Psycho-Babble Medication Thread 50878

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Re: weaning /Bridgey1128 Headachequeen

Posted by kathai on August 23, 2004, at 16:02:42

In reply to Re: weaning myself off topamax..., posted by bridgey1128 on August 22, 2004, at 19:47:51

Thanks for your responses! After reading that website I informed you about, it scared me too...I actually took half of a topamax last night (the headache I had all day I began to figure was a withdrawel...) after going cold turkey for 3 days and I felt so much better after. I made an appt with my neurologist today. I can't even remember how long I've been on it. I thought a year, but time flies, I am thinking more like three!!!
Anyway I am also suddenly staying up all night biting my nails and a bit frantically stressed....I think that happened last time I tried to "wean myself off" and then decided it wasn't worth it...

 

Re: weaning /Bridgey1128 Headachequeen kathai

Posted by headachequeen on August 23, 2004, at 22:16:32

In reply to Re: weaning /Bridgey1128 Headachequeen, posted by kathai on August 23, 2004, at 16:02:42


Today was a most informative one... to begin with I found out why I have seizures as well as why I have break-through seizures...
The team running and interpreting today's tests happen to be the team who were responsible for discovering the weight loss component of Topomax by the way and were also the team who discovered that the original protocol was not really the ideal one and changed the protocol to lower starting doses, recommending that people prescribed Topomax start at lower doses and wait longer periods of time between increases so as to avoid disastrous side effects...

I also learned a lot more about taking Tegretol and Topomax with comfort....

I have been experiencing strange fatigue ...
but that is because no one told me to take the Tegretol and Topomax separately, preferably two hours apart....

and no one ever told me to take Tegretol with food... hence the side effects that have been crippling me with abdominal pain and nausea and the electric knife 'tingling'...

so I am making the necessary changes in my personal approach to taking these meds...

as for the break-through seizures, the prescribed dosage of both meds is too low for the situation in which I am living... so I am hoping with the changes prescribed today that things will improve...

The whole experience was fascinating, albeit at times upsetting... during the testing I was asleep for about four hours, then awake for the last couple of hours, during which time the technician induced two seizures. I have never experienced a seizure when I was conscious... and thanks just the same would prefer not to repeat the experience...
however it was apparently something they needed to do... and they learned a great deal from it...
so did I... :(
I learned that it is something I don't really want to do again...

I also learned that those people who lose weight on Topomax will regain the weight if they quit taking it... a word to the wise :(

And the visual impairment is actually blurred vision caused by too sudden an increase in the dosage. It seems as if the person taking the med cannot see because the blurred vision is so intense...

and I shall try and remember what else they told me and share it here... there was such a mass of information...

they also gave me a booklet that they prepared for epilepsy patients that includes information on the meds...
have not read it yet... too tired after twenty-four hours without sleep and forty-eight hours without caffeine or other stimulant...

but shall let you know what else I remember and/or read...

kat

 

Re: weaning myself off topamax...

Posted by concerned daughter on August 23, 2004, at 22:19:07

In reply to Re: weaning myself off topamax..., posted by bridgey1128 on August 22, 2004, at 19:47:51

Hi. I'm writing with questions for my mother. She has been having vascular migraines for about a year now...getting increasingly worse. She switched neurologists just this past week and was put on Topomax on Thursday. She had a really bad migraine on Friday and swelling in her neck on Saturday morning. So she was hospitalized by the neurologist on call on Saturday, and she is still in the hospital tonight. Her MRIs and an MRA have shown nothing out of the ordinary. My question is, how long does she have to take the Topomax before she should begin experiencing relief (i.e. decrease in occurence of migraines)? Thanks in advance for the information.

 

concerned daughter

Posted by kathai on August 23, 2004, at 22:35:42

In reply to Re: weaning myself off topamax..., posted by concerned daughter on August 23, 2004, at 22:19:07

I am sorry about your mother! It took me a couple weeks to start feeling the effects of the topamax, and I was having terrible migraines - weekly. Even on the topamax I continued to have migraines only about twice a month, and much less severe. I take fiorcet if I need to, but I try to take a lot of naproxen and diet coke! to help avoid the major migraine. If it doesn't work, I take the fiorcet. Only ended up at the DR twice this past year for debiliating HELP ME kind of migraines where they gave me steroids? I think? and percocet to break whatever cycle. Good luck with your mother. My mother suffered for many, many years without therapy -what I remember most about my childhood is my mother throwing up in the dark every weekend for years. Now that I think about it, I thanked GOD when I started taking the topamax and it started working for me, I felt like it saved my life. Makes me wonder why I thought a couple days ago about weaning off...pressures I guess.

