious at times. Paxil or mood disorder?
>
> I've read that being on long term AD use for BPs is not good. Is five months or longer considered long term? Not sure that the Paxil is doing anything good for me. I still have dips in moods. good days and bad. As if I'm not on any medication at all.
>
> Just wondering what the opinion/consensus is out there on PB board about AD use for BPs (used in conjunction with a mood stablizer of course)? Is the Paxil causing these symptoms that mimic my mood disorder? Hoping to hear back from multiple people.
> Thanks-
> KatiaAny of your three meds could be causing confusion and cognitive problems. If you're taking the Seroquel for sleep-- see if the "confusion" and "spatial judgement" gets a lot better in the evenings before you go take the Seroquel. I was taking 25mg of Seroquel for sleep a few years ago and I was pretty much a zombie until 12 hrs post-dosing, and then wouldn't feel fairly clear headed until the last few hours before bedtime. Seroquel has a short half-life. Trileptal can cause cognitive fuzziness, too, but I found it settled my temper down really well. Paxil (SSRI) causing irritability and moodiness? It has in my experience. I've got to limit serotonergics to the tiniest dose that they provide some anxiety *relief* without causing agitation and cycling. You might ask your pdoc about some liquid Paxil and try tapering down slowly and see if things improve....
Posted by katia on October 14, 2004, at 11:34:28
In reply to Re: Paxil use for Bipolar II question?? » katia, posted by Ritch on October 14, 2004, at 10:18:52
Hi Theo and Ritch,
I'm at such a small dose (12.5)of Paxil as it is.
Today I'm going to get my electrolytes tested and see if it's the Trileptal causing that rare kidney thing s/e.It's at night too - my clusiness and spaciness. I work in a restaurant and get really dizzy and nauseous sometimes.
thanks-
Katia
Posted by katia on October 14, 2004, at 17:42:23
In reply to Re: Paxil use for Bipolar II question?? » katia, posted by theo on October 14, 2004, at 7:20:22
KAty or anyone,
Have you developed this on Trileptal? And what were your symptoms? What did you do? Did you get your electrolytes tested?
Katia
Posted by fluffy on October 15, 2004, at 10:23:09
In reply to Hyponatremia with Trileptal, posted by katia on October 14, 2004, at 17:42:23
Hey Katia--
Yes I did develop this within about a month of starting Trileptal. I basically felt like I had the flu--a bit weak, dizzy, nauseous. I KNEW something was wrong very soon. I got my blood tested, and what do you know--my sodium was WAY low. It wouldn't be a bad idea to get it tested--just a simple blood draw is all that's needed. Talk to your doctor about it.
I'm sorry you're feeling so bad, Katia. I hope you get to the bottom of this and start feeling better soon.
Katy
Posted by fluffy on October 15, 2004, at 10:56:13
In reply to Re: Hyponatremia with Trileptal, posted by fluffy on October 15, 2004, at 10:23:09
Katia--
If you do indeed have hyponatremia, you could very easily switch to good ol' tegretol. You'd have to watch your blood cell counts, I think. But it wouldn't cause sodium loss, which can't be corrected with a dose change. With the meds that you're on, tegretol wouldn't compete with them too badly. (i think that tegretol with depakote is tricky--but it, too can be done).
Just a thought in case you are worried about having to find a new med.
take care,
Katy
Posted by Barbaracat on October 15, 2004, at 12:20:54
In reply to Hyponatremia with Trileptal, posted by katia on October 14, 2004, at 17:42:23
Sorry you're feeling bad, Katia. You might want to get a blood sugar test while you're at it. I've been reading lately where some of these meds are suspected to affect hormones, including insulin uptake, and this can cause symptoms ranging from hypoglycemic to diabetic. I'm going to invest in a glucose meter because it give a better overall view throughout the day vs. a fasting glucose test, although the test is a good place to start. - Barbara
Posted by katia on October 15, 2004, at 13:34:10
In reply to Re: Hyponatremia with Trileptal » katia, posted by Barbaracat on October 15, 2004, at 12:20:54
HI Barb and Katy,
Barb, I would do that too (the blood sugar test), but I don't have insurance and every test is paid out of pocket unfortunately. If it's not too expensive I could do it.
