Posted by tired10mom on July 24, 2003, at 12:14:35
In reply to zonegran and bipolar II/nausea/fatigue, posted by River1924 on July 15, 2003, at 18:44:47
My daughter was on Zonegran (the miracle drug) for
just two weeks before she had an allergic reaction to it.
It is a sulfonamide. Her body burned from the inside
out with second degree burns over 51% of her body,
and her mucous members burned from her mouth all the way
through to her anus and vagina. We spent three weeks in
June in the Burn Intensive Care Unit, and now that she is
home, I am bathing my 16-year-old daugther, soaking off
bandages, applying ointments, and putting dressings back on.
She has massive scarring on her back, chest, arms, buttocks,
and stomach. We are waiting on a compression suit that she
will wear for 6-9 months, if not longer. Then we can consult
with a plastic surgeon for reconstructive surgery.Sometimes miracle drugs aren't all they're cracked up to be.
The thing that attracted my daughter to it was the weight loss
side effect since most of the other drugs cause weight gain.
The doctors and pharmacies tell you about the nausea, fatigue,
headaches, weight loss, drowsiness... You can live with those.
They don't tell you about Stevens-Johnson Syndrom or Toxic
Epidermal Necrolysis which are also know side effects. These are
the ones that will kill you. And your children.Please be careful. I don't want anyone to ever go through what
we've experienced. Especially since the meds she was on were
working well except for the weight. And imagine my surprise to
find out that in Texas, for mental health issues, a 16-year-old
can make decisions about their own welfare and sign for themselves.
poster:tired10mom
thread:241313
URL: http://www.dr-bob.org/babble/20030723/msgs/244875.html