Posted by floatingbridge on October 11, 2009, at 13:25:12
In reply to Re: cfs virus identified, posted by bleauberry on October 11, 2009, at 10:26:46
Bleauberry,
Out of great respect for you, your knowledge, your efforts of healing yourself and coming to terms w/ your illness, and respect for your compassion to others in need, I want to respond to your post.
> Without addressing the underlying cause however, CFS and other chronic diseases (Fibro, Depression, MS, Arthritis) have a likelihood of progressing.
Agreed
>
> The cures are more often than not being found either accidentally or purposely in antimicrobial medicines and herbs. The ones that have a wide spectrum work the best, because it is impossible to identify or test for all the possible organisms. For example, if someone has this particular CFS virus, they likely have more troubles than just that one bug. The weakened body resulting from that CFS virus potentially opens up an opportunistic breeding ground for many others.
>agreed
> The best outcomes involve comprehensive plans that address not only broad spectrum unidentified pathogens, but the restoration of immune normalcy and encouragement of tissue repair. For anyone with CFS, that is in my opinion the best chance of recovery.
>
> American medicine falls short in most of these categories, using medicines that are not broad spectrum, having potentially harsh side effects, toxicity and risks, and not suitable for longterm use. Probably the best symptomatic relief agents are found in American medicine, while the curative ones are found in Chinese medicine. A blend of the two offers significantly enhanced outcomes in most cases by those doctors and hospitals that practice it.
>
Doubly agreed--my current path> Anyway, CFS from a virus? Not at all surprised. Worthy of mention is that CFS is also cured by eradicating Candida, Borellia and its co-inifectors, Mycoplasma, a half dozen others, and by reducing the inflammation cascade. CFS does not have a single cause, virus or otherwise. The presentation looks the same, whether it is a CFS virus or a fungi or bacteria or a protozoa.
>Are you sure?
> I am often puzzled why researchers focus in on one single thing, like a CFS virus. Sorry Mr Scientist, the world and the body are not that simple. But that is the nature of the game, I guess, when it is guided by analytic thinking without the incorporation of experiencial thinking.
>Why puzzled? Isn't that the way has been for some time, with newer thinking really opening up as we speak and holistic approaches finally being embraced by the real scientific theorists? Western science is beginning to see a bigger picture, hence the race to save species in rain forests, for example, to find nature's cures before they are lost forever.
> Broad spectrum safe nontoxic antipathogens, immune support, anti-inflammation, and supportive symptomatic measures...really not that hard. While we struggle for decades to invent stuff, it's already here. CFS patients have an enormous amount of hope for recovery without waiting for further research on any so-called CFS virus.
This passage here I feel undermines the immense efforts you and other have taken to heal themselves in a world of infinite info, alternatives and quacks who peddle cure to the desperate. I, personally, am very interested in the discovery of new pathogens underlying an illness largely thought of as at least half psychological. Did you ever suffer any prejudice, rolling of the eyes, lack of empathy when you struggled with lyme? I know my lyme-positive friends have. And as for me, the answer may seem clear to you, but not for me who writes at this board because I am suffering. I feel that the above passage smacks of condescension and, really, hurts my feelings. Every day I wonder what is in my head, what is in my body? What is under my control, what can I do? I am not gifted w/ a scientific mind. I have seen quacks and now am very leery of 'cures'. However, I persevere w/ my difficult diagnosis--or lack of one, actually, and do the best I can.
Yes, I am interested to hear that a pathogen underlies CFS and a host of other aliments, prostate cancer among them. And yes, I find it interesting to hear it is a retrovirus, similar to aids, that originally came from mice--and I applaud the broad-minded scientists who have done this research. They are exploring just the very terrain I would like them to. What the pharmaceutical industry does with this info in the years to come is a whole other matter. The research remains exciting to me.
Would I love to take a pill and be cured--OMG, yes! But I don't see that in my future. However, western medicine has eradicated diseases that once ravaged humanity--perhaps they have created some as well, but that is beyond my ken.
We all have friends who have had successful cancer treatments using western med. The best outcomes, I feel, are when they are used in conjunction w/ chinese meds and other 'alt' remedies. I have lost friends who used only alternative means to address ailments such as cancer and aids.
Take care Bleauberry. I value your input more than this note might show. Your recent comments on Savella, for example, have me thinking about different western approaches to my situation--and that is only the most recent input I have to thank you for.
Off the soap box now, on onto terra firma,
respectfully,
fb
poster:floatingbridge
thread:920253
URL: http://www.dr-bob.org/babble/20091001/msgs/920496.html