Thanks for thinking of me, but I'm not feeling toooo bad; just a bit off - hazy and so forth (what I previously mentioned). And periodic flu-like symptoms without the flu as Katy, you mentioned.
Do either of you ever question your dx? I just wonder sometimes...there seem to be so many variables to it. I realize it appears that I have a mood disorder and I sure have felt it, but what if it's something else? like a real hypersensitivity and this is the symptoms of that from living in this strange world? or PMS?
It's so hard for me to understand it all - STILL. Like for instance, I was "PMSing" for a good week - feeling down and pessimisitc, then a slow rise out of that for a few days, then I felt a different energy take over - hyperness. My friend commented that my volume was turned up. This was for only two days and then haziness and high irritiability. Now...just drug induced slight haze.
What is that about?? Is that rapid cycling or something else?
Is there such thing as ultrarapid cycling? I've heard somewhere that it isn't really indications of BP, but of something else.Anyway..it could be that I'm on meds and feel under control some so that it's easy to question the dx? just get me off them and I'd probably learn, yet again, that I am BP?
Katy, I think I will switch to low doses of Tegretol if I have hypotrem. Not sure what I'm going to do with Paxil. My pdoc is not much help. And I don't have money to see him either. But there really is no point because I feel I know more than him anyway (about myself and meds). I'm always the one suggesting what next. I haven't seen him since April. But we've talked very briefly a few times since on the phone.
How're you two?
Katia> Sorry you're feeling bad, Katia. You might want to get a blood sugar test while you're at it. I've been reading lately where some of these meds are suspected to affect hormones, including insulin uptake, and this can cause symptoms ranging from hypoglycemic to diabetic. I'm going to invest in a glucose meter because it give a better overall view throughout the day vs. a fasting glucose test, although the test is a good place to start. - Barbara
Posted by Barbaracat on October 15, 2004, at 17:27:05
In reply to Re: Hyponatremia with Trileptal, posted by katia on October 15, 2004, at 13:34:10
> Barb, I would do that too (the blood sugar test), but I don't have insurance and every test is paid out of pocket unfortunately. If it's not too expensive I could do it.**I did a search and found out that there are lawsuits against Geodon (another antipsychotic) for inducing diabetes by elevating blood sugars. A warning on Seroquel says: "There have been reports of elevated blood sugar and diabetes associated with SEROQUEL and other drugs in its class."
But that's high blood sugar, or diabetes. A fasting glucose (around $70) will pick this up but if it's hypoglycemia or insulin receptor resistance, there's no easy way to test for it. If you're seeing someone, mention to them that you're on an antipsychotic and are concerned about blood sugar. Your symptoms may fit this dx.
I don't think the fasting glucose test is over $60. But it's not exact and doesn't measure what the cells are doing. You had PCOS, didn't you? Here's something about PCOS, bipolar and blood sugar:
http://www.bipolarworld.net/Phelps/ph_2001/ph152.htm
> And periodic flu-like symptoms without the flu as Katy, you mentioned.
***Periodic flu-like symptoms (muscle aches, tiredness, dizzyness, depression, anxiety) is how I describe my fibromyalgia. But I'm wondering about my stinkin' blood sugar too.
>
> Do either of you ever question your dx?**About 5 times a day.
>>I just wonder sometimes...there seem to be so many variables to it. I realize it appears that I have a mood disorder and I sure have felt it, but what if it's something else?
**I'm sure it's something else and it has a toxic source, even if the toxin is just good ol' stress. It's difficult when you don't have insurance to get all the zillions of tests to rule things out. And even then, there's no guarantee that the doc will know how to read them or what to do.
I'm beginning to think there's a good reason why we both have this jones for swampjuice. It's pure sugar. We crave it, feel great, and then crash til' next time. I don't know what this means, but there has to be a connection since 'labile' blood sugar is known to create absolute havoc in the brain. - Barbara
Posted by katia on October 16, 2004, at 13:52:34
In reply to Re: Hyponatremia with Trileptal » katia, posted by Barbaracat on October 15, 2004, at 17:27:05
hey Barb,
This is why I wonder if meds are doing me any good. I feel my dx is not totally solid and real and here I am ingesting all these meds that can cause MORE problems. Sometimes I feel silly for taking them all. Like "what am I doing?!". I'm fine!!I know you went through a similar period prior to going back on Li. Maybe I need to see for myself how I do sans meds. I've been on medication in one form or another since July 2002. Mind you, the first year was just ADs.
