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Re: zonegran and bipolar II/nausea/fatigue

Posted by tired10mom on October 10, 2003, at 13:50:12

In reply to Re: zonegran and bipolar II/nausea/fatigue, posted by glc on October 9, 2003, at 20:44:33

> Dear tired10mom,
>
> I'm so sorry about what happened to your daughter. My Dr. just prescribed this drug to me and warned me to stop taking it if I felt itchy or developed a rash. I'm wondering, did your daughter develop a rash at first, or did the burning just start with no warning? You post prompted me to read the entire pamphlet about Zonegran put out by the company. The SJS and TEN are mentioned in there, but the exact nature of these syndrome are not described. You are right, the doctors and pharmacists should do a better job of informing patients. If I were you I would look into taking legal action against the Dr. who prescribed this drug and the drug company too.

She took Zonegran for about two weeks before anything started to happen. Then she started feeling like she had the flu with sore throat, headache, and ache and pains. At exactly two weeks she broke out in a light rash on her chest. By the next morning, she had hives one her chest, stomach, and upper back. We went to the doctor who told us she had a severe URI and allergic reaction to theh Zonegran. He gave her antibiotics, a shot of steroids, and a Medrol pack to continue taking at home. The next day she the hives had turned to solid red swollen from her next to mid-thigh, front and back. She could hardly walk. By the fourth day, she crawled out of bed our room to wake us up. She was having trouble breathing. Our PCP has urgent care hours on Saturday so we rushed to take her there. We cut the clothes she had worn to bed off of her because she was so swollen she was crying. I barely touched her with my nail and a substantial chunk of skin came off in my hand. There were small blisters forming on her shoulders. Her dad was going to carry her to the car, but she started screaming that it hurt to bad for him to touch her. By the time we got to the doctor, the small blisters had turned to large blisters. He gave her Demoral for pain and sent us directly to the hospital. When we got there, they were waiting with two guys to lift her out and lay her down so she wouldn't rip any more skin off...the blisters had run into each other to be giant blisters. Since Parkland has a phenomonal burn unit none of the other Dallas area hospitals are equipped to handle anything like this. Baylor gave her Morphine and arranged for an ambulance to transport her to Children's Medical Center until a bed opened up in the burn unit at Parkland. They gave her more Morphine in the ambulance and tied her to the gurney as securely as possible, but by the time we got there, a great portion of the skin had been ripped from her back. She was is ICU for 14 days living on feeding tubes, Morphine, and a variety of other IV fluids. Many of those days we didn't know if she would live or die. What they don't tell you about SJS/TEN is that only about 30% of the people who get it live, and of those that do, the majority are tragically disfigured by scarring. My daughter was lucky, if you can be lucky. The 51% of her body that is scarred doesn't include her face or eyes, and she didn't lose the use of any of her limbs. Unfortunately, being 16, it will be a long time before she recovers emotionally. As for taking legal action...you will find that it is extremely difficult to find anyone to testify against another doctor unless they have done something that is very apparent. We had a hard time even finding someone that would take the case. It was decided that we didn't have a case because the medical community felt that "occasionally everyone makes a mistake." Thanks for your concern and well wishes. She did feel amazingly better while she was on it. I hope you have better luck with it.


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URL: http://www.dr-bob.org/babble/20031010/msgs/267864.html