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Dr. Bob is Robert Hsiung, MD,
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Posted by California_Princess on October 15, 2003, at 18:24:13
In reply to Re: Topamax Weight Loss Advice?-UPDATE » Bear, posted by platinumbride on October 14, 2003, at 23:43:34
Bear,
I'm sorry too that you’re having such a hard time with your doc! :O( I am very disappointed with having to go off Topamax because it really DID stop my appetite, (sp?). It came back today, (5th day off the Topamax). I was only up to 75 mgs too, and felt the affects of the appetite loss almost immediately starting the Topamax at 25 mgs a day.If it weren't for my REALLY sore lungs and the insomnia I probably would have tried to deal with the DUMBNESS that I suffered really badly while on the med.
Don't worry Bear; something will finally work for you! Hang in there!!!
Melissa
Posted by memphistigers2004 on October 16, 2003, at 12:42:50
In reply to Re: Topamax Weight Loss Advice?-UPDATE » Bear, posted by platinumbride on October 14, 2003, at 23:43:34
I took Topomax for 3 weeks for migraine headaches, but couldn't handle the harsh side affects. I was only on 25 mg. I couldn't concentrate or eat and I felt very out of it. Anyway, are some of you taking it for weight loss? I didn't know it could be used for other things as well.
Posted by platinumbride on October 18, 2003, at 15:25:30
In reply to Re: The benefits of Topamax (more), posted by phillybob on January 9, 2001, at 15:09:36
I've been having a sore throat (could be a cold due to cold/rainy weather but perhaps more susceptible due to topamax?).
I am sure that more has been written about this kind of side effect....
For the past few weeks I have felt as if I have the flu...sore throats, general malaise, headache.
I have been on this drug for over a month, taking doses up, then down yada yada. It is doing nothing for my depression (perhaps making it worse), it has been a "tease" as an appetite supressant and now I wonder if it is making me feel physically crummy as well!Once and for all....
People mention appetite supression at 200mgs. Now I can stick there and deal with side effects IF this is going to help. So, in genral, 200mgs for how long before one realizes that this drug needs to go into the garbage?I am not just being vain here, btw: we are talking 100 lbs to lose. And I am in the middle of a MAJOR binge.
Let me sum up my convoluted post:
flu symptoms anyone?
200 mgs? for how long at 200 mgs? a week? 6 weeks?Thanks,
Diane
Posted by California_Princess on October 19, 2003, at 13:12:55
In reply to topamax..sigh :( » phillybob, posted by platinumbride on October 18, 2003, at 15:25:30
I had to go off the Topamax because it HURT my lungs soooo bad! It also gave me insomnia, which I couldn't deal with.
The horrible, (and I mean HORRIBLE) mental fog, confusion, lack of thinking and reasoning ability, (I wasn't even able to count the change in my purse! I also lost my car and then got lost in a big city. DANGEROUS) was something that I would have suffered though because it did help my moods and at 50mgs took away my appetite.
I also suffered sour throat and funny nose, (like allergies) and some mouth and gum soreness along with tingling in my feet and hands. Nothing too severe.
However, my sore lungs and the insomnia was what made me go off the Topamax at only 75mgs. I was very disappointed because I had lost about 7 or 8 pounds for the three weeks that I was on the drug.
Since then I have done a little research into a drug called Zonegran which is also prescribed for Bi-Polar, (along with Epilepsy and migraine headaches) and the weight loss properties seem to be MUCH, MUCH better. In fact, on the list of side effects, the second one listed is anorexia. I received an e-mail from a woman that was on Zonegran for migraines and she said she was almost unable to eat at all when on the drug!
I’m going to ask my pdoc about it when I see him tomorrow. I’m excited about it and maybe this will be the drug for me! :O)
Melissa in CA
Posted by susi on October 20, 2003, at 11:18:12
In reply to topamax..sigh :( » phillybob, posted by platinumbride on October 18, 2003, at 15:25:30
Diane,
I am at 200 mg. and have been for approx. 5 months. I have had and still have sore throat and sinus problems, I have gone to the doctor three times, and only one month ago finally have resolved it to be topa related. No thanks to the medical establishment, even after contacting the maker of the drug they still denied any possible side effect of sinus related side effects, but I have never had them, and now I do. So, I took a deep look into the psychological results and felt it was worth it.