> Hi. I'm writing with questions for my mother. She has been having vascular migraines for about a year now...getting increasingly worse. She switched neurologists just this past week and was put on Topomax on Thursday. She had a really bad migraine on Friday and swelling in her neck on Saturday morning. So she was hospitalized by the neurologist on call on Saturday, and she is still in the hospital tonight. Her MRIs and an MRA have shown nothing out of the ordinary. My question is, how long does she have to take the Topomax before she should begin experiencing relief (i.e. decrease in occurence of migraines)? Thanks in advance for the information.

 

Re: weaning /Bridgey1128 Headachequeen

Posted by imlaurie on August 24, 2004, at 0:04:10

In reply to Re: weaning /Bridgey1128 Headachequeen kathai, posted by headachequeen on August 23, 2004, at 22:16:32

I have been off the Topamax for about three months. I am still 120 pounds and still a size 5. I was 165 lbs and a tight size 12 before I started Topamax. My main reason for quitting them was the hair loss. Then again my only reason for taking them as long as I did (a bit over a year)was the weight loss. I found that emotionally I was the same with them or without them. I think I got so used to eating one meal a day while I was on Topamax that it became a way of life for me. I just don't get hungry like I did before I was taking it. I have heard that stomachs don't shrink but I really feel like mine did. I noticed side effects, tingling in my feet, blurred vision, hair loss and of course the big plus is losing weight. Topamax was given to me to balance my moods, they claim I am mildly bi-polar. I don't agree but that is another story :) MY weight loss started right away and I went to a size 5 in about 6 weeks. If I remember right I was only taking 100 mgs a day, I think that's what it was.
I am curious as to why this medication causes such significant weight loss. Does anyone know?
Laurie

 

Re: topomax weight/side effects/weaning off

Posted by Jessie77 on August 24, 2004, at 0:18:21

In reply to Re: weaning /Bridgey1128 Headachequeen, posted by imlaurie on August 24, 2004, at 0:04:10

I am also at a point where I feel like I may need to wean off topamax. I didnt want to initially but I feel like my mood is just getting more depressed. I also had my first seizure in 2 years (on my honeymoon - poor guy - for better or worse!) I have lost about 20-25 pounds, although i dont feel like I eat less and my family is starting to freak out. I asked my doctor to switch me to zonegran but he will not. I am also taking 60 mg of Adderall for ADHD. Im not sure what to do. I wont go on an SSRI or Wellbutrin because of the seizure issues. Has anyone experiences their depression worsening with Topamax?

Sorry for the long post.

Jessie

 

forgot to mention re taking Topomax

Posted by headachequeen on August 24, 2004, at 8:35:05

In reply to Re: weaning myself off topamax..., posted by concerned daughter on August 23, 2004, at 22:19:07

I forgot to mention -- and many of you may already know this, but no one mentioned this to me, neither the pharmacists nor the neurologist -- that Topomax should also be taken with food, if only a bit of toast or bread or a cookie...
it should never be taken on an empty stomach. In fact, they told me that unless specifically mentioned, no meds should be taken on an empty stomach....

so I added that to the file of information stored in my memory bank...

kat

 

Re: weaning /Bridgey1128 Headachequeen imlaurie

Posted by headachequeen on August 24, 2004, at 13:09:39

In reply to Re: weaning /Bridgey1128 Headachequeen, posted by imlaurie on August 24, 2004, at 0:04:10


> I am curious as to why this medication causes such significant weight loss. Does anyone know?
> Laurie

Laurie, the Topomax minimises the appetite, causing one to want to eat less...
stomachs do not shrink but appetites do <G>

the tech and the neurologist yesterday explained it to me in great detail... something that had been missing in the past few months

kat

 

imlaurie

Posted by kathai on August 24, 2004, at 15:47:59

In reply to Re: weaning /Bridgey1128 Headachequeen, posted by imlaurie on August 24, 2004, at 0:04:10

WOW, I am pushing 175 I think right now and have gone from 8 to 12, just the opposite. But I think that is because of my lifestyle change, not the topamax. But I wish I had the weight loss effect!!!