I may possibly be under the illusion "well I feel fine! I don't need meds" and it's BECAUSE I'm on meds that I feel fine...the catch 22 cycle we all go through? But on the reverse, I don't feel totally fine and I wonder how much of that has to do with side effects...
Again, I'll ask you...are you coming to town for thanksgiving? If so, did you still want to meet up? I understand if you don't and want to keep our friendship contained to this realm.
take care,
Katia
Posted by fluffy on October 16, 2004, at 17:45:03
In reply to Re: Hyponatremia with Trileptal » Barbaracat, posted by katia on October 16, 2004, at 13:52:34
Katia--
I hope this doesn't sound too motherly...but I would say it isn't wise to go without one's meds.
1) Do you really want to go through the hell you went through before them?
2) Once you go off meds, they may not work as well when you decide to go back on them. For me, Risperdal didn't have the same effect after having been off it, then returning to it again.
What specifically do you feel doesn't fit you in terms of your diagnosis? Rapid cycling is VERY REAL. I have it and feel its effects every day. It is entirely possible to have switched from depression one week to hypomania the next.
I've been on meds for 4 years now, and it has been very rough at times. But I know that i would have been dead and gone by now if I didn't even have the hope of having SOME relief from my symptoms.
I'm happy to say that I'm doing so much better on Seroquel. Right now I'm on .25mg Risperdal, 25mg Seroquel and 750mg Depakote. It feels right. I've had a very stable month, and I only seem to be improving.
It sucks when you feel the effects of your disorder even though you are taking medication. My uneducated guess is that you might feel worse without the meds, though.
And even though you may feel your doctor doesn't know anything--HE DOES. Often times, doctors will give you the reigns in your treatment to give you more control--it's a courtesy. (It used to drive me crazy that my doctor did this to me. But I know that if he didn't, I'd feel even more put out--that he is controlling my fate even though he has no idea how i feel, you know?) He would tell you if he didn't feel your choice was appropriate (if indeed he is a good doctor). Will you be seeing him anytime soon?
I'm not sure what is making you feel yucky..if it's a physical problem, a problem with meds, or a problem with your mood disorder. But I really hope you start feeling better soon. And I hope you can get to the bottom of it without too much trouble.
Take lots of care--
Katy
Posted by Barbaracat on October 16, 2004, at 19:34:29
In reply to Re: Hyponatremia with Trileptal » Barbaracat, posted by katia on October 16, 2004, at 13:52:34
> I know you went through a similar period prior to going back on Li. Maybe I need to see for myself how I do sans meds.**No doubt the meds are taking a toll. They always do and some of us are more sensitive. It doesn't sound like you're on a huge mix but maybe your body reached its limit. Then again, maybe you do have a flu, or have something else transitory going on. It's hard to separate out what's really going on and no way to know for sure. I personally feel that layering one med on top of the other is asking for trouble. There are too many unknowns.
I'm on a bare minimum right now and want to keep it that way. Whatever it takes. I get white-knuckle times and deal with it on an as-needed basis. A few days zoning out on benzos usualy does the trick because so much of my stuff is anxiety triggered. Each time I come out on the other side of the nasty stuff, I learn to trust my own process a little more. Yeah, an as-needed basis is the best description.
I just started on a wee dose of nortriptyline because I was getting some panic creeping in, probably because I've been so amped up working overtime to give the four letter creep the boot. But you know, Katia, even though I'm not feeling 100% and never expect to, I do feel like my body has less crud to deal with and I pass through the rough times easier and faster.
Even so, you know how hard it is to stop any med, especially when you're feeling unsteady to begin with. But yes, maybe it is time to taper off one thing at a time, keep a supply of downers available, and have patience knowing it will be a wild ride until you're stable.
A good plan would be to get a support base ready, start following a regular schedule and habits, provide easy access to meals and healthy stuff - clear the decks and get your ducks in order. We're talkin' cutting way back on the swampjuice here. There's no getting around that one. Poo!