I also at 200 have now noticed the weight coming off, but again at a loss of taste, almost 85% of my taste and appetite are gone or screwed up, I even have to have a meal replacement at work, cause I know I need to eat, but can't for the life of me figure what to eat. Can't drink any carbination or any alcohol...the list goes on. At 200, and now can sleep though.
So that is may experience. Hope it helps.
Posted by Bear on October 20, 2003, at 11:55:22
In reply to Re: Topamax Weight Loss Advice?-UPDATE, posted by Bear on October 14, 2003, at 21:30:16
Still not havng the intestinal fortitude to weight myself (Im such a wimp) I did up with enough guts to measure myself. I started taking the Topamax on Sept 18, slowly getting up to 200mgs a day. SO the news is I lost 3 inches on my waist since then, and 2 inches on my hips. Needless to say I didnt believe it and measured again and again till I believed it.
I am pretty happy,. still dont have to guts to step on the scale, but I can only think I HAVE lost weight, how much I dont know, but the tape tells me I have.
So I feel MUCH better. And will continue to take it and can only believe it will continue.
A happy Bear...
Thanks for all the support you guys so freely give! :O)
Posted by Bear on October 20, 2003, at 12:00:12
In reply to Topamax Side Affects!, posted by California_Princess on October 19, 2003, at 13:12:55
> It also gave me insomnia >
It also gives me insomnia. No matter what time I got to bed, I am up at like 3 or 4am and stay up sometimes. Sometimes I go back at 5-6 or sometimes 7. But I do get bouts of insomnia from it.Now that I found the guts to measure myself and see the weight coming off, Ill deal with the insomnia. If I saw no weight whatsoever, Id drop it. Most of my depression comes from now being viewed as a "cripple" and being as big as a blimp, OK, that's an overstatment, but being as heavy as Ive ever been, so now that I see it's working, Ill stick with it, but yeah I also have the insomnia part.
Posted by LoriCA on October 20, 2003, at 23:00:53
In reply to Topamax Side Affects!, posted by California_Princess on October 19, 2003, at 13:12:55
i went off topamax because it permanently damaged my vision...however, i also experienced the "fog". i would forget what i was doing just walking across the room...nasty stuff. i wasn't on it long enough to experience anything else...just 9 days.
p.s., love your screen names
lori in california
Posted by platinumbride on October 21, 2003, at 6:53:47
In reply to Re: Topamax Side Affects!, posted by LoriCA on October 20, 2003, at 23:00:53
Lori,
I am really so sorry to hear about your vision damage. Peramnent is a scary thing :(
As for my screen name....
I got married in July and they guy who did my dress is a friend of mine and just KNEW that it HAD to be platinum colored! And ya know, it really was just as FABUBULOUS as he said it would be! Took 30 lbs right off of me :)
Thanks,Diane in NY
Posted by Lily83 on October 21, 2003, at 15:59:12
In reply to Re: Topamax Side Affects! ?LoriCA, posted by platinumbride on October 21, 2003, at 6:53:47
It's me again and although it's comforting to see others with the same side effects (don't take that the wrong way, I don't like to see you guys suffer either....just like to know I'm not going crazy over here lol) I started a B-vitamin complex and it took away some of the mental fog and forgetfulness and gave me back some of the energy that Topamax took away.
My doctor said that it was all in my head of course but I did some research on it online and it showed that Topamax may lead to some vitamin deficiencies (which most people have anyhow)
I also asked my Professors (organic chemists--not doctors but who said doctors seem to know anything these days lol) and they agreed that this drug probably is increasing any deficiencies we have in the vitamin area because of our decreased/messed up appetites...
