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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 2 of 2. This is the beginning of the thread.
Posted by mmealltalk on July 20, 2006, at 18:01:41
Has anyone ever heard of a link between CVID and mental illness? Is there anyone out there who can direct me to a single peice of paper that even has the two listed on the same page? I dont mean to sound so negative, but I have tried to find a journal article that contains some data about bipolar disorder and CVID and i have gotten nowhere quickly. I am supposed to start getting these 3-4hr gamma globulin infusions every 3 weeks for the rest of my life to handle my 'poor'immune system, which technically is borderline and top immunologists wouldnt give me the infusions, but those my psydoc is affiliated with will, and are going to very soon if i dont stop them. And i want to stop them, but i wont if there really is a link as my psydoc claims to my emotional state. (I know there has to be some link b/c i trust my doc too, which is another problem with this scenario) Actually, i wont stop them if there is a relationship that is very strong that it out weighs getting infusions for the rest of my life. But at the moment i dont know what to do and i am getting scared. Any help or even guesses at where i can find help would be appreciated, i am desperate.
Posted by notfred on July 22, 2006, at 11:55:48
In reply to Common Variable Immunodeficiency CVID, posted by mmealltalk on July 20, 2006, at 18:01:41
A friend of mine died of XLA (a genetic disorder that effects production of gamma globulin), which is much like CVID. He refused to take gamma globulin, despite any small infection quickly landing him in the hospital. Unable to control/localize a simple infected wound on his hand (a small paper cut), this infecton spread throughout his body. After 2 weeks in the hospital where antibiotics were unable to control this systemic infection he was finally willing to take gamma globulin. It was too late as the infection had hit his CNS; he had constant seziures for the last 48 hrs. of his life.
I think if you are having problems with infections
due to CVID (or any problems due to CIVD) you need to be on gamma globulin. Period. A simple replacement of the immune system factors your body does not make enough of, so the immune system can
function normally. CVID does not turn up in the usual medical tests, it is only when a person presents with immune system problems that the proper tests are run to discover it. I am assuming that you have experienced problems assoc. with your immunodeficiency.
All persons with cronic medical conditions are at much greater risk for depression and anxiety. This is well known; I would call it common sense. My friend that died had been taking AD's for quite some time as the constant infections took their toll on his mood. Not to mention the stress they caused.I do not see the harm in trying gamma globulin; the risks do not seem great given that gamma globulin has been used for decades. The only way to know if it will work is to try it. If it does not work you can stop it.
nf
This is the end of the thread.
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