>
> Again, I'll ask you...are you coming to town for thanksgiving? If so, did you still want to meet up?**I sent a post a week or so ago saying yes, I am coming your way for Thanksgiving and yes, absolutely I'd love to see you. Wouldn't miss it! We'll exchange emails and all that real soon. - Barbara
Posted by katia on October 17, 2004, at 1:37:20
In reply to Re: Hyponatremia with Trileptal » katia, posted by Barbaracat on October 16, 2004, at 19:34:29
Hey Barb,
That's odd. I didn't get that post about yer comin' my way....
I'll respond to both your and Katy's post tomorrow. I'm beat.
Katia
Posted by katia on October 17, 2004, at 15:14:46
In reply to Re: Hyponatremia with Trileptal, posted by fluffy on October 16, 2004, at 17:45:03
> Katia--
>
> I hope this doesn't sound too motherly...but I would say it isn't wise to go without one's meds.***Hi Katy,
Thanks for your concern. It doesn't sound too motherly. I probably need to be kept in check like this. So I've thought about your questions and want to answer. It's helpful for me to get clear.> 1) Do you really want to go through the hell you went through before them?
**NO! I guess b/c I have awareness about my moods now and my "condition", I can monitor it much better if I start to get worse.
I also am in a way different place in my life that is supporting health and balance. I don't have a big desire to drink. And after one or two, I don't even want anymore. I've turned a curve and feel quite empowered and feel like I'm stepping into who I can be. I've noticed since being on meds (that work) I revert back to the place I was when (pre-meds) I was somewhat normal. meaning, I go through cycles EVERY month of ups and downs all having to do with my period. So therefore, meds aren't touching that. they've helped me climb out of a serious depression, but in the first year they made me crazy (ADs) and cycle like I've never cycled before (so made me crazier). I think time also pulled me out of that depression, not just meds. I think it was good to get on Mood stabilizers for awhile.
But I also feel I'm in a different (I know this is going to sound WAYYYY California!), in a different place astrologically. Remember that work I did with that psychic a year ago? Well, she was right when she outlined what would be happening to me in the next year and what had been happening to me all my life. And it was all based on my astrological chart. I don't even really follow astrology, but I know she knew what she was talking about. She knew too much specifics. And what she said was that all my life has been unbalanced and balance is on the way and power. I can't tell you how much better I feel then I did a year ago (meds aside). I've done so much already too.
>
> 2) Once you go off meds, they may not work as well when you decide to go back on them. For me, Risperdal didn't have the same effect after having been off it, then returning to it again.**Very true. but I've not really found anything that works that well anyway. Trileptal has been the least offensive, but I'm still waiting to hear back from my good ole vacationing constantly pdoc. He still hasn't faxed over the request to get my blood drawn. I've been waiting a week.
And what I'm wanting to do is just reduce my amounts (being that I'm not hyponatremic). 1/2 everything I'm taking and see what happens. See if I feel less tired and feel more cognitively alert and creative.
> What specifically do you feel doesn't fit you in terms of your diagnosis? Rapid cycling is VERY REAL. I have it and feel its effects every day. It is entirely possible to have switched from depression one week to hypomania the next.
**Well, it's hard to say b/c I rapid cycled like a maniac since BEING on meds. Is this b/c of them? probably paritally so. probably also be/c I know now what rapid cycling is and I can identify in myself. Whereas before, I was just lost in the rollercoaster of emotion, so I wasn't able to see clearly and in hindsight cannot remember.
I suppose I'm having a hard time b/c it's all just speculation. There is no real test that says "yes, you are BP rapid cycler". It's speculation from a pdoc (in the medical paradigm community) who can only see this through one lens (his medical paradigm mindset). It's not everything to me. I believe that through that lens that I probably am BP. But human beings are way more complicated than a set of behavioral keys to point to a BP label. A part of me feels silly for believing at all that I'm BP. That is the part I'm not sure about. I almost feel like it's part of another phase I'm going through in my own definition of reality; but it won't stay real as such forever. I'll realize that I was fooling myself and taking the easy way out hiding behind a label and meds.
On the other hand, a part of me realizes that this illness/disorder is REAL and to have empathy for that too. And it takes a lot to get help and take meds and it has nothing to do with hiding at all.
So I guess you got me thinking and having to really define it and it's hard Katy. I'm not 100% sure what I'm feeling. I do know that I want less meds in my system. I'll reduce them as soon as I see what's going on with my blood work.
> I've been on meds for 4 years now, and it has been very rough at times. But I know that i would have been dead and gone by now if I didn't even have the hope of having SOME relief from my symptoms.
