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Dr. Bob is Robert Hsiung, MD,
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Posted by SLS on April 12, 2015, at 9:16:26
In reply to so what's next?, posted by b2chica on April 11, 2015, at 0:31:30
Posted by Horse on April 12, 2015, at 11:14:09
In reply to so what's next?, posted by b2chica on April 11, 2015, at 0:31:30
b2c when I first tried lamictal, I had an odd reaction much like you've described...an odd tightness in my chest (hard to describe but felt swollen? Inflamed? Anyways, unique. Breathing more rapid...pretty darn intolerable.
However, lamictal has been a life changer! I tried again after some time, and that wierd, ramping up sensation was gone :)
I've settled at 200 mg nightly. Never had anything touch my rapid cycling until now. Give it another try.
Posted by baseball55 on April 12, 2015, at 19:26:19
In reply to Re: so what's next?, posted by Lamdage22 on April 12, 2015, at 6:06:29
> Because i cant just stop taking them.
>
>But why not? If they don't work and you hate them?
Posted by 10derheart on April 12, 2015, at 23:11:42
In reply to Re: Beware of false doctors-tehykehychanzonme » Lou Pilder, posted by herpills on April 11, 2015, at 20:43:54
Posted by Lamdage22 on April 13, 2015, at 2:49:20
In reply to Re: so what's next? » Lamdage22, posted by baseball55 on April 12, 2015, at 19:26:19
> > Because i cant just stop taking them.
> >
> >
>
> But why not? If they don't work and you hate them?Because the brain adapts to them.
Posted by Lamdage22 on April 13, 2015, at 4:35:33
In reply to Re: so what's next?, posted by Lamdage22 on April 13, 2015, at 2:49:20
To put it mildly.
Psychosis during withdrawal is worse than the psychosis they wanted to treat with These drugs to begin with.
Doesnt that make you think?
I was still on a shitload of AAPs but psychotic. Worse than when i didnt take any drugs.
That can tell you that they "work". It can also tell you that they are addicting and NO good and actually DONT work. At least not in the Long term.
What makes you think you are are right and i am wrong?
I estimate that withdrawal will take 3 years. I have this rule that i Keep 3 months time in between reductions of AAPs. I reduce by either 100mg Seroquel or by 2.5 mg Zyprexa.
Posted by b2chica on April 13, 2015, at 13:23:34
In reply to Lamictal » b2chica, posted by Horse on April 12, 2015, at 11:14:09
could some of my 'odd' reactions to meds be psychosomatic? i'm sure some could... i have enough other psychological issues and no one really knows how the brain works so it is always a possibility after all, that's also why we get the placebo effect right?
almost all the symptoms i could live with except (and i mean this literally) i could not live with the swelling in my nasal passages/throat back of tongue). it was constricting my throat and it was getting worse. and it was my T's suggestion that it was a SJS reaction not mine... pdoc never said either way.
now, with that in mind. i have had a similar reaction to zyprexa once when a doc increased too quickly, i had my tongue swell.
plus since i have asthma, i'm sure that didn't help much.
but quite frankly for folks to say just 'get over it' and try it again, is slightly like those that have told me similar about my depression and a little insulting. then again, i have a lot of apathy these days, and quite frankly just don't care after 2min.However,
with all this said, i am under care of a pdoc. SHE is the one dictating this and much less flexible than my last doc. i am fairly sure that if i was allowed to get back on my adderall it would make a huge difference and probably just the bump i need. in fact i have been feeling better and think it may be the ONLY bump i need. however, she has not agreed to that yet. last week she wasn't sure where to go next. so i was just seeing which direction others may suggest.
pretty much everything people suggested i've been on before and has either not worked or pooped out.Except Zyprexa mentioned the perphenazine. I think i will mention this to her (AGAIN) and see what she thinks.
Thing is, it seems my mood is better (only slightly underwater) but my energy is still in the toilet. no motivation, don't want to do anything, no goals...etc.so i think next appt i will suggest either:
perphenazine and adderall combo or
try TCA, except i'm still on pristiq 50mg and i assume i may have to go off that which more weeks lost...anyway....
thanks.
i'll maybe post again if something does end up working. i've kinda lost hope but also don't really care right now. i have no job to worry about, no hobby, and i have amazon prime and all the instant videos i need. not to mention we just got new pillows.i'm set.
who needs to get out of the house anyway.b
Posted by Zyprexa on April 14, 2015, at 0:44:32
In reply to Re: Lamictal, posted by b2chica on April 13, 2015, at 13:23:34
You have been sounding much better since the short time you were on zyprexa. Thats why I think a little bit now and then might help.
