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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 18 of 18. This is the beginning of the thread.
Posted by Frustratedmama on June 20, 2009, at 8:45:09
Hi all,
Scott mentioned to post here so I am posting.... Just wanted to say that I am in bad space- losing it at home- not sure I can make it! SOmetimes I wonder why I was blessed with a child that has to endure living with me and my rages..... Why do we have to suffer like this? Is there anyway to stop the madness? I have been in a downward spiral for years now! No ups, no releifs, just slowly creeping downward and now at the bottom of the barrell. Unfortunately for me I am still in reality (wish I wasn't). Why can't I get releif? If this is bipolar where the hell is the other pole? I have been "south of the equator and am in Antartica right now with nothing north of the equator in the last 7 years".....
Posted by SLS on June 20, 2009, at 14:31:26
In reply to New to this board....., posted by Frustratedmama on June 20, 2009, at 8:45:09
Slow here today...
:-)
- Scott
Posted by Phillipa on June 20, 2009, at 21:54:31
In reply to Re: New to this board....., posted by SLS on June 20, 2009, at 14:31:26
Just got here yes it's slow give it time. Okay? Love Phillipa
Posted by SLS on June 22, 2009, at 5:51:37
In reply to New to this board....., posted by Frustratedmama on June 20, 2009, at 8:45:09
I'm sorry that no one has replied to your post. It is hard to account for posting behaviors. Don't feel too bad, though. For some odd reason, I generally don't attract that many follow up posts myself, except for people who want to flame me. :-)
I hate having to yell (as I did in the subject line), but you gotta do what you gotta do.
How are things going with you?
I have had a few not-so-good days. One of the drugs that I have been taking has been making me feel worse rather than better. I stopped taking it yesterday, but it has a long half-life, so I might not be rid of its effects for a few days yet.
Yesterday was kind of weird. My family got together to begin sorting out the things in my deceased grandmother's house to take with them and decided who got what. My nephew came back from Israel. It was good to see him after so long. My grandmother had accrued quite a collection of family pictures. I digitized most of them using my scanner. We have yet to divvy them up. It's funny. I am in the worst position financially, yet I am taking the fewest things. Even if it were my way to be so materialistic, I have no place to put things in an already cluttered apartment.
- Scott
Posted by Frustratedmama on June 22, 2009, at 21:16:14
In reply to Re: New to this board..... REACHING OUT!, posted by SLS on June 22, 2009, at 5:51:37
Hey Scott,
Wish things were going better for you! Thanks for responding to me (again) :) I hope that tomorrow is a better day for you (family things are always so HARD for me!) I am having a better day today- ditched the cytomel (side effects were causing problems) and the new med (gabapentin) is leaving me in a much better state of mind! Now for it to KEEP working; right?! I hear you about the financial situation- it is so hard these days- I am struggling too (in way over my head with debt to say the least!) It was really nice to see a post on here so thanks and I hope that you have a great day tomorrow! Take Care! FM (actually a little less frustrated mama today) lolPS: Material things never matter anyway; pictures are the best - so I am glad you were able to scan them :) Hope they were good memories!
Posted by Phillipa on June 22, 2009, at 22:22:47
In reply to Re: New to this board..... REACHING OUT!, posted by Frustratedmama on June 22, 2009, at 21:16:14
Hi guys both of you just wanted to say that I care and your're both sweeties!!!! Phillipa
Posted by Frustratedmama on June 23, 2009, at 14:41:52
In reply to Re: New to this board..... REACHING OUT!, posted by Phillipa on June 22, 2009, at 22:22:47
Thanks Phillipa!!!!!
You are ALWAYS so supportive! Got your babblemail :) will post more later. Take care and HUGS today!
FM
Posted by SLS on June 24, 2009, at 5:35:39
In reply to Re: New to this board..... REACHING OUT!, posted by Frustratedmama on June 22, 2009, at 21:16:14
Hi FM
Too bad that I had my name attached to this thread. My threads don't last very long.
:-(
> Hey Scott, > Wish things were going better for you! Thanks for responding to me (again) :) I hope that tomorrow is a better day for you (family things are always so HARD for me!) I am having a better day today- ditched the cytomel (side effects were causing problems) and the new med (gabapentin) is leaving me in a much better state of mind!
