![[dr. bob]](/dr-bob-sm.gif)
Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 14 of 14. This is the beginning of the thread.
Posted by Jeroen on September 19, 2008, at 11:59:14
i have tardive psychosis and dyskinesia
tardive psychosis = lamictal 25 mg (aftr 1 week)
tardive dyskinesia = geodon 20 mg twice (after 3 weeks)as this was a result of neo nazi psychiatry of 2003
Posted by Jeroen on September 19, 2008, at 12:03:41
In reply to i have tardive psychosis and dyskinesia, posted by Jeroen on September 19, 2008, at 11:59:14
its a punishment from god
all these diseases are
Posted by Phillipa on September 19, 2008, at 12:39:39
In reply to Re: i have tardive psychosis and dyskinesia, posted by Jeroen on September 19, 2008, at 12:03:41
Jeroen did you stop your meds? I have to wonder why you're thinking this now? Love Phillipa
Posted by manic666 on September 19, 2008, at 12:44:51
In reply to i have tardive psychosis and dyskinesia, posted by Jeroen on September 19, 2008, at 11:59:14
who told you that my buddy. i used to eat benzoes like m an ms,an drink brandy like water. today i ordered a pint of soda water an blackcurrant ice slice of lemon,2 slices of orange an half a lime. now that is crazy,im scared that was normal . i want to be happy but normal no way. manic666
Posted by Jeroen on September 19, 2008, at 12:53:43
In reply to Re: i have tardive psychosis and dyskinesia, posted by manic666 on September 19, 2008, at 12:44:51
yes of course i take my meds, but im just very upset i just spoke with my doctor today and she wants me to stay on abilify
i wanna go on seroquel and lithium
ill try once more on monday
Posted by Jeroen on September 19, 2008, at 12:54:54
In reply to Re: i have tardive psychosis and dyskinesia, posted by Jeroen on September 19, 2008, at 12:53:43
hehe, things are going fine with u manic?
i think so :) from your post i can tell youre happy and living your life
Posted by yxibow on September 20, 2008, at 2:17:03
In reply to i have tardive psychosis and dyskinesia, posted by Jeroen on September 19, 2008, at 11:59:14
> i have tardive psychosis and dyskinesia
>
> tardive psychosis = lamictal 25 mg (aftr 1 week)
Tardive psychosis, a not yet completely proven disorder of dopamine hypersensitivity after years of treatment with antipsychotics just can't be attached to a week's worth of Lamictal -- its not affecting those receptors in any appreciable way at all, it is not an antipsychotic.
You may have some extremely rare reaction that could have changed something in your neurotransmitters for some temporary period of time still to be determined, but its hard to see after one week that this occurred.
Yet, I did reveal in a previous thread a very rare reaction to one month of Zyprexa which probably has resulted in some type of Tardive Dystonia in my arms and legs -- muscle tightness -- that is not Tardive Dyskinesia and has more treatments but unfortunately not always remitted :(
> tardive dyskinesia = geodon 20 mg twice (after 3 weeks)
Tardive here again is late in treatment -- that is why it is called tardive. You may have developed some rare neurological disorder that appears to be TD, but it could be some collection of tics (yes, this is projecting, I developed an oral tic after... 6 years of Seroquel... thats a long time and I am very sensitive to some things and I do worry about TD, but I can't occupy my life right now -- I don't know, its too complicated to explain and not relevant to this discussion.)The only way I can think it can happen in this fashion is because you have been on a whole set of antipsychotics from what I have gathered, over a period of time. Each one, can, not always, be cumulative, and especially if you used to take typicals instead of atypicals, you might have a larger chance. But that could be coincidental to the taking of Geodon for that short period of time -- something could have developed on a typical which carries a much higher risk than atypicals (5%).
I respect your observations and your pain and suffering that you have gone through, and if you think that it is TD, you can call it so. I would really have a neurologists' opinion. And, yes, I did see the video posted by you -- I can't say, I am not a neurologist either.
> as this was a result of neo nazi psychiatry of 2003
I would request as a person of the Jewish faith even though I am agnostic, that's irrelevant -- that "neo nazi" and nazi not be use lightly, even though you are probably rightfully mad at what has happened in your life. Too often Nazi this and that is used randomly and it can be offensive and sound Anti-Semitic.