Posted by b2chica on April 14, 2015, at 11:53:27
In reply to Re: Lamictal » b2chica, posted by Zyprexa on April 14, 2015, at 0:44:32
yes, zyprexa has always been my 'go to' med. i would usually go on it once or twice a year for a couple weeks sometimes a month and it would be good.
back in the days of my old pdoc things were a little quicker and more efficient...i guess i'm still getting used to this pdocs style. she's Very cautious (which isn't a bad thing) but she just waits forever... though most of it makes since, part of me can't help but think, she just doenst know what move to make next.
when i'm good, i'm great.... but when i'm not, its tricky. but i had seen my old pdoc for about 10 years and he knew how i reacted to things and he was quite brilliant as well.i am much better now... i just feel like i just need a slight bump to get me over this next hill. to increase energy and slight mood lift... i guess thats why i really think adderall is just the thing. at least to try.
if pdoc doesn't suggest anything i may just try it in really small dose to see if it helps.thanks Z.
-b2
Posted by Lamdage22 on April 14, 2015, at 12:16:17
In reply to Re: Lamictal, posted by b2chica on April 14, 2015, at 11:53:27
I would be careful with that
Posted by stan_the_man70 on April 14, 2015, at 12:54:16
In reply to Re: Lamictal, posted by b2chica on April 14, 2015, at 11:53:27
you go on and off zyprexa a few times a year?
ru serious?
Posted by phidippus on April 14, 2015, at 14:35:01
In reply to Re: Lamictal, posted by b2chica on April 14, 2015, at 11:53:27
What exactly do you struggle with?
Mania?
Depression?
Anxiety?
Eric
Posted by Horse on April 18, 2015, at 16:36:31
In reply to Re: Lamictal, posted by b2chica on April 13, 2015, at 13:23:34
No insult intended. Good luck.
Posted by b2chica on April 21, 2015, at 13:39:48
In reply to Re: Lamictal » b2chica, posted by Horse on April 18, 2015, at 16:36:31
no worries.
i'm just miserable and frustrated as H$LL.
saw her last week and she wanted to 'wait' one more week... to make sure the lamictal was completely out of my system.
in the mean time i am exhausted or just lethargic all day except from about 4:00-7:00.
i have no desire for anything... nothing. i've even lost desire to watch tv/movies. don't leave the house, (unless i have too-grocery or doc appt).
hate taking showers... average 1-2 a week.
erics last question... yes, yes and yes.
right now i am in the depressive/dysthymic phase. when i have mania it is very dysphoric. inward anger, suicidal ideation/obsession. some illusions (visual and auditory).
the depressive phase is just a realm of nothingness.
no energy, no appetite (yet i binge on crap once and a while just for something to do... or some strange hope of feeling better)
no passion, no desire to do anything (long term or short term goals). don't even want to leave the house.
i just want to sleep. or stare at the wall.
i'm sad, but not enough to cry, just enough to not be able to smile.anxiety. yes. though not terribly bad. usually starts about 10-11am and waves throughout the day.
*****************
don't bother suggesting meds. i'm tired of listing the endless list of meds I've been on. some have worked great than pooped out, some didn't work at all and some just had terrible side effects that effected daily function and could not stay on them.and it doesn't seem to matter. cuz even if i suggest things to her, she has some reason why she doesn't want to try that... then we 'wait' another week...
i'm just tired.
tired of it all. the wait, the trial, the waiting, the failing, the new trial...
i miss my old pdoc....:(
Posted by ClearSkies on April 21, 2015, at 16:02:39
In reply to Re: Lamictal, posted by b2chica on April 21, 2015, at 13:39:48
I'm sorry, B2. I am struggling with the pdoc I have at the moment, and my alternative treatments are, well, stupefying. New doctor appointments are scheduled but I am in the same state of lethargy.
Anxiety
Depression
Ideation
I stay in my pj's for most the day.
I found it's easier to take a bath instead of shower. Kind of.
Posted by Lamdage22 on April 22, 2015, at 5:46:34
In reply to Re: Lamictal, posted by b2chica on April 21, 2015, at 13:39:48
> no worries.
> i'm just miserable and frustrated as H$LL.
> saw her last week and she wanted to 'wait' one more week... to make sure the lamictal was completely out of my system.
> in the mean time i am exhausted or just lethargic all day except from about 4:00-7:00.
> i have no desire for anything... nothing. i've even lost desire to watch tv/movies. don't leave the house, (unless i have too-grocery or doc appt).
> hate taking showers... average 1-2 a week.
>
>
> erics last question... yes, yes and yes.
> right now i am in the depressive/dysthymic phase. when i have mania it is very dysphoric. inward anger, suicidal ideation/obsession. some illusions (visual and auditory).
> the depressive phase is just a realm of nothingness.
> no energy, no appetite (yet i binge on crap once and a while just for something to do... or some strange hope of feeling better)
> no passion, no desire to do anything (long term or short term goals). don't even want to leave the house.
> i just want to sleep. or stare at the wall.
> i'm sad, but not enough to cry, just enough to not be able to smile.
>
> anxiety. yes. though not terribly bad. usually starts about 10-11am and waves throughout the day.