That might be a sign that you have some involvement of the temporal lobe or amygdala in a bipolar type thing. The bottom line is that we can sit here as arm chair biological psychiatrists and THINK we understand these things well enough to say such things, but we really don't. We really don't know what causes or cures Major Depressive Disorder (MDD) or Bipolar Disorder (BD). Neurotransmitters alone are too simplistic a notion to stop there in building an accurate model as to what's going on.
> Now for it to KEEP working; right?!
I hope it does. It is a different drug from Lamictal. It doesn't have a reputation for pooping-out. Nor does it have a reputation for working as well as it is for you. You are not unique, of course. Maybe the drug fell out of favor with psychiatrists for reasons that were invalid. Good luck to you on that.
> I hear you about the financial situation- it is so hard these days- I am struggling too (in way over my head with debt to say the least!) It was really nice to see a post on here so thanks and I hope that you have a great day tomorrow! Take Care! FM (actually a little less frustrated mama today) lol > > PS: Material things never matter anyway; pictures are the best - so I am glad you were able to scan them :) Hope they were good memories!
Yup.
Thanks.
- Scott
Posted by Frustratedmama on June 24, 2009, at 16:32:23
In reply to Re: New to this board.....I'M THE KISS OF DEATH » Frustratedmama, posted by SLS on June 24, 2009, at 5:35:39
Hey SlS!
Just wanted to say that I am very glad you replied to my post! You and a few others are all very good to me! SO, please respond anytime!As far as the gabapentin- well, I was feeling a bit too spacy to work so I went down on dose yesterday (bad idea) it didn't work as well so i went back up on dose to what worked on Monday- to no avail- no helpful effects- I LOST IT at work today!!!!!! ARGH!!!!!! Ok- so maybe it will be better tomorrow right- I will keep at it to see if I can handle a higher dose tomorrow as I need to 'chill out some" right now!
The cognitive effects are a bit tough- I am having trouble typing, forgetting things (like walking into the store without my purse or forgetting why I walked into the kitchen.......)
But, if the mood can come back to calm I will deal with the spaciness- wish it would! I went from 0-100 in 3 seconds today with just a little bit of stress (fax not completed).
Ok- hope today was better for you than it was for me!
FM
Posted by SLS on June 25, 2009, at 8:07:21
In reply to SLS- You are definitely NOT the kiss of death! :) » SLS, posted by Frustratedmama on June 24, 2009, at 16:32:23
I'm not a big fan of Neurontin.
I think you would do better with Trileptal or Depakote. Trileptal + Lamictal might be ideal.
- Scott
> Hey SlS!
> Just wanted to say that I am very glad you replied to my post! You and a few others are all very good to me! SO, please respond anytime!
>
> As far as the gabapentin- well, I was feeling a bit too spacy to work so I went down on dose yesterday (bad idea) it didn't work as well so i went back up on dose to what worked on Monday- to no avail- no helpful effects- I LOST IT at work today!!!!!! ARGH!!!!!! Ok- so maybe it will be better tomorrow right- I will keep at it to see if I can handle a higher dose tomorrow as I need to 'chill out some" right now!
>
> The cognitive effects are a bit tough- I am having trouble typing, forgetting things (like walking into the store without my purse or forgetting why I walked into the kitchen.......)
>
> But, if the mood can come back to calm I will deal with the spaciness- wish it would! I went from 0-100 in 3 seconds today with just a little bit of stress (fax not completed).
>
> Ok- hope today was better for you than it was for me!
>
> FM
Posted by SLS on June 25, 2009, at 17:19:24
In reply to Re: SLS- You are definitely NOT the kiss of death! :) » Frustratedmama, posted by SLS on June 25, 2009, at 8:07:21
> I'm not a big fan of Neurontin.
>
> I think you would do better with Trileptal or Depakote. Trileptal + Lamictal might be ideal.
Also, I know a young woman with a hypomanic mixed-state for whom Topamax monotherapy works miracles.You have many alternatives left to choose from. I am optimistic for you.