> I have been off the Topamax for about three months. I am still 120 pounds and still a size 5. I was 165 lbs and a tight size 12 before I started Topamax. My main reason for quitting them was the hair loss. Then again my only reason for taking them as long as I did (a bit over a year)was the weight loss. I found that emotionally I was the same with them or without them. I think I got so used to eating one meal a day while I was on Topamax that it became a way of life for me. I just don't get hungry like I did before I was taking it. I have heard that stomachs don't shrink but I really feel like mine did. I noticed side effects, tingling in my feet, blurred vision, hair loss and of course the big plus is losing weight. Topamax was given to me to balance my moods, they claim I am mildly bi-polar. I don't agree but that is another story :) MY weight loss started right away and I went to a size 5 in about 6 weeks. If I remember right I was only taking 100 mgs a day, I think that's what it was.
> I am curious as to why this medication causes such significant weight loss. Does anyone know?
> Laurie

 

Re: topomax weight/side effects/weaning off

Posted by kathai on August 24, 2004, at 15:52:04

In reply to Re: topomax weight/side effects/weaning off, posted by Jessie77 on August 24, 2004, at 0:18:21

I don't notice depression, but I do have a complete lack of desire for sex, which really is frustrating to my husband, and when I asked my neurologist about it she looked at me like I needed to stop making things up (thats how I felt!) but then I noticed that this is one of the less common side effects, and I was so happy it wasn't just me. But maybe that is kind of a depression. I haven't had a seizure but the weird thing is, my migraines are right sided, they affect my whole right side of my body, numb even my face, and I have always had this scary premonition that I would be having seizures - before I ever knew that they were related to topamax.
You are right about for better or worse! hope the rest of your honeymoon was enjoyable!

> I am also at a point where I feel like I may need to wean off topamax. I didnt want to initially but I feel like my mood is just getting more depressed. I also had my first seizure in 2 years (on my honeymoon - poor guy - for better or worse!) I have lost about 20-25 pounds, although i dont feel like I eat less and my family is starting to freak out. I asked my doctor to switch me to zonegran but he will not. I am also taking 60 mg of Adderall for ADHD. Im not sure what to do. I wont go on an SSRI or Wellbutrin because of the seizure issues. Has anyone experiences their depression worsening with Topamax?
>
> Sorry for the long post.
>
> Jessie

 

Re: topomax weight/side effects/weaning off

Posted by Jessie77 on August 24, 2004, at 17:46:43

In reply to Re: topomax weight/side effects/weaning off, posted by kathai on August 24, 2004, at 15:52:04

Me too! Total lack of sex drive! This is not good for a newlywed! Thank God I married a patient man. Have you heard anything about Zonegran? My psychiatrist would not prescribe it so I am going to get a second opinion from a primary care doctor.

Thanks for sharing:) I was really having some major guilt issues about the sex thing and thought there was something seriously wrong with me - Im glad Im not alone:)
> I don't notice depression, but I do have a complete lack of desire for sex, which really is frustrating to my husband, and when I asked my neurologist about it she looked at me like I needed to stop making things up (thats how I felt!) but then I noticed that this is one of the less common side effects, and I was so happy it wasn't just me. But maybe that is kind of a depression. I haven't had a seizure but the weird thing is, my migraines are right sided, they affect my whole right side of my body, numb even my face, and I have always had this scary premonition that I would be having seizures - before I ever knew that they were related to topamax.
> You are right about for better or worse! hope the rest of your honeymoon was enjoyable!
>
> > I am also at a point where I feel like I may need to wean off topamax. I didnt want to initially but I feel like my mood is just getting more depressed. I also had my first seizure in 2 years (on my honeymoon - poor guy - for better or worse!) I have lost about 20-25 pounds, although i dont feel like I eat less and my family is starting to freak out. I asked my doctor to switch me to zonegran but he will not. I am also taking 60 mg of Adderall for ADHD. Im not sure what to do. I wont go on an SSRI or Wellbutrin because of the seizure issues. Has anyone experiences their depression worsening with Topamax?
> >
> > Sorry for the long post.
> >
> > Jessie
>
>

 

Jessie -/side effects/weaning off

Posted by kathai on August 24, 2004, at 22:35:58

In reply to Re: topomax weight/side effects/weaning off, posted by Jessie77 on August 24, 2004, at 17:46:43

Jessie, I was married last July, 03, and I am having a really hard time remembering when I started topamax- I have no sense of time sometimes! - but I know the lack of sex drive came soon after I started, BEFORE my wedding for sure, and since then I have worried it was me (I had asked my neurologist and she told me it shouldn't be a side effect)!!! Because I wan't like this beofe! and it has caused more fights and friction in my marriage (you are lucky your husband is patient!). I wish I had tapped into psy-babble before! I am so glad for this - being able to post and share and read - so glad for the site and the support from everyone and the many things I have learned from other people's experiences! glad I gave you some relief that you aren't alone, because I know I am relieved.