>
> I'm happy to say that I'm doing so much better on Seroquel. Right now I'm on .25mg Risperdal, 25mg Seroquel and 750mg Depakote. It feels right. I've had a very stable month, and I only seem to be improving.**GREAT! good news Katy. Seroquel has helped me tremendously with sleep. After you take it, do you get this relaxed feeling in your chest? Maybe that's my Trileptal...
>
> It sucks when you feel the effects of your disorder even though you are taking medication. My uneducated guess is that you might feel worse without the meds, though.
>
> And even though you may feel your doctor doesn't know anything--HE DOES. Often times, doctors will give you the reigns in your treatment to give you more control--it's a courtesy. (It used to drive me crazy that my doctor did this to me. But I know that if he didn't, I'd feel even more put out--that he is controlling my fate even though he has no idea how i feel, you know?) He would tell you if he didn't feel your choice was appropriate (if indeed he is a good doctor). Will you be seeing him anytime soon?**I also feel disheartened every time I go to see him. $115 for 25 minutes which I don't have. And I normally suggest what to take next. I never feel like I got my money's worth - EVER. I know he knows more than I give him credit for, but so what? I don't really hear much out of him and it's too expensive for me to do every month. I trust myself more than him and I'm free!
If I had all the money in the world than I would see him every month and take it with a grain of salt - food for thought. He is a nice man and gives me free samples every month, but the bottom line is....money and lack of...and the fact that I'm not completely sold on the dx.
I also get support from other things now. Like my dog's spirit (Rock - who died in July). He is giving me so much strength and clarity. I'm learning to listen to myself on an intuitive level and make better decisions/choices to enhance my health, not destruct it.
Thanks so much for your concern Katy.
Katia
Posted by katia on October 17, 2004, at 15:19:43
In reply to Re: Hyponatremia with Trileptal » katia, posted by Barbaracat on October 16, 2004, at 19:34:29
>
> > I know you went through a similar period prior to going back on Li. Maybe I need to see for myself how I do sans meds.
>
> **No doubt the meds are taking a toll. They always do and some of us are more sensitive. It doesn't sound like you're on a huge mix but maybe your body reached its limit. Then again, maybe you do have a flu, or have something else transitory going on. It's hard to separate out what's really going on and no way to know for sure. I personally feel that layering one med on top of the other is asking for trouble. There are too many unknowns.**That's interesting that you say flu. Because for the past two months, I've been complaining about the fact that I was on the verge of the flu or a cold. But it never materializes. Now after reading Katy's post, I realize it could be that hyponatremia symptoms. Feel free to read that post I sent to KAty. I meant it for everyone. That explains a lot for me.
>
> I'm on a bare minimum right now and want to keep it that way. Whatever it takes. I get white-knuckle times and deal with it on an as-needed basis. A few days zoning out on benzos usualy does the trick because so much of my stuff is anxiety triggered. Each time I come out on the other side of the nasty stuff, I learn to trust my own process a little more. Yeah, an as-needed basis is the best description.
>
> I just started on a wee dose of nortriptyline because I was getting some panic creeping in, probably because I've been so amped up working overtime to give the four letter creep the boot. But you know, Katia, even though I'm not feeling 100% and never expect to, I do feel like my body has less crud to deal with and I pass through the rough times easier and faster.**Yes, I feel like the less, the better too. What is nort.? Is that an AD?
> Even so, you know how hard it is to stop any med, especially when you're feeling unsteady to begin with. But yes, maybe it is time to taper off one thing at a time, keep a supply of downers available, and have patience knowing it will be a wild ride until you're stable.
>
> A good plan would be to get a support base ready, start following a regular schedule and habits, provide easy access to meals and healthy stuff - clear the decks and get your ducks in order. We're talkin' cutting way back on the swampjuice here. There's no getting around that one. Poo!
> >
> > Again, I'll ask you...are you coming to town for thanksgiving? If so, did you still want to meet up?
>
> **I sent a post a week or so ago saying yes, I am coming your way for Thanksgiving and yes, absolutely I'd love to see you. Wouldn't miss it! We'll exchange emails and all that real soon. - Barbara**How do you want to exchange emails? Do you want to give yours? I don't for public display here. I can always create one on hotmail for this purpose.
Katia
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