So anyhow, although this may just be my opinion perhaps you guys might want to look into some sort of supplement since most of us aren't seeming to get all the vitamins and nutrients we need now that everything is all messed up in our bodies with this topamax wreaking havoc lol. That could be why are sleep is messed up, we are mentally foggy, and straight out stupid at times lol. Sorry for the long message
Lily
Posted by headachequeen on October 22, 2003, at 22:22:54
In reply to Re: what dose were you at that you lost 20 lbs.?, posted by Stacy Louisa Beus on June 30, 2003, at 20:50:28
I take 400 mg Topomax daily (half in the morning and half in the evening with meals) for migraine as well as epilepsy, in conjunction with Tegretol... the dosage of Topomax started at 25 mg a day in the evening then increased until it reached the 400 mg a day... when the neurologist suggested it, instead of increasing the Tegretol he warned me there were side effects, the most noticeable being weightloss... I thought about it for about five seconds and decided to risk it... I was anorexic in my late teens and seem to have found payback time in my thirties and forties... so was happy to try anything that might take off the weight...
the Topomax or some subliminal effect began within about a week... as food began to lose its appeal... I have lost almost forty-five pounds without any great effort on my part...
at this point food still has little interest to me and has a tendency to make me nauseous...other side effects of which I have become aware from talking to other Topomax patients are related to alcohol use... even a small amount of alcohol can cause chaos...
but I have been fortunate in that I have experienced none of the speech confusion or disorientation that others describe...
in ten months of using Topomax IO have not experienced a migraine for which I am grateful
and have experienced a decrease in seizure activity for which I am ecstatic...
three months ago (appoximately) the Tegretol was increased and I have had no seizures since...
sheer euphoria....
headache queen (I guess I may have to abdicate?)
Posted by platinumbride on October 22, 2003, at 23:06:24
In reply to Re: what dose were you at that you lost 20 lbs.?, posted by headachequeen on October 22, 2003, at 22:22:54
wow everyone.....
i think i am one of the few who can still eat!!!
i'm now on thyroid hormone too. maybe this will help the metabolism, but i am amazed at my appetite which is one of the few things which never fails me!Diane
Posted by headachequeen on October 23, 2003, at 13:59:43
In reply to Re: what dose were you at that you lost 20 lbs.?, posted by platinumbride on October 22, 2003, at 23:06:24
> wow everyone.....
>
> i think i am one of the few who can still eat!!!
> i'm now on thyroid hormone too. maybe this will help the metabolism, but i am amazed at my appetite which is one of the few things which never fails me!
>
> DianeI thought that my appetite fit into that category for a long time... and questioned my will power too... for a while I linked my weight to depression... then a breakdown meant a visit to hospital where I discovered, that the cause of the visit aside, which was severe stress for lack of a better term, playing upon events in my past, I was not depressed and didn't fit into the area where a psychiatrist could help me...
I had been taking anti-depressants which had been increased while I was in hospital, along with the Tegretol... I was sent home after about a month with the advice to continue taking the increased doses of anti-depressants, and to seek the help of a psychologist... I had a personality disorder but was not depressed... the disorder caused by childhood and teenage events... so off to the psychologist and psychotherapy. I found a really good one, to whom I can relate very well... the pills continued... Zyprexa was one of them,Immovane another and I forget the other,although I had been taking Welbutrin until I started taking Tegretol... one day something he said made me think that the pills were suppressing my emotions.. how could I get help if I could not reach out for it... and with suppressed emotions and repressed memories that meant I could not reach out... so I quit taking the anti-depressants... this happened in January of this year, about the time I started taking Topomax ...
no one told me that I should not stop 'cold turkey'... I had no problem stopping and was beginning to achieve something as far as the psycotherapy was concerned... March is always a bad time for me, so in February my doctor increased my dosage of Zyprexa and the other anti-depressant... I didn't like to tell him I had quit taking them entirely, afraid he might be angry and dump me as a patient...
when I did tell him in March - said I had been off the stuff for a month :( - he was suprised, said the idea had been to wean me off it slowly and asked if I wanted him to prescribe something to help me adjust to life without the meds... and wanted to know if I had simply gone cold turkey... well, yeah????
then said that if that was required patients were usually put in hospital for a while and other meds substituted and ... I was almost as shocked as he was...
I am wondering now if some of the weight problem was related to the use of the anti-depressants ...
I was using them for much longer than I have been on Tegretol and much much longer than I have been using Topomax...
but have to admit that the weight loss of note has been in recent weeks...
while I began to lose two or three pounds a week at the beginning of using it, the weight loss began to be really noticeable when I reached 300 mg a day...
and now, at 400 mg a day, as I said I have lost almost 45 pounds...I have read the other posts regarding side effects...
while I had been warned about the effects of alcohol I had not been aware of the risks of kidney stones for instance, but I do find that I am always thirsty... and in the early weeks of using the med, I found dry mouth a constance annoyance...while the neurologist warned me that there might be a problem with confused speech, I have not had a problem in that respect either...
so I seem to have gotten off lightly...