-- best wishesJay
Posted by manic666 on September 21, 2008, at 8:56:17
In reply to Re: i have tardive psychosis and dyskinesia, posted by Jeroen on September 19, 2008, at 12:03:41
any way my borg brother, why does god want to punish you, what have you done to hang that one on ya.forget that one or its the brig for you my son.
Posted by Jeroen on September 21, 2008, at 14:03:44
In reply to Re: i have tardive psychosis and dyskinesia, posted by manic666 on September 21, 2008, at 8:56:17
i dont know, but a girl that i liked we were friends, she came and slept at my house, and we didnt make love, she was as close as my girlfriend
i still miss her from time to time, she doesnt want to speak ever again to me, i tryed calling her last week and that was her wish :(
Posted by Phillipa on September 21, 2008, at 19:00:38
In reply to Re: i have tardive psychosis and dyskinesia, posted by Jeroen on September 21, 2008, at 14:03:44
Jeroen I'm so sorry and believe it or not I do remember the story of your girlfriend it was sad. Love Phillipa
Posted by iladvocate on October 13, 2008, at 23:13:37
In reply to Re: i have tardive psychosis and dyskinesia » Jeroen, posted by Phillipa on September 21, 2008, at 19:00:38
I have been identified as having tardive psychosis. Its still not an official criteria but my psychopharmocologist has sent a tentative request for a consult by the neurologist Oliver Sacks for a consultation and if not another neurologist who is a researcher will field it. I did an entry on Wikipedia on it and my psychiatrist supports it. I am being treated with Zofran and it is highly effective. If someone has tardive dyskinesia and tardive psychosis, Clozaril won't worsen it. I already posted I am fully recovered with glycine "as good as any FDA approved anti-psychotic or better" according to my psychopharmocologist. As for tardive psychosis, Zofran is generally used for nauseau from chemotherapy but is off label for tardive dyskinesia and psychosis from Parkinsons' and as an adjunct for schizophrenia. Please let's stay factual and focus on what could be done instead of what went wrong. I don't say this out of lack of sympathy but because I have the most advanced form of tardive that is known, tardive myoclonus and respiratory convulsions and the Zofran helped it, 8 mg. 3 x a day. And the natural remedy rhodiola as identified by Dr. Richard Brown of Columbia University has been of great help as well but ask your psychiatrist first for interactions and no more than 2 pills a day as in raising dopamine it could bring on psychosis as Parkinsons's medications do and in raising serotonin it can bring on elation in dosages above two pills. Try GNC Herbal Supplement 340 mg. one pill at first, then raise it to two if needed. But remember I didn't find out about these treatments by accident. I advocated to get on them and I am advocating within the system to change it and I testified at Hillside Hopsital which first developed Clozaril in the United States and they are researching glutamate antagonists according to the director of psychiatry there. I do advocacy as a voluntarily position as board president of a non profit. We all want the proper treatment and it will be available. Let's look ahead and push forward instead of looking back. That's the best way.
Posted by yxibow on October 17, 2008, at 19:15:50
In reply to Re: i have tardive psychosis and dyskinesia, posted by iladvocate on October 13, 2008, at 23:13:37
> I have been identified as having tardive psychosis. Its still not an official criteria but my psychopharmocologist has sent a tentative request for a consult by the neurologist Oliver Sacks for a consultation and if not another neurologist who is a researcher will field it. I did an entry on Wikipedia on it and my psychiatrist supports it. I am being treated with Zofran and it is highly effective. If someone has tardive dyskinesia and tardive psychosis, Clozaril won't worsen it. I already posted I am fully recovered with glycine "as good as any FDA approved anti-psychotic or better" according to my psychopharmocologist. As for tardive psychosis, Zofran is generally used for nauseau from chemotherapy but is off label for tardive dyskinesia and psychosis from Parkinsons' and as an adjunct for schizophrenia. Please let's stay factual and focus on what could be done instead of what went wrong. I don't say this out of lack of sympathy but because I have the most advanced form of tardive that is known, tardive myoclonus and respiratory convulsions and the Zofran helped it, 8 mg. 3 x a day. And the natural remedy rhodiola as identified by Dr. Richard Brown of Columbia University has been of great help as well but ask your psychiatrist first for interactions and no more than 2 pills a day as in raising dopamine it could bring on psychosis as Parkinsons's medications do and in raising serotonin it can bring on elation in dosages above two pills. Try GNC Herbal Supplement 340 mg. one pill at first, then raise it to two if needed. But remember I didn't find out about these treatments by accident. I advocated to get on them and I am advocating within the system to change it and I testified at Hillside Hopsital which first developed Clozaril in the United States and they are researching glutamate antagonists according to the director of psychiatry there. I do advocacy as a voluntarily position as board president of a non profit. We all want the proper treatment and it will be available. Let's look ahead and push forward instead of looking back. That's the best way.
