Posted by bleauberry on January 24, 2019, at 8:27:14
In reply to Bleauberry omg friend i need to tell you something, posted by Jeroen on January 23, 2019, at 17:32:20
Hi Jereon! We know two things for sure. 1.You respond positively to antibiotics (pooping out and herxherimer reactions are a different story). When you start them, you respond immediately. Right? That is so super important to keep in mind. 2.Mysteries abound. Medical science is nowhere near being able to fully explain, diagnose, or treat the things we deal with. It's mostly anecdotal evidence and experimentation that yields good results.
So with that in mind, we don't know you have any of the half dozen Lyme germs. I suspect Bartonella, which can come from cat scratches, cat bites, and fleas, as well as ticks. The reason is because Bartonella is notorious for causing "racing" psychiatric symptoms such as schizophrenia, anxiety and panic attacks. Depression always goes along with that. Where there are psychiatric symptoms with any kind of neurological symptoms, Bartonelliosis HAS to be suspected and treated.
I have full blown Bartonelliosis right now and yet a lab test was negative. Anecdotal and clinical perception works better.
Cipro is excellent for Bartonella. There is no scientific data how to treat Bartonella. There are various antibiotics that have been successful but without consistency - each patient is an experiment.
If you can ever get Rifampin and Doxy (or Mino) at the same time, that combo has a 95% of getting you well in a 9 month period, according to one of the Lyme experts Marty Ross, M.D. That is his experience. He gets about a 85% success rate with other antibiotics, and a 75% success rate with the two herbs Side Acuta and Houttyunia. Rifampin and Doxy is what I am on, day 3, and already feeling way better.
I have seen a repeating pattern with you. That is, when you start, you feel benefits pretty quick. But then it goes haywire and you go crazy. Right? It starts good and then goes bad. Right?
Well, that is in a reliable diagnostic tool that doctors use when they are suspicious but not sure. With that pattern, there is great surety. Much more accurate than labs.
So we know there is something there. Is it Lyme? Bartonella? Something else? My first lyme doctor told me, "We will probably never know the exact germ and it doesn't matter." Again, that brings us back to mysteries, inadequate science, anecdotal successes, and experimentation. The whole approach is basically wide spectrum antimicrobials, and that is made much better with additional anti-inflammation and anti-toxicity strategies added to it.
When you start feeling bad after feeling good, that is a HERXHEIMER REACTION. It is what you feel when the toxins of microbial death hit your brain receptors before getting peed out of your body.
When that happens you can either lower the dose or stop for a couple days and then restart.
Do not expect the good feeling at the beginning of treatment to last. It won't. That good feeling will eventually come back, slowly over time, weeks and months not days, but it requires being on the antibiotics the whole time even when you don't feel like they are doing anything. They are.
Long story made short - you need to be on constant antibiotics for at least 3 months but more likely 9 months minimum. So try not to judge things on a day by day basis, or even a week by week basis. Know that even when you don't feel well, the antibiotics are doing their job, but they need more time.
Rifampin and Doxy? Can you get those? I am not aware of any better combination on planet earth for you than that. You could go to the Marty Ross, M.D. website and gather whatever information you want to try to convince your own doctors why you would like to try this. That way you've got some actual medical expertise supporting you, not just your own thoughts.
> 2 months on Saphris guess what, depression is back only got a few days better, positive symptoms are treated but my deep dark depression that as lifted with minocycline and Cipro ear drops (now resistant to the ear drop form) not tried pills which was kind of odd
> d.. 2 days on cipro (Panotile) ear drops and psychosis gone... but then after retry full blow mania and psychosis this happened years ago not now..
>
> Im infected with a lyme or something im 100% sure now
>
>
> please tell me how to proceed i believe you and my first alysia lyme test was positive, i dont respond to doxycycline but also doesnt make me worse a little better on 200 mg, but minocycline cured my schizophrenia and depression, if i only could take it safe i would do it again or another anti biotic. Please i know youre in very bad shape bleauberry but Id like to be well even if its for a few months from this horrible disease. Please help me bleauberry!
poster:bleauberry
thread:1102921
URL: http://www.dr-bob.org/babble/20181024/msgs/1102933.html