I am surprised to read of the broad spectrum use Topomax has... here I thought it simply dealt with seizures and migraines and considered it a miracle drug in that I had not had a migraine since starting to use it... and that is a miracle in itself...
the weight loss is the icing on the cake...
but I keep wondering when it stops????????
Posted by platinumbride on October 23, 2003, at 14:26:15
In reply to Re: what dose were you at that you lost 20 lbs.?, posted by headachequeen on October 23, 2003, at 13:59:43
> >i have heard it said that topamax can have antidepressant properties as well...
Sounds as if you have found your miracle drig ;)Keep drinking water though....
Dianewow everyone.....
> >
> > i think i am one of the few who can still eat!!!
> > i'm now on thyroid hormone too. maybe this will help the metabolism, but i am amazed at my appetite which is one of the few things which never fails me!
> >
> > Diane
>
> I thought that my appetite fit into that category for a long time... and questioned my will power too... for a while I linked my weight to depression... then a breakdown meant a visit to hospital where I discovered, that the cause of the visit aside, which was severe stress for lack of a better term, playing upon events in my past, I was not depressed and didn't fit into the area where a psychiatrist could help me...
> I had been taking anti-depressants which had been increased while I was in hospital, along with the Tegretol... I was sent home after about a month with the advice to continue taking the increased doses of anti-depressants, and to seek the help of a psychologist... I had a personality disorder but was not depressed... the disorder caused by childhood and teenage events... so off to the psychologist and psychotherapy. I found a really good one, to whom I can relate very well... the pills continued... Zyprexa was one of them,Immovane another and I forget the other,although I had been taking Welbutrin until I started taking Tegretol... one day something he said made me think that the pills were suppressing my emotions.. how could I get help if I could not reach out for it... and with suppressed emotions and repressed memories that meant I could not reach out... so I quit taking the anti-depressants... this happened in January of this year, about the time I started taking Topomax ...
> no one told me that I should not stop 'cold turkey'... I had no problem stopping and was beginning to achieve something as far as the psycotherapy was concerned... March is always a bad time for me, so in February my doctor increased my dosage of Zyprexa and the other anti-depressant... I didn't like to tell him I had quit taking them entirely, afraid he might be angry and dump me as a patient...
> when I did tell him in March - said I had been off the stuff for a month :( - he was suprised, said the idea had been to wean me off it slowly and asked if I wanted him to prescribe something to help me adjust to life without the meds... and wanted to know if I had simply gone cold turkey... well, yeah????
> then said that if that was required patients were usually put in hospital for a while and other meds substituted and ... I was almost as shocked as he was...
> I am wondering now if some of the weight problem was related to the use of the anti-depressants ...
> I was using them for much longer than I have been on Tegretol and much much longer than I have been using Topomax...
> but have to admit that the weight loss of note has been in recent weeks...
> while I began to lose two or three pounds a week at the beginning of using it, the weight loss began to be really noticeable when I reached 300 mg a day...
> and now, at 400 mg a day, as I said I have lost almost 45 pounds...
>
> I have read the other posts regarding side effects...
> while I had been warned about the effects of alcohol I had not been aware of the risks of kidney stones for instance, but I do find that I am always thirsty... and in the early weeks of using the med, I found dry mouth a constance annoyance...
>
> while the neurologist warned me that there might be a problem with confused speech, I have not had a problem in that respect either...
>
> so I seem to have gotten off lightly...
>
> I am surprised to read of the broad spectrum use Topomax has... here I thought it simply dealt with seizures and migraines and considered it a miracle drug in that I had not had a migraine since starting to use it... and that is a miracle in itself...
> the weight loss is the icing on the cake...
> but I keep wondering when it stops????????
>
Posted by Nissy on October 23, 2003, at 17:32:25
In reply to Re: what dose were you at that you lost 20 lbs.?, posted by headachequeen on October 23, 2003, at 13:59:43
I had been warned about the effects of alcohol & I do find that I am always thirsty... >
**************************************************
What kind of effects does alcohol do?? I had a glass of wine at a get together and I felt just horrible. I also get thirsty. I feel so dried up all the time.