I have begun weaning off (decided against going cold turkey after Kat's advice and finding that informative web-site that warned against it)...I am now taking one 25 mg every other day (instead of 50 mg a day) until I see my neurologist in two weeks. I will keep you all posted as to the effects!
I have not heard of Zonegran...

> Me too! Total lack of sex drive! This is not good for a newlywed! Thank God I married a patient man. Have you heard anything about Zonegran? My psychiatrist would not prescribe it so I am going to get a second opinion from a primary care doctor.
>
> Thanks for sharing:) I was really having some major guilt issues about the sex thing and thought there was something seriously wrong with me - Im glad Im not alone:)
> > I don't notice depression, but I do have a complete lack of desire for sex, which really is frustrating to my husband, and when I asked my neurologist about it she looked at me like I needed to stop making things up (thats how I felt!) but then I noticed that this is one of the less common side effects, and I was so happy it wasn't just me. But maybe that is kind of a depression. I haven't had a seizure but the weird thing is, my migraines are right sided, they affect my whole right side of my body, numb even my face, and I have always had this scary premonition that I would be having seizures - before I ever knew that they were related to topamax.
> > You are right about for better or worse! hope the rest of your honeymoon was enjoyable!
> >
> > > I am also at a point where I feel like I may need to wean off topamax. I didnt want to initially but I feel like my mood is just getting more depressed. I also had my first seizure in 2 years (on my honeymoon - poor guy - for better or worse!) I have lost about 20-25 pounds, although i dont feel like I eat less and my family is starting to freak out. I asked my doctor to switch me to zonegran but he will not. I am also taking 60 mg of Adderall for ADHD. Im not sure what to do. I wont go on an SSRI or Wellbutrin because of the seizure issues. Has anyone experiences their depression worsening with Topamax?
> > >
> > > Sorry for the long post.
> > >
> > > Jessie
> >
> >
>
>

 

Re: Jessie -/side effects/weaning off

Posted by imlaurie on August 25, 2004, at 10:29:15

In reply to Jessie -/side effects/weaning off, posted by kathai on August 24, 2004, at 22:35:58

What website are you talking about?? I would like to see it. I went off Topamax cold turkey a few mmonths back. I am curious because around that time my whole body was one big muscle cramp, my entire back, neck, I couldn't turn my head,muscle spasms all the way down to my feet. It had me scared but it went away after about a week. I was too cramped up to even drive to the dr. Now I am wondering if there is any connection to that horrid experience and quitting the Topamax so abruptly?? Please someone send me the website. And yes it does STOP your sex drive because now I have a sex drive once again :)
Thanks Laurie

 

Re: Topomax -/side effects/sex drive/Zonegran

Posted by rockette on August 25, 2004, at 12:04:37

In reply to Jessie -/side effects/weaning off, posted by kathai on August 24, 2004, at 22:35:58

I am free of Topomax for about one month now. Slowly tapered off. Had been taking it for migraines but was unhappy with the hairloss and still got some "break-through" migraines (2 or 3 a month--though not as severe as previously). Had little or no sex drive while taking the Topomax (it hasn't returned--sad husband!)
So now have been taking Zonegran (100 mg at night) for about a month. Have NOT noticed any great change. Hair is still dry like straw but not falling out, still getting headaches (wake up during night with them frequently but often they will go away if I get up--usually at 4 a.m.) Will take "Amerge" for break-through headaches and that usually will stop them (not this past week-end though.)
Our family has suffered the tragic loss of my newborn granddaughter this month so that may also be adding to my headaches, lethargy and depression.