That's about the only thing I agree with -- living in the Here and Now. Living in the future though misses the present.
I am sure you are in a lot of pain, and I commend you for advocacy about your condition, but both treatments you mention are open label, very investigative options.
Furthermore, Tardive psychosis has not even been classified as a condition and there is, naturally so skepticism in the medical community about it.
If you happen to gain help from an agent, so much the better, but remember that this is your body and it isn't necessarily a sure fire thing.
The only treatment that was tested, and I'm not clear it was a double blind trial, for TD, was tetrabenazine, and it was a small trial at Baylor College.
Today it is now available as an orphan drug, and yes, it has been tried on TD -- but it carries a tremendous risk, one that it can develop Tardive symptoms itself although not nearly like Reserpine, but the other thing is that if it works, the patient can be left with not a temporary but a fairly permanent pseudoparkinsonism.
The other thing, and you're free to do it, but I wouldn't ever mention one doctor's name online, its violating your privacy.
Having said that, he's not without scrutiny and controversy himself.
I do hope you find what you're looking for -- the rare and not so rare results of neuroleptic treatment as I can attest, having some sort of unidentified stiffness tardive symptom, which varies, from taking Zyprexa for a month, and an oral tic from 6 years of Seroquel, are unfortunately a part of what neuroleptics can do.
I still take Seroquel and the idea is to get off it and the Valium I take, both which gave me a real sense of feeling different than I do now, is on my mind -- but there is not a lot I can do to shift things currently because it would reduce my functionality in life (this is a completely off label for an orphan disorder of no known etiology).
I guess the point I'm making is I look at research too, but that's what it is at the present unfortunately, unless you happen to get on the research track, which can help and hurt you, there's absolutely no guarantees, it hasn't been tested on 1000+ people.
So it is the Here and Now and living your life -- something that I still have to grapple with because its not one I recognize. Its something I often hide from because I remember, distantly, a quite a different person. The intelligence is there, its just trapped by memory loss and a complex of issues that are too hard to describe.
-- tidings
Jay
Posted by iladvocate on November 7, 2008, at 3:20:22
In reply to Re: i have tardive psychosis and dyskinesia » iladvocate, posted by yxibow on October 17, 2008, at 19:15:50
> > I have been identified as having tardive psychosis. Its still not an official criteria but my psychopharmocologist has sent a tentative request for a consult by the neurologist Oliver Sacks for a consultation and if not another neurologist who is a researcher will field it. I did an entry on Wikipedia on it and my psychiatrist supports it. I am being treated with Zofran and it is highly effective. If someone has tardive dyskinesia and tardive psychosis, Clozaril won't worsen it. I already posted I am fully recovered with glycine "as good as any FDA approved anti-psychotic or better" according to my psychopharmocologist. As for tardive psychosis, Zofran is generally used for nauseau from chemotherapy but is off label for tardive dyskinesia and psychosis from Parkinsons' and as an adjunct for schizophrenia. Please let's stay factual and focus on what could be done instead of what went wrong. I don't say this out of lack of sympathy but because I have the most advanced form of tardive that is known, tardive myoclonus and respiratory convulsions and the Zofran helped it, 8 mg. 3 x a day. And the natural remedy rhodiola as identified by Dr. Richard Brown of Columbia University has been of great help as well but ask your psychiatrist first for interactions and no more than 2 pills a day as in raising dopamine it could bring on psychosis as Parkinsons's medications do and in raising serotonin it can bring on elation in dosages above two pills. Try GNC Herbal Supplement 340 mg. one pill at first, then raise it to two if needed. But remember I didn't find out about these treatments by accident. I advocated to get on them and I am advocating within the system to change it and I testified at Hillside Hopsital which first developed Clozaril in the United States and they are researching glutamate antagonists according to the director of psychiatry there. I do advocacy as a voluntarily position as board president of a non profit. We all want the proper treatment and it will be available. Let's look ahead and push forward instead of looking back. That's the best way.
