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Re:depakote/med musings » Ritch

Posted by Chloe on February 7, 2002, at 18:26:14

In reply to Re:depakote/med musings » Chloe, posted by Ritch on February 6, 2002, at 23:49:10

\
> Yes, just about everything I have learned and discovered has been mostly by trial and error, no pdoc's genius has intervened to save the day in one fell swoop. It is actually easier just to get them to prescribe the meds (several of the "candidates") and just let you experiment and tinker with them and do your own self-adjusting and then just accurately tell them what is working with charts as necessary (my experience-just try to stay scientific as possible-change just one thing at a time, but feel free to make the changes relatively frequently). It sounds like you will probably have to stick with the 100mg x4 dosage, unless you are willing to make the jump to 300mg twice daily. I think you might find that to work quite well. When I was on higher doses, Neurontin 300mg bid + Depakote 125-250mg bid worked together seamlessly.

Hi Mitch,
I would like very much to go up on the neurontin, but I really think it adds to my scalp burning/pain. Just going up by 100 mgs seems to have a profound effect. Even splitting the 400 to BID, taking the full 200 in the am seems to make my scalp pain worse during the day. I wonder if putting too much med (in me) at one time, ie too dramatic a blood level increase causes the scalp thing. I am really trying to figure this out...So for now, I am thinking I will just leave my neurontin the way it is and WAIT...and hope the pain gets better. But so far it's getting worse.

> If you know *for sure* that the amitripytline is helping your neuropathic scalp pain-why not count it as an "in med"? If you are starting to get smoothed out by the Dep. you very possibly could double up the amitrip. to 20mg at bedtime and sleep better as well as reduce the pain probs. without any destabilization.

Well I wish I knew *for sure*! But it really did calm things down at 20 mgs. But ami really does seem to increase my rage and cycling episodes. I just have to decide if it's worth experimenting with my stability to decrease the scalp discomfort...I thinking I may give it a whirl tonight. I will see how brave I feel around bedtime!


> Well the flax oil *does* seem to be helping some. But it is causing some GI discomfort. I tried Lorraine's suggestion of sublingual B-complex liquid and strangely after about an hour after taking it I got very relaxed and calmed. I thought I would kind of *wired* on it but didn't. The B-12 was definite megadose.

I concur that flax seed oil is harder on the gut than the fish oil. I never noticed any change with fish oil. But with flax seed, I find it has some laxative properties (though not always a bad thing with some of my meds!)
I had a nutritionist tell me to never take B vitamins before bed. That they can be "energizing." I am so glad you experienced a calm and *cool* feeling. But do be careful with megadoses. Our bodies are under alot of stress as it is with our emotional chemistry and the meds we throw on top of it!

Thanks so much, Mitch
Chloe



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