- Scott
Posted by Frustratedmama on June 25, 2009, at 17:37:31
In reply to Re: SLS- You are definitely NOT the kiss of death! :), posted by SLS on June 25, 2009, at 17:19:24
Thanks Scott,
I tried topomax but it worsened my depression (of course I wasn't on an AD at the time....)
Trileptal gave me headaches- although gabapentin is too right now!
Argh- so frustrating isn't it? I actually had a better day today- wish my headache would go away and I could type better but hey, can't complain in comparison to yesterday.....
I think I probably need to use an AD WITH a mood stabilizer (even if it is gabapentin). Unfortuantely we are doing one thing at a time to know what each med will do for me- However, that may be a problem since the mood stabilizers don't really help the depression..... Could be that I just needed to use an AD with the topomax- but instead the topomax was dropped. At this point, I would like to see what will happen with the gabapentin- will the helpful effects remain wtihout the side effects? IF so then GREAT!- if not then I want to try combinging with an AD. What do you think? Why does Trileptal cause headaches and how do you counter them? I would be interested in trying it again! Is it good for depression? I finally realized this must be a rapid cycling mixed bipolar ll disorder- does that exist? I think I cycle from mixed to depressed...... no breaks or normal for several years! Ok, enough rambling for now- ttyl
FM
Posted by Kath on June 25, 2009, at 20:06:30
In reply to New to this board....., posted by Frustratedmama on June 20, 2009, at 8:45:09
Hi & welcome.
I am so sorry about your pain. I wish there were some way I could help you.
I am really tired these days so I can't be much support, but please know that I'm glad you're reaching out.
((((you))))
hugs, Kath
Posted by Frustratedmama on June 25, 2009, at 20:19:35
In reply to Re: New to this board..... » Frustratedmama, posted by Kath on June 25, 2009, at 20:06:30
Thanks Kath!!!!
Posted by Kath on June 25, 2009, at 21:01:45
In reply to Re: New to this board....., posted by Frustratedmama on June 25, 2009, at 20:19:35
> Thanks Kath!!!!
~ ~ yer welcome.
Hopefully I'll soon have the mental or emotional energy to read this "thread".
:-))) Kath
The one post I did read near the first sounded like you were feeling a bit better. I hope that is still happening.
Posted by Kath on June 25, 2009, at 21:02:42
In reply to Re: New to this board..... REACHING OUT!, posted by SLS on June 22, 2009, at 5:51:37
Just a quick "I like ya a lot" post for you.
((((((you)))))))))
xoxo Kath
Posted by Bobby on July 3, 2009, at 0:32:08
In reply to Re: New to this board.....I'M THE KISS OF DEATH » Frustratedmama, posted by SLS on June 24, 2009, at 5:35:39
It's not like that at all--I would hope you'd know that right away! It's just like--if Albert Einstein posted about physics-----what would/could you say to him that he's not already intimate with. Perhaps, "Well, the weather was nice today Mr. Einstein." I'll wager lots(maybe everyone) reads your posts---but has nothing meaningful(To themselves) to say. It's happened to me regarding meds----you're knowledge is so advanced that all I could muster would be,"It shore did make me feel reel gud!" Hang in there. I don't get here as often as I use to--for whatever reasons---maybe I'm just feeling so good that I want to spend all of my free time away? Ciao....
Posted by SLS on July 3, 2009, at 11:54:10
In reply to .I'M THE KISS OF DEATH » SLS, posted by Bobby on July 3, 2009, at 0:32:08
Thanks, Bobby. Your post really helps.
- Scott> It's not like that at all--I would hope you'd know that right away! It's just like--if Albert Einstein posted about physics-----what would/could you say to him that he's not already intimate with. Perhaps, "Well, the weather was nice today Mr. Einstein." I'll wager lots(maybe everyone) reads your posts---but has nothing meaningful(To themselves) to say. It's happened to me regarding meds----you're knowledge is so advanced that all I could muster would be,"It shore did make me feel reel gud!" Hang in there. I don't get here as often as I use to--for whatever reasons---maybe I'm just feeling so good that I want to spend all of my free time away? Ciao....
This is the end of the thread.
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