>
> That's about the only thing I agree with -- living in the Here and Now. Living in the future though misses the present.
>
> I am sure you are in a lot of pain, and I commend you for advocacy about your condition, but both treatments you mention are open label, very investigative options.
>
> Furthermore, Tardive psychosis has not even been classified as a condition and there is, naturally so skepticism in the medical community about it.
>
> If you happen to gain help from an agent, so much the better, but remember that this is your body and it isn't necessarily a sure fire thing.
>
> The only treatment that was tested, and I'm not clear it was a double blind trial, for TD, was tetrabenazine, and it was a small trial at Baylor College.
>
> Today it is now available as an orphan drug, and yes, it has been tried on TD -- but it carries a tremendous risk, one that it can develop Tardive symptoms itself although not nearly like Reserpine, but the other thing is that if it works, the patient can be left with not a temporary but a fairly permanent pseudoparkinsonism.
>
> The other thing, and you're free to do it, but I wouldn't ever mention one doctor's name online, its violating your privacy.
>
> Having said that, he's not without scrutiny and controversy himself.
>
> I do hope you find what you're looking for -- the rare and not so rare results of neuroleptic treatment as I can attest, having some sort of unidentified stiffness tardive symptom, which varies, from taking Zyprexa for a month, and an oral tic from 6 years of Seroquel, are unfortunately a part of what neuroleptics can do.
>
> I still take Seroquel and the idea is to get off it and the Valium I take, both which gave me a real sense of feeling different than I do now, is on my mind -- but there is not a lot I can do to shift things currently because it would reduce my functionality in life (this is a completely off label for an orphan disorder of no known etiology).
>
> I guess the point I'm making is I look at research too, but that's what it is at the present unfortunately, unless you happen to get on the research track, which can help and hurt you, there's absolutely no guarantees, it hasn't been tested on 1000+ people.
>
> So it is the Here and Now and living your life -- something that I still have to grapple with because its not one I recognize. Its something I often hide from because I remember, distantly, a quite a different person. The intelligence is there, its just trapped by memory loss and a complex of issues that are too hard to describe.
>
> -- tidings
>
> Jay
Actually what you are speaking about is akathesia a temporary movement disorder. What I have is tardive dyskinesia, in all its extreme variants to the point where I have respiratory convulsions and choking spasms from dysphagia and myoclonic (full body) spasms. It is so severe I am homebound. I require a home attendant. This is a very real risk that everyone must face though usually it doesn't advance to this point but its not unheard of. I could not tolerate Clozaril. If I took any other anti-psychotic it would worsen the tardive dyskinesia and as of now if I didn't take all the medications I did for tardive dyskinesia I would die. I had two near death experiences, one from choking spasms and one from tardive dystonic spasms in my back before I saw my neurologist. Glycine does not cause these long term effects (I already did a thread on that) and my recovery has been identified as "as good as any FDA approved anti-psychotics or better" by my psychopharmocologist. In 5 years of research on glycine there were no long term harmful effects. He also will be sending me to a research neurologist (Oliver Sacks was indeed contacted but not responded to) as regards the Zofran for tardive dyskinesia and what is being identified as tardive psychosis. Zofran is used for tardive dyskinesia in studies already and shown to be effective and for psychosis from Parkinson's. I can't name the providers involved as that's confidential but anyone who is a provider on this site can contact me and I'll confirm that all this information is factual. I can further say that as regards my recovery from the glycine, the rhodiola as a natural remedy for tardive dyskinesia and Zofran for tardive psychosis as a study criteria, I wrote a letter from the agency I am board president of to the director of the American Psychiatric Association with my psychopharmocologist co-signing today and we both expect responses. I testified at a major psychiatric hospital. The glutamate inhibitor antipsychotics will replace the standard dopaminergic agents but its a matter of getting them through the studies, tardive psychosis will take more research to confirm but Zofran is clearly helpful and I am at the forefront of advocacy. And my provider approves these postings and once the case studies are published links will be made available.
