Posted by Terry on February 24, 1999, at 22:16:19
In reply to Re: dealing with this condition, posted by bigbertha on February 24, 1999, at 17:41:44
BB -- I agree 100%! I can't believe the audacity of some health care professionals who slap a diagnosis on you or your child and then provide no resources or information! It's maddening! The same thing happened to me when my son was diagnosed with PDD/NOS. Thank God I found some resources and got some help. Good luck, Steve. Sounds like you have your work cut out for you, but don't give up hope. Terry
> Steve-
> Happy to help! But I think you need some options:
>
> 1. That physician is a jerk if he isn't any more
> responsive to your concerns. Unless this
> doc is THE world-expert, think about getting
> another opinion/physician.
>
> 2. You may want to contact NIH neurologists to
> see if you live close to a university/research
> facility that is/has conducted studies on pachygyria.
>
> Don't let anyone "buffalo" you and try to make you
> feel stupid. Medical treatment can be complex and
> requires ALL parties in the equation. Which
> is why I really love my shrink - he says he learns
> so much from his patients!
>
> Courage Steve! You and your family are in my prayers.
> bb
poster:Terry
thread:3190
URL: http://www.dr-bob.org/babble/19990201/msgs/3214.html