Posted by Lonely on January 2, 2005, at 12:49:35
In reply to Re: how did you define your therapy goals?, posted by bimini on December 28, 2004, at 10:49:23
It sounds like we might be dealing with similar issues whether directly or indirectly. I sent a fax to my hubby's neuropsychologist asking for referral to MS support group (my LMSW therapist suggested it) but never heard a word back. For us, perhaps due to insurance, I don't know, the neuropsychologist is nothing more than a tester who seems to base life-influencing reports mostly on the moment of testing without enough long term multi source evaluation. But, at least this one, so far, in comparison to the first one has been much more pleasant. The first one definitely had a taunting "I'm-gonna-lay-you-open" type of attitude. My hubby was diagnosed with MS on Dec. 28th. I have yet to get any kind of support from a health care provider - even my own LMSW - they don't seem to be really trained in this area.
Perhaps it's different in different parts of the country or maybe just differences between neuropsychs. We're in the SW US.
I'm intrigued that you also have apparently asked for concrete or objective info and finding it hard to get. I noticed the same thing. The first one was really squirrely. Still waiting on the report from the current neuropsych. There are so many layers in all this - the "old" stuff (behavioral & relationship issues) the emotional impact, the need for info that's not drug-company tainted, and the need for tangible resources peratining to "what do I do when he thinks he's Napoleon?" or "what do I do when he starts threatening me?" or "what do I do when he forgets to fasten his pants, puts his shirt on backwards, leaves a pan of grease on the stove with the burner on?" etc. And, like you, I could use a ton of compassion.
This must be some sort of a gift - just haven't figured out how to use it - would have preferred great artistic talent or something!
> My goal was to find my way back to a life that had changed abruptly. I wanted to learn what is happening to me, will it progress, can I do something to prevent deterioration, what are those things I can do, where do I go to find advice, what can I do to improve functioning, what can I do to prevent fading out, how do I deal with pain, anger, frustration, getting lost ?-?-?
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> Short, I wanted help through the confusion and tips on how to compensate. Over a dozen docs later I have given up searching for professional help. My Neuropsych is nuttier than I and might benefit from a long vacation (smile). I did not get advice nor answers to my questions. A modecum of understanding would have helped, what I got was an apathetic simper and a pill for each complaint.
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> bimini
poster:Lonely
thread:434398
URL: http://www.dr-bob.org/babble/psycho/20041228/msgs/436800.html