 

Re: Topomax -/side effects/sex drive/Zonegran

Posted by kathai on August 25, 2004, at 21:51:34

In reply to Re: Topomax -/side effects/sex drive/Zonegran, posted by rockette on August 25, 2004, at 12:04:37

Oh My God, I am sooo sorry for your loss. This is so unimportant right now, but your side effects sound just like mine. I went to the hairdressers today and all of the hairdressers in the shop had a discussion about how dry and damaged my hair is...my hair has always been my crowning glory (very healthy and down to my elbows until about 2 years ago)so it was a puzzlement...but now to me anymore!! anyway...I am so sorry for your loss. I am sure it adds to the depression etc.


> I am free of Topomax for about one month now. Slowly tapered off. Had been taking it for migraines but was unhappy with the hairloss and still got some "break-through" migraines (2 or 3 a month--though not as severe as previously). Had little or no sex drive while taking the Topomax (it hasn't returned--sad husband!)
> So now have been taking Zonegran (100 mg at night) for about a month. Have NOT noticed any great change. Hair is still dry like straw but not falling out, still getting headaches (wake up during night with them frequently but often they will go away if I get up--usually at 4 a.m.) Will take "Amerge" for break-through headaches and that usually will stop them (not this past week-end though.)
> Our family has suffered the tragic loss of my newborn granddaughter this month so that may also be adding to my headaches, lethargy and depression.

 

Kat, do you still- website link for Laurie

Posted by kathai on August 25, 2004, at 21:55:56

In reply to Re: Jessie -/side effects/weaning off, posted by imlaurie on August 25, 2004, at 10:29:15


Laurie, I posted the link to the website a few days ago and will try to find it in backpostings. Kat, just in case - do you happen to still have that link? You had checked it out when you responded to me with some good advice. I can't believe I didn't save it in my favorite places! I will look for it again too.

> What website are you talking about?? I would like to see it. I went off Topamax cold turkey a few mmonths back. I am curious because around that time my whole body was one big muscle cramp, my entire back, neck, I couldn't turn my head,muscle spasms all the way down to my feet. It had me scared but it went away after about a week. I was too cramped up to even drive to the dr. Now I am wondering if there is any connection to that horrid experience and quitting the Topamax so abruptly?? Please someone send me the website. And yes it does STOP your sex drive because now I have a sex drive once again :)
> Thanks Laurie

 

Here is the topamax Website again

Posted by kathai on August 25, 2004, at 22:09:58

In reply to Re: Jessie -/side effects/weaning off, posted by imlaurie on August 25, 2004, at 10:29:15

Found the website! Here is the posting from a few days ago:
Posted by Kathai on August 22, 2004, at 17:41:41

After reading more and more postings today, I have learned a lot. I also have been doing a search, and found the most informative website! http://www.migraines.org/treatment/protpmax.htm
My last posting I stated that I wasn't sure what my side effects were vs. real life things..and after reading this posting it was like a big relief to see that some of the things I have been concerned of over the past year, are side effects of topamax! I seem to have most of the "less common" side effects, interestingly enough.
Check out the website!


> What website are you talking about?? I would like to see it. I went off Topamax cold turkey a few mmonths back. I am curious because around that time my whole body was one big muscle cramp, my entire back, neck, I couldn't turn my head,muscle spasms all the way down to my feet. It had me scared but it went away after about a week. I was too cramped up to even drive to the dr. Now I am wondering if there is any connection to that horrid experience and quitting the Topamax so abruptly?? Please someone send me the website. And yes it does STOP your sex drive because now I have a sex drive once again :)
> Thanks Laurie

 

Re: Topomax /Zonegran--thank you, Kathie kathai

Posted by rockette on August 26, 2004, at 14:25:46

In reply to Re: Topomax -/side effects/sex drive/Zonegran, posted by kathai on August 25, 2004, at 21:51:34


Thank you so much for your kind words. It is a very difficult time. Headaches and depression go hand-in-hand, add heartbreak to the mixture and I don't think any medication could help right now. but I do think the change from Topomax to Zonegran was a smart move--no problems noted.