Posted by neuralbudhist on December 22, 2009, at 1:01:42
In reply to Research is Confirmed As Well as Testimony, posted by iladvocate on November 7, 2008, at 3:20:22
> > > I have been identified as having tardive psychosis. Its still not an official criteria but my psychopharmocologist has sent a tentative request for a consult by the neurologist Oliver Sacks for a consultation and if not another neurologist who is a researcher will field it. I did an entry on Wikipedia on it and my psychiatrist supports it. I am being treated with Zofran and it is highly effective. If someone has tardive dyskinesia and tardive psychosis, Clozaril won't worsen it. I already posted I am fully recovered with glycine "as good as any FDA approved anti-psychotic or better" according to my psychopharmocologist. As for tardive psychosis, Zofran is generally used for nauseau from chemotherapy but is off label for tardive dyskinesia and psychosis from Parkinsons' and as an adjunct for schizophrenia. Please let's stay factual and focus on what could be done instead of what went wrong. I don't say this out of lack of sympathy but because I have the most advanced form of tardive that is known, tardive myoclonus and respiratory convulsions and the Zofran helped it, 8 mg. 3 x a day. And the natural remedy rhodiola as identified by Dr. Richard Brown of Columbia University has been of great help as well but ask your psychiatrist first for interactions and no more than 2 pills a day as in raising dopamine it could bring on psychosis as Parkinsons's medications do and in raising serotonin it can bring on elation in dosages above two pills. Try GNC Herbal Supplement 340 mg. one pill at first, then raise it to two if needed. But remember I didn't find out about these treatments by accident. I advocated to get on them and I am advocating within the system to change it and I testified at Hillside Hopsital which first developed Clozaril in the United States and they are researching glutamate antagonists according to the director of psychiatry there. I do advocacy as a voluntarily position as board president of a non profit. We all want the proper treatment and it will be available. Let's look ahead and push forward instead of looking back. That's the best way.
> >
> > That's about the only thing I agree with -- living in the Here and Now. Living in the future though misses the present.
> >
> > I am sure you are in a lot of pain, and I commend you for advocacy about your condition, but both treatments you mention are open label, very investigative options.
> >
> > Furthermore, Tardive psychosis has not even been classified as a condition and there is, naturally so skepticism in the medical community about it.
> >
> > If you happen to gain help from an agent, so much the better, but remember that this is your body and it isn't necessarily a sure fire thing.
> >
> > The only treatment that was tested, and I'm not clear it was a double blind trial, for TD, was tetrabenazine, and it was a small trial at Baylor College.
> >
> > Today it is now available as an orphan drug, and yes, it has been tried on TD -- but it carries a tremendous risk, one that it can develop Tardive symptoms itself although not nearly like Reserpine, but the other thing is that if it works, the patient can be left with not a temporary but a fairly permanent pseudoparkinsonism.
> >
> > The other thing, and you're free to do it, but I wouldn't ever mention one doctor's name online, its violating your privacy.
> >
> > Having said that, he's not without scrutiny and controversy himself.
> >
> > I do hope you find what you're looking for -- the rare and not so rare results of neuroleptic treatment as I can attest, having some sort of unidentified stiffness tardive symptom, which varies, from taking Zyprexa for a month, and an oral tic from 6 years of Seroquel, are unfortunately a part of what neuroleptics can do.
> >
> > I still take Seroquel and the idea is to get off it and the Valium I take, both which gave me a real sense of feeling different than I do now, is on my mind -- but there is not a lot I can do to shift things currently because it would reduce my functionality in life (this is a completely off label for an orphan disorder of no known etiology).
> >
> > I guess the point I'm making is I look at research too, but that's what it is at the present unfortunately, unless you happen to get on the research track, which can help and hurt you, there's absolutely no guarantees, it hasn't been tested on 1000+ people.