Thanks,
Nissy
Posted by headachequeen on October 23, 2003, at 21:13:20
In reply to Re: what dose were you at that you lost 20 lbs.? » headachequeen, posted by platinumbride on October 23, 2003, at 14:26:15
> >i have heard it said that topamax can have antidepressant properties as well...
Sounds as if you have found your miracle drig ;)Keep drinking water though....
DianeOkay, next question... why the water? and why are we not given more info when we start taking these meds? Is it too much trouble for the pharmacist to earn that dispensing fee ????
Posted by headachequeen on October 23, 2003, at 21:26:35
In reply to Re: Topamax Weight Loss Advice?-UPDATE » Bear, posted by platinumbride on October 14, 2003, at 23:43:34
> I have been told, a beautiful woman......"what >a shame she doesn't lose some of that >weight....she has such a beautiful face"
I know that this board is not really about weight and weight loss or retention... but as I read the previous posts to learn more about Topomax and its (potential??) side effects, this post jumped out and hit me...
Diane, sometimes , especially in a woman, weight gain or overweight, or call it what you will, is a statement that she doesn't care what the world's pattern for her may be.. she knows who she is and what she can do, and does not want to fit into the hole on the game board that others expect her to fill... sometimes she is trying to make people meet her on her own terms... to make them accept her as being intelligent and capable and not a Barbie doll type...
I am not trying to play shrink here, but I know as I look back that my bout with anorexia was a scream for someone to notice and help me as I tried to deal with the things that were happening in my life, just as the extra weight later was a way of telling the world that if noone wanted to help me then, I didn't want to play by its rules now... I was smarter than most of them anyway so what did looks matter anyway?
I don't pretend that I would not have liked to be slimmer but not to please anyone out there...
of course there are few if any photos of me taken during that time...
Topomax was not intended to be the cure for not liking myself... it was to help with epilepsy and migraines... and it is doing that... but along the way it has changed the weight pattern... and I like that too... since January I have changed from size 16 jeans to size 10 jeans and can wear size small jeans and from XL sweaters to medium... and I feel quite smug about it...
the shrink bit helps too as I am beginning to feel better about being me... and all that goes with that... but who cares what the people who see you and think that you might look prettier thinner???
How do you look at you??? Put on make-up, dress so that you feel good about you, and go out there and look them all in the eye and dare them to think otherwise... don't let them get you down...
or put you down...
they may be thin... but they aren't perfect...
kat
Posted by California_Princess on October 24, 2003, at 18:07:41
In reply to Re: Topamax Weight Loss Advice?-UPDATE, posted by headachequeen on October 23, 2003, at 21:26:35
I'm glad that everyone has been able to lose weight with the Topamax. I was sooo depressed when I had to stop taking it. If the side affects weren't so severe I would have continued to take it. Even the mental fog, which would have kept me from working, driving out of town and pretty much anything that has anything to do with thinking... I would have kept taking it.
I'm 140 pounds over weight and am desperate to lose. My pdoc put me on Lamictal now and I’m still so depressed about having to go off of Topamax. While the Lamictal doesn’t make you gain weight, it doesn’t help you lose it, either, (my appetite is still there!).
Has anyone heard of Zonegran? It’s supposed to be like Topamax, but better as it doesn’t have the severe side affects that Topamax does. I asked my pdoc about it, hopeful that he would put me on that drug, but he hadn’t even heard of it and just gave me the dumb Lamictal.
This Zonegran is supposed to be even better than the Topa at weight loss and it even lists anorexia as the number two side affect. Other than that it just lists a little dizziness and nausea.
I sure wish I could find a drug that my regular MD could give me that would take away my appetite as well as Topamax did.
My obesity is as big an issue as my Bi-Polar. Especially since both my parents are diabetics and my grandfather died of heart disease. I do not feel normal or healthy at 275 pounds but can’t seem to get this off. It takes a HUGE amount of effort to lose, but I can gain 10 pounds in one day!
Melissa in CA
Posted by Sooshi on October 25, 2003, at 7:54:32
In reply to Topamax Side Affects!, posted by California_Princess on October 24, 2003, at 18:07:41
Hi Melissa,
I don't have much advice here, since I haven't started Topamax yet (start tomorrow) and haven't used Zonegran, but I had a long talk with my pdoc about both. He wanted to start me with T because of its better mood stabilizing history (I have BP) and if I couldn't handle the SE's, he will switch me to Z. I have heard that Z has some nasty SE's too, but possibly not as bad. I would give Zonegran a try, especially since your issue with weight is very important to you...believe me, I understand!Good luck to you!