>
>
> *****************
> don't bother suggesting meds. i'm tired of listing the endless list of meds I've been on. some have worked great than pooped out, some didn't work at all and some just had terrible side effects that effected daily function and could not stay on them.
>
> and it doesn't seem to matter. cuz even if i suggest things to her, she has some reason why she doesn't want to try that... then we 'wait' another week...
>
> i'm just tired.
> tired of it all. the wait, the trial, the waiting, the failing, the new trial...
> i miss my old pdoc....
>
> :(
>
>
>
>Stop trialling things that are unlikely to help.
Can you get more social support? Any kind?
Posted by b2chica on April 22, 2015, at 9:29:20
In reply to Re: Lamictal » b2chica, posted by ClearSkies on April 21, 2015, at 16:02:39
hear ya on the pi's. i have yoga pants (black) that i wear pretty much 24/7. i sleep in these along with comfy top and just wake and continue. i see no need to change. at least until i smell...bad. then i change...
i'm truly sorry you are suffering similarly.
i wish you well soon.
b2> I'm sorry, B2. I am struggling with the pdoc I have at the moment, and my alternative treatments are, well, stupefying. New doctor appointments are scheduled but I am in the same state of lethargy.
> Anxiety
> Depression
> Ideation
> I stay in my pj's for most the day.
> I found it's easier to take a bath instead of shower. Kind of.
Posted by b2chica on April 22, 2015, at 9:35:21
In reply to Re: Lamictal, posted by Lamdage22 on April 22, 2015, at 5:46:34
>
> Stop trialling things that are unlikely to help.
>
> Can you get more social support? Any kind?
>i'm confused. how will i know if something is unlikely to help until i try them. also, as i said previously, this pdoc isn't that much on taking my advice/suggestions.
mostly she doesn't think outside the box much. which is typically where i've found solutions before (old pdoc).more social support? how.
i have one pdoc, one T, and one best friend (who is a guy which my husband is terribly jealous of and i can rarely see)...
other than that how?
i also have no desire what so ever to leave the house...nor do i feel like being around people... i don't think that meshes well with making new friends.
so...not now.if i sound argumentative i apologize. maybe i shouldn't have even responded. but appreciate your responses. and advice.
i guess i'm just not in a good enough place to even respond online. apologies.
b2
Posted by Lamdage22 on April 22, 2015, at 10:12:58
In reply to Re: Lamictal, posted by b2chica on April 22, 2015, at 9:35:21
Hm yeah the "how" is problematic. I will live in an assisted dorm..
I mean stuff like that with social support. Arent there non-profit organizations for mentally ill where you live?
Maybe someone could come to your place twice a week?
Posted by Lamdage22 on April 22, 2015, at 10:18:25
In reply to Re: Lamictal, posted by Lamdage22 on April 22, 2015, at 10:12:58
It isnt all meds is what i am trying to say.
Posted by Lamdage22 on April 22, 2015, at 10:27:33
In reply to Re: Lamictal, posted by Lamdage22 on April 22, 2015, at 10:18:25
You shouldnt be trialling meds as your only attempt to escape your plight.
It is very rate that a med is the solution to everything. With current meds? Very unlikely.
If you take action beyond meds you would be less frustrated if a trial fails.
Posted by b2chica on April 29, 2015, at 12:11:57
In reply to Re: Lamictal, posted by Lamdage22 on April 22, 2015, at 10:27:33
Hey Lamdage,
one of the great things i loved about my old pdoc is that he was very holistic. He taught me exercise, diet, good sleep, sleep habits, etc are all part of recovery.right now the adderall is helping me to be a little more active in the a.m., but once it wears off i am both physically tired and mentally tired and have no energy due to the depression to exercise.
the adderall is also helping my sleep. i am getting much better 'rested' sleep. i am not waking periodically or restless sleep anymore.
in the morning i am not hungry but once the adderall kicks in i can eat a good breakfast (about 9:30 or so). in the evening i eat for crap.
i remember him telling me it was important to keep blood sugar level throughout the day. but in the afternoon the last thing i want is to eat, or fix anything. so its hard.
i'm getting there , its just terribly slow..i'm posting more below.
Posted by Lamdage22 on May 7, 2015, at 1:26:39
In reply to Re: Lamictal, posted by b2chica on April 29, 2015, at 12:11:57
I dont have any motivation to exercise either.
Posted by stan_the_man70 on May 7, 2015, at 1:34:07
In reply to Re: Lamictal, posted by Lamdage22 on May 7, 2015, at 1:26:39
if u have a personal trainer its very easy to exercise
Posted by Lamdage22 on May 14, 2015, at 14:07:31
In reply to Re: Lamictal, posted by b2chica on April 29, 2015, at 12:11:57
I would say next is:
Try to get as much social support as possible and focus on that instead of meds.
This is the end of the thread.
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Dr. Bob is Robert Hsiung, MD,
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