> >
> > So it is the Here and Now and living your life -- something that I still have to grapple with because its not one I recognize. Its something I often hide from because I remember, distantly, a quite a different person. The intelligence is there, its just trapped by memory loss and a complex of issues that are too hard to describe.
> >
> > -- tidings
> >
> > Jay
> Actually what you are speaking about is akathesia a temporary movement disorder. What I have is tardive dyskinesia, in all its extreme variants to the point where I have respiratory convulsions and choking spasms from dysphagia and myoclonic (full body) spasms. It is so severe I am homebound. I require a home attendant. This is a very real risk that everyone must face though usually it doesn't advance to this point but its not unheard of. I could not tolerate Clozaril. If I took any other anti-psychotic it would worsen the tardive dyskinesia and as of now if I didn't take all the medications I did for tardive dyskinesia I would die. I had two near death experiences, one from choking spasms and one from tardive dystonic spasms in my back before I saw my neurologist. Glycine does not cause these long term effects (I already did a thread on that) and my recovery has been identified as "as good as any FDA approved anti-psychotics or better" by my psychopharmocologist. In 5 years of research on glycine there were no long term harmful effects. He also will be sending me to a research neurologist (Oliver Sacks was indeed contacted but not responded to) as regards the Zofran for tardive dyskinesia and what is being identified as tardive psychosis. Zofran is used for tardive dyskinesia in studies already and shown to be effective and for psychosis from Parkinson's. I can't name the providers involved as that's confidential but anyone who is a provider on this site can contact me and I'll confirm that all this information is factual. I can further say that as regards my recovery from the glycine, the rhodiola as a natural remedy for tardive dyskinesia and Zofran for tardive psychosis as a study criteria, I wrote a letter from the agency I am board president of to the director of the American Psychiatric Association with my psychopharmocologist co-signing today and we both expect responses. I testified at a major psychiatric hospital. The glutamate inhibitor antipsychotics will replace the standard dopaminergic agents but its a matter of getting them through the studies, tardive psychosis will take more research to confirm but Zofran is clearly helpful and I am at the forefront of advocacy. And my provider approves these postings and once the case studies are published links will be made available.
>
> I will post an update (same poster, different screen name). I have been officially clinically confirmed as meeting the criteria for tardive psychosis, tardive dysphrenia and tardive dysmentia. This was by a psychopharmocologist and movement disorders specialist who work in very standard clinical practice. Tardive dysphrenia is a very specific clinical criteria and one of the original researchers of the criteria itself (again the specifics are confidential information but could be confirmed with an administrator) was contacted. They have confirmed that the anti-convulsant Vimpat (otherwise in animal model for tardive dystonia) was useful in controlling dystonic spasms as well as tardive dysphrenia (a variant of tardive psychosis that is clinically specific). There will now be further discussions that will lead to a potential case study. As for the usage of Vimpat for tardive dystonia in general, being the first person to respond to this use much further research will be needed to determine how others respond to it.
As for how I acquired tardive dystonia it was from "Lamictal worsening a pre-existing Parkinsonian condition which in my case was focal dystonia" to quote my psychopharmocologist. Regardless there are sporadic cases of Lamictal causing tardive. Geodon, being an antipsychotic however, is more likely. As for what tardive psychosis is please remember that if a person goes off an anti-psychotic they will of course have a return in psychotic symptoms and this is not tardive psychosis. If a person has tardive dyskinesia Clozaril is still a workable option (all other antipsychotics will "worsen it while masking it" that's a quote as well). Research continues on these three neuropsychiatric aspects of tardive dyskinesia, tardive dysphrenia and my recovery has now been clinically confirmed as well as a new treatment modality (Vimpat) but being the first clinically confirmed case of tardive psychosis, tardive dysphrenia and tardive dysmentia as well as the first responder to Vimpat for tardive dystonia, all I can say is much further research lies ahead before we understand these until now under researched criteria. At this point the case study is being discused by a movement disorders specialist who is well known in the field but for confidentiality reasons his name can't be posted. However, when the case study is published, I will post wherever I have written permission to do so.
This is the end of the thread.
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