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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 3 of 3. This is the beginning of the thread.
Posted by STEVE on February 24, 1999, at 9:58:57
MY FAMILY AND I WANT TO THANK YOU.
THE INFORMATION U GAVE US IS MORE THAN ANY DOCTOR COULD.GOD BLESS YOU AND THANKS AGAIN!
IT'S BECAUSE OF PEOPLE LIKE YOU THAT MAKES LIFE WORTH LIVING FOR !!!
.
Posted by bigbertha on February 24, 1999, at 17:41:44
In reply to BIG BERTHA THANKS, posted by STEVE on February 24, 1999, at 9:58:57
Steve-
Happy to help! But I think you need some options:1. That physician is a jerk if he isn't any more
responsive to your concerns. Unless this
doc is THE world-expert, think about getting
another opinion/physician.2. You may want to contact NIH neurologists to
see if you live close to a university/research
facility that is/has conducted studies on pachygyria.
Don't let anyone "buffalo" you and try to make you
feel stupid. Medical treatment can be complex and
requires ALL parties in the equation. Which
is why I really love my shrink - he says he learns
so much from his patients!Courage Steve! You and your family are in my prayers.
bb
Posted by Terry on February 24, 1999, at 22:16:19
In reply to Re: dealing with this condition, posted by bigbertha on February 24, 1999, at 17:41:44
BB -- I agree 100%! I can't believe the audacity of some health care professionals who slap a diagnosis on you or your child and then provide no resources or information! It's maddening! The same thing happened to me when my son was diagnosed with PDD/NOS. Thank God I found some resources and got some help. Good luck, Steve. Sounds like you have your work cut out for you, but don't give up hope. Terry
> Steve-
> Happy to help! But I think you need some options:
>
> 1. That physician is a jerk if he isn't any more
> responsive to your concerns. Unless this
> doc is THE world-expert, think about getting
> another opinion/physician.
>
> 2. You may want to contact NIH neurologists to
> see if you live close to a university/research
> facility that is/has conducted studies on pachygyria.
>
> Don't let anyone "buffalo" you and try to make you
> feel stupid. Medical treatment can be complex and
> requires ALL parties in the equation. Which
> is why I really love my shrink - he says he learns
> so much from his patients!
>
> Courage Steve! You and your family are in my prayers.
> bb
This is the end of the thread.
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