Posted by iladvocate on October 13, 2008, at 23:13:37
In reply to Re: i have tardive psychosis and dyskinesia » Jeroen, posted by Phillipa on September 21, 2008, at 19:00:38
I have been identified as having tardive psychosis. Its still not an official criteria but my psychopharmocologist has sent a tentative request for a consult by the neurologist Oliver Sacks for a consultation and if not another neurologist who is a researcher will field it. I did an entry on Wikipedia on it and my psychiatrist supports it. I am being treated with Zofran and it is highly effective. If someone has tardive dyskinesia and tardive psychosis, Clozaril won't worsen it. I already posted I am fully recovered with glycine "as good as any FDA approved anti-psychotic or better" according to my psychopharmocologist. As for tardive psychosis, Zofran is generally used for nauseau from chemotherapy but is off label for tardive dyskinesia and psychosis from Parkinsons' and as an adjunct for schizophrenia. Please let's stay factual and focus on what could be done instead of what went wrong. I don't say this out of lack of sympathy but because I have the most advanced form of tardive that is known, tardive myoclonus and respiratory convulsions and the Zofran helped it, 8 mg. 3 x a day. And the natural remedy rhodiola as identified by Dr. Richard Brown of Columbia University has been of great help as well but ask your psychiatrist first for interactions and no more than 2 pills a day as in raising dopamine it could bring on psychosis as Parkinsons's medications do and in raising serotonin it can bring on elation in dosages above two pills. Try GNC Herbal Supplement 340 mg. one pill at first, then raise it to two if needed. But remember I didn't find out about these treatments by accident. I advocated to get on them and I am advocating within the system to change it and I testified at Hillside Hopsital which first developed Clozaril in the United States and they are researching glutamate antagonists according to the director of psychiatry there. I do advocacy as a voluntarily position as board president of a non profit. We all want the proper treatment and it will be available. Let's look ahead and push forward instead of looking back. That's the best way.
poster:iladvocate
thread:852899
URL: http://www.dr-bob.org/babble/20081006/msgs/857331.html