Posted by KaraS on September 26, 2005, at 14:03:44
In reply to Re: Yes! Go to » KaraS, posted by neuroman on September 26, 2005, at 10:25:45
> > I was diagnosed with CFS about 20 years ago and I got a lot better. Mine is definitely a virus. I presented with swollen glands, sore throats, nausea and fatigue mainly. I'd have flu like episodes with those symptoms and then it would get better and I'd feel fine for a while and then it would start again. Now I usually only get an episode if I get really run down but an episode can last as long as a couple of months. More often than not, I'm fine though.
>
> I have no doubt that viruses can cause chronic fatigue. It's just if you check out the chronic fatigue websites they seem to come out with a new theory as to it's cause every other month. I've had my fillings replaced, I've taken antiviral meds, I've had chelation therapy and vitamin drips, I've tried anti-yeast diets and supplements, etc. At some point it starts getting old. (And I started getting old.) There are things worth testing. But if they come back negative, accept it and move on. Some of these doctors will drive you bananas. There are simple and cheap things to test for that can be a good indicator of health, such as urine and blood pH. But a lot of these docs would rather send you for a $900 test and when it comes back negative they'll say, "Oh that doesn't necessarily mean you don't have it..." Then what the heck did I take the test for? Let's just assume I'm positive for everything! Aargh!
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> Ok...I am a little bitter. I'm glad you've found some relief though... :-)
I understand. I felt completely hopeless about it the first few years I had it. I think the main problem is that they don't really know what it is yet so that complicates treatment. I also think that many different things are lumped into the same category and called CFS. My viral symptoms don't match with many other people's symptoms who are classified with the same disease. One result of my (or our?) illness may be the hypersensitive dopamine autoreceptors according to Dr. Goldstein. If that's the case, then I'm still fighting the disease on a daily basis.How long have you had CFS? Is it intermittent or constant? Have any medications or antidepressants helped much with this? I would say that my improvement should give you hope but we don't even know if we have the same condition.
poster:KaraS
thread:558947
URL: http://www.dr-bob.org/babble/20050921/msgs/559829.html