Posted by notfred on July 22, 2006, at 11:55:48
In reply to Common Variable Immunodeficiency CVID, posted by mmealltalk on July 20, 2006, at 18:01:41
A friend of mine died of XLA (a genetic disorder that effects production of gamma globulin), which is much like CVID. He refused to take gamma globulin, despite any small infection quickly landing him in the hospital. Unable to control/localize a simple infected wound on his hand (a small paper cut), this infecton spread throughout his body. After 2 weeks in the hospital where antibiotics were unable to control this systemic infection he was finally willing to take gamma globulin. It was too late as the infection had hit his CNS; he had constant seziures for the last 48 hrs. of his life.
I think if you are having problems with infections
due to CVID (or any problems due to CIVD) you need to be on gamma globulin. Period. A simple replacement of the immune system factors your body does not make enough of, so the immune system can
function normally. CVID does not turn up in the usual medical tests, it is only when a person presents with immune system problems that the proper tests are run to discover it. I am assuming that you have experienced problems assoc. with your immunodeficiency.
All persons with cronic medical conditions are at much greater risk for depression and anxiety. This is well known; I would call it common sense. My friend that died had been taking AD's for quite some time as the constant infections took their toll on his mood. Not to mention the stress they caused.I do not see the harm in trying gamma globulin; the risks do not seem great given that gamma globulin has been used for decades. The only way to know if it will work is to try it. If it does not work you can stop it.
nf
poster:notfred
thread:668712
URL: http://www.dr-bob.org/babble/20060717/msgs/669343.html