> Oh My God, I am sooo sorry for your loss. This is so unimportant right now, but your side effects sound just like mine. I went to the hairdressers today and all of the hairdressers in the shop had a discussion about how dry and damaged my hair is...my hair has always been my crowning glory (very healthy and down to my elbows until about 2 years ago)so it was a puzzlement...but now to me anymore!! anyway...I am so sorry for your loss. I am sure it adds to the depression etc.
>
>
> > I am free of Topomax for about one month now. Slowly tapered off. Had been taking it for migraines but was unhappy with the hairloss and still got some "break-through" migraines (2 or 3 a month--though not as severe as previously). Had little or no sex drive while taking the Topomax (it hasn't returned--sad husband!)
> > So now have been taking Zonegran (100 mg at night) for about a month. Have NOT noticed any great change. Hair is still dry like straw but not falling out, still getting headaches (wake up during night with them frequently but often they will go away if I get up--usually at 4 a.m.) Will take "Amerge" for break-through headaches and that usually will stop them (not this past week-end though.)
> > Our family has suffered the tragic loss of my newborn granddaughter this month so that may also be adding to my headaches, lethargy and depression.
>
>

 

Re: Topomax /Zonegran--thank you, Kathie

Posted by Jessie77 on August 26, 2004, at 14:40:02

In reply to Re: Topomax /Zonegran--thank you, Kathie kathai, posted by rockette on August 26, 2004, at 14:25:46

> Yes, I can't imagine how difficult a time this must be. I am saying a prayer for you!
_jessie
> Thank you so much for your kind words. It is a very difficult time. Headaches and depression go hand-in-hand, add heartbreak to the mixture and I don't think any medication could help right now. but I do think the change from Topomax to Zonegran was a smart move--no problems noted.
>
>
> > Oh My God, I am sooo sorry for your loss. This is so unimportant right now, but your side effects sound just like mine. I went to the hairdressers today and all of the hairdressers in the shop had a discussion about how dry and damaged my hair is...my hair has always been my crowning glory (very healthy and down to my elbows until about 2 years ago)so it was a puzzlement...but now to me anymore!! anyway...I am so sorry for your loss. I am sure it adds to the depression etc.
> >
> >
> > > I am free of Topomax for about one month now. Slowly tapered off. Had been taking it for migraines but was unhappy with the hairloss and still got some "break-through" migraines (2 or 3 a month--though not as severe as previously). Had little or no sex drive while taking the Topomax (it hasn't returned--sad husband!)
> > > So now have been taking Zonegran (100 mg at night) for about a month. Have NOT noticed any great change. Hair is still dry like straw but not falling out, still getting headaches (wake up during night with them frequently but often they will go away if I get up--usually at 4 a.m.) Will take "Amerge" for break-through headaches and that usually will stop them (not this past week-end though.)
> > > Our family has suffered the tragic loss of my newborn granddaughter this month so that may also be adding to my headaches, lethargy and depression.
> >
> >
>
>

 

Re: Topomax /Zonegran--thank you, Kathie

Posted by kathai on August 26, 2004, at 16:26:48

In reply to Re: Topomax /Zonegran--thank you, Kathie kathai, posted by rockette on August 26, 2004, at 14:25:46

> Well, hang in there...I hope you have some support for your heartbreak. You are right to give it some time knowing that you won't be feeling good no matter what the medication does right now. Be thinking of you, keep in touch with the postings! K

> Thank you so much for your kind words. It is a very difficult time. Headaches and depression go hand-in-hand, add heartbreak to the mixture and I don't think any medication could help right now. but I do think the change from Topomax to Zonegran was a smart move--no problems noted.
>
>
> > Oh My God, I am sooo sorry for your loss. This is so unimportant right now, but your side effects sound just like mine. I went to the hairdressers today and all of the hairdressers in the shop had a discussion about how dry and damaged my hair is...my hair has always been my crowning glory (very healthy and down to my elbows until about 2 years ago)so it was a puzzlement...but now to me anymore!! anyway...I am so sorry for your loss. I am sure it adds to the depression etc.
> >
> >
> > > I am free of Topomax for about one month now. Slowly tapered off. Had been taking it for migraines but was unhappy with the hairloss and still got some "break-through" migraines (2 or 3 a month--though not as severe as previously). Had little or no sex drive while taking the Topomax (it hasn't returned--sad husband!)
> > > So now have been taking Zonegran (100 mg at night) for about a month. Have NOT noticed any great change. Hair is still dry like straw but not falling out, still getting headaches (wake up during night with them frequently but often they will go away if I get up--usually at 4 a.m.) Will take "Amerge" for break-through headaches and that usually will stop them (not this past week-end though.)
> > > Our family has suffered the tragic loss of my newborn granddaughter this month so that may also be adding to my headaches, lethargy and depression.
> >
> >
>
>