Posted by California_Princess on October 25, 2003, at 21:34:36
In reply to Re: Topamax Side Affects!, posted by Sooshi on October 25, 2003, at 7:54:32
Thanks Shooshi! :O0
I think I will ask my pdoc about it agin when I see him next month. This time I will probably bring some information with me.
Melissa
Posted by Katt on October 25, 2003, at 22:56:37
In reply to Topamax Side Affects!, posted by California_Princess on October 24, 2003, at 18:07:41
What side effects are you guys having?
I got into an arguement about the year we are in with someone the other day -- I kept saying it was 2002 - they kept telling me it was 2003. Sure enough! It was 2003!!! Ahhhhh!!!! how embarrassing!! i think. actually, i didn't even care. i went home and took a nap. but i have lots of sores in my mouth -- you too?? when i brush my teeth, my gums bleed everywhere. sleepy sleepy sleepy.
I am pretty thin, about 20 lbs underweight, but have no desire to eat, but that is great to me!!
what side effects are you all having?
Posted by chicago77 on October 25, 2003, at 23:16:07
In reply to Re: Tomamax for weight loss, posted by Wrain on September 8, 2003, at 8:51:22
I am also very curious about the dosage for Topamax for weight loss. I currently take Wellbutrin for depression and have no side effects that I am aware of. AND, if you didn't know, they came out with once-a-day dosing... Wellbutrin XL (which is great for me b/c I kept forgetting to take the evening dose, or I'd be somewhere w/out my meds).
Anyway, I also have migraines, although I haven't had a full-blown attack in about a month. However, I am a grad student and was talking to a lecturer that spoke on migraines. I asked her if the prodrome/aura symptoms (visual disturbences in particular) are indicative of a neurological disorder, just as if I was experiencing full-out attacks. Her belief is that migraines are just as much of a neurological disorder as epilepsy (and she works at Diamond Headache Clinic- very famous). So, it would make sense that migraines at treated in a similar way.
As far as the Wellbutrin/Topamax combo, since Wellbutrin typically lowers seizure threshold (making it more likely that you MIGHT have a seizure), I would think that adding on an anti-seizure med (which Topamax is) would be a good idea!
So, back to my original questions... what is the typical dosage of Topamax for weight loss, because I've seen posts that range from 50 mg once a day to 200 mg twice a day! Has anyone noticed drowsiness to be a side effect of Topamax? If so, has taking the med at bedtime made any difference, or does the drowsiness seem to persist thoughout the day? (Geez- can you tell I'm studying for a medical profession?!) I have an appointment with my psychiatrist this coming Thursday (it's Saturday night), and would really appreciate any advice before then so I seem well informed. I will let everyone know how it goes and, if I get a Rx, will update my progress. Thanks everyone!!
Posted by Katt on October 25, 2003, at 23:25:32
In reply to Wellbutrin update question on Topamax dosage, posted by chicago77 on October 25, 2003, at 23:16:07
Right now I am taking 25 mg 4 times a day (100 mg) and 1200 mg of Neurontin, going down (I was on 3200 mg. Taking this all for pain, refused to do this for psych reasons, but now I have no choice. Before, I was just trying to kill myself all the time. Now, I just can't move or get up without assistance. So the pdocs are laughing.
Posted by chicago77 on October 25, 2003, at 23:43:46
In reply to Re: Wellbutrin update question on Topamax dosage, posted by Katt on October 25, 2003, at 23:25:32
just out of curiousity... what is a pdoc?!
Posted by platinumbride on October 26, 2003, at 7:23:41
In reply to topamax..sigh :( » phillybob, posted by platinumbride on October 18, 2003, at 15:25:30
I wish I could find the very kind post that someone sent in regard to something I had said so that I could say thank you. It was in response to someting I had written about such a pretty face, what a shame she doesn't lose some weight.
If the sender is reading this, thank you. It was very kind of you to take that time out.
I wish I could read it again.
If you care to send it again, pls do so at dielotosblume1@yahoo.comty
Diane
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