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FINALLY i have a diagnosis for my pain

Posted by kerria on October 12, 2005, at 17:23:25

Hi Everyone,

After almost two years (in December) of being in severe constant pain and going to so many drs i finally went to a dr who knows what's wrong with me! After all this time and all the trouble with drs, the surgery and all the tests that didn't show the reason for pain.
Yesterday i went to a pelvic pain specialist- he is known as one of the best in the world, he was able to give me a diagnosis- i have pudendal neuropathy. It happens when the pudendal nerve gets compressed from an injury.
The dr explained about it and the treatment options. i cried to think that i could get better. Finally i can know what's causing this terrible pain. Also it means so much to have a dx now, the pain management dr can't say i don't have a dx and no one can accuse me anymore of having somatic pain.

i'm so glad that i went back to this dr. i first went to him a few months after the pain started and the gyn surgery didn't help. He asked the name of my psychiatrist and a part came and was totally out of control, became so angry we just left. It was so hard to hear that there was another dr that was saying the pain was psychological.
It was so ackward going back to him a year later and apologizing. i'm so glad that he saw us again.
He asked why i was so different than before- so much in control now and i gave the credit to my T because i just saw him before and he helped me get to the appt by asking a strong part to go(i have parts and most couldn't handle going to the dr).

Anyways, it all worked out so well and i know why i have this pain and what i can try to get better. Such a relief to be able to tell the pain management dr what i have,...

The dr even had to send me back to the same pain management dr that i had before- because they do the nerve blocks.
Or i can have surgery- there are only a few drs that do it, there is physical therapy to treat it also and a special pillow to make that will help, it's so painful to sit.
i have a legit reason for taking pain meds now, i knew i had before but now the drs know.
i'm so so relieved.
Thank you Ed and everyone that helped me when i came in bad shape because of the pain.
love,
kerria


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poster:kerria thread:566119
URL: http://www.dr-bob.org/babble/health/20050929/msgs/566119.html