 

Re: Topomax -/side effects/sex drive/Zonegran kathai

Posted by headachequeen on August 27, 2004, at 20:34:58

In reply to Re: Topomax -/side effects/sex drive/Zonegran, posted by kathai on August 25, 2004, at 21:51:34

>I am so sorry for your loss. There are no words to state my feelings, and fewer words to equate anyone's sexdrive with it, but at this point, I have not lost that either.
I was at the hair stylist the other day and my hair is as thick and strong as ever so I don't know if that can be considered a concern at that time.
Actually at this time I am much more concerned about the side the side effects of another drug that is really knocking sideways, to the point that I can barely function.
kat

 

Re: topamax..sigh :( platinumbride

Posted by Paintmom on January 2, 2005, at 15:51:03

In reply to topamax..sigh :( phillybob, posted by platinumbride on October 18, 2003, at 15:25:30

>
>
> Let me sum up my convoluted post:
> flu symptoms anyone?
> 200 mgs? for how long at 200 mgs? a week? 6 weeks?
>
> Thanks,
> Diane
>
>

I got sick about a week ago...sore throat ...chest congestion...I usually get this around this time of year....and it's usually hard to shake cause I have Chronic Fatigue and Asthma...but in spite of an antibiotic...it's hanging on....unless it's viral....then that would make sense...but I am starting to wonder if it could be the topamax...
I am drinking like a mad woman (water)

thanks
Paintmom

 

Re: topamax..sigh :( Paintmom

Posted by Author-in-Training on March 23, 2005, at 19:31:33

In reply to Re: topamax..sigh :( platinumbride, posted by Paintmom on January 2, 2005, at 15:51:03

> >
> >
> > Let me sum up my convoluted post:
> > flu symptoms anyone?
> > 200 mgs? for how long at 200 mgs? a week? 6 weeks?
> >
> > Thanks,
> > Diane
> >
> >
>
> I got sick about a week ago...sore throat ...chest congestion...I usually get this around this time of year....and it's usually hard to shake cause I have Chronic Fatigue and Asthma...but in spite of an antibiotic...it's hanging on....unless it's viral....then that would make sense...but I am starting to wonder if it could be the topamax...
> I am drinking like a mad woman (water)
>
> thanks
> Paintmom
>
I have been sick also - some sort of sinus thing with headaches for the past 6 days. I'm on topomax 75mg am and 75mg pm , sick to my stomach, occasional vomiting. Very tired, no ambition to excercise, do laundry, cook, etc. Started taking Topomax about 3 months ago for migraines, which it is working for, but wondering now what it is causing again...........bringing on depression that I'm on meds for already????

 

Re: Topamax Experiences?

Posted by Lena on November 8, 2006, at 15:32:15

In reply to Re: Topamax Experiences? Beck, posted by Sooshi on December 15, 2003, at 9:33:15

I was taking topamax because I am constantly dizzy and I get headaches. I started off taking one 25mg pill a day of topamax and within three days the numbness started in my hands and feet. I started to take two a day, and the numbness then became constant and would get worse when my hands or feet were level or above level.
I also had trouble with my memory. I was constantly losing my train of thought and could spell easy words that I know how to spell. I also couldn't remeber words to a prayer that I have known since I was five.
I felt nervous in situations that I couldn't explain.
I have read online that alcohol effects may be increased, while taking topamax. I didn't know this and while on 50 mg I drank alcohol. Things happened that I honestly don't believe I was in control of. Then right after I didn't have any memory of what had happend until someone told me and it was like my memory came rushing back. I realize that this could all be because of alcohol alone, but I want to know if topamax could have had any thing to do with it.
I stopped taking topamax because the memory loss was starting to get scary. I am wondering if I should give it another try and see if the side effects go away and if it will help my dizzyness.

 

Re: Why I quit topamax FranzLiszt

Posted by Enigma on March 23, 2009, at 8:35:57

In reply to Why I quit topamax, posted by FranzLiszt on July 10, 2003, at 6:00:50

Wow, that's a horrible reaction and one I'm never heard associated with Topamax. But, meds effect people in different ways. I had a horrible experience with effexor, so much so that I wanted to join others to try to get it banned, for good! I had about a 6 month withdrawal time from the drug, and I only took a low dose for a month!.. Horrible!


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