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Dr. Bob is Robert Hsiung, MD,
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Posted by mercedes on September 20, 2003, at 2:15:14
In reply to mercedes, how's it going?, posted by bookgurl99 on September 8, 2003, at 22:43:19
Hi Books,
It's been a long time since I've been to PB. One of my e-mail buddies let me know that you had written me. How am I doing? Not much better. On July 9th I had a really bad "attack" about 8am. It lasted a long time, then I slept or passed out. About 3 pm I called my doctor, and she refused to see me. She said she didn't treat anxiety attacks and that I would have to see my pdoc. I cried and told her to just see me so she could see the way I get with these attacks. My speach was still a little slurred. She said no & repeated that I had to see me pdoc. The next day, I called him and he upped my xanex to 1mg 3 times a day. I was previously taking .5 3xday.I had a terrible headache for 10 days. I saw her on July 16th for a physical. I took all my research on Basilar Artery Migranes that I'd gotten off the net. I was reading some of it as I lay on the table, and she said, "it doesn't matter what you are reading...I don't treat that". Unbeleivable. So I found a new neuro, and she ordered some tests. Her preliminary findings were: possible demylinating desease, partial complex seizures & Conversion Disorder.
When she (my new neuro) got the MRI (from my prev neuro) and all the other test results, she said my MRI showed I'd been having mini-strokes. Duuuhhhh. This is what I thought all along. BAM is in the stroke category you know. Also the other things mentioned above and something new, my glucose was out of whack. She didn't give me any medication just said to watch my diet. No fatty foods, no cholestorol, no carbohydrates. So I'm eating alfalfa and oatmeal. I mean what's left? She also told me something was wrong with my imune system but that I'd have to discuss that with my primary care physician (the one that refused to see me-ugh!) So I called for the appt. My pcp said there was nothing on the neuro's report about mini-stokes and nothing about my imune system. What????
I give up. Let me know how the neurontin works out, if you get it. Hope you get some releif.
Mercedes> Hey Mercedes,
>
> I just wanted to post real quick and find out if you're getting any relief from the migraines/panic attacks/whatever. I improved on 10 mgs day/lexapro but not quite enough, so I'm gonna be seeing my dr. to try to get him to let me give Neurontin a shot. Hopefully he will. *crossing fingers*
>
> books
Posted by mercedes on September 20, 2003, at 3:07:28
In reply to mercedes, how's it going?, posted by bookgurl99 on September 8, 2003, at 22:43:19
Oh Books, I forgot to mention that I am getting off Effexor. I was up to 300mgs, and really felt happy, smiling again. But one of the side effects is high blood pressure. Well with these possible mini-stroke attacks, I should not take anything that could possibly increase my blood pressure. I was also having the blurred vision and a hell of a time concentrating. Memory problems too, but was willing to have these just to feel happy again. I'm down to 150mgs, no real bad withdrawal effects, just a cpl days of shooting pings and pangs in my arms and face. Monday I will go to 75mgs. I see my pdoc Tues. and maybe he'll try me on another AD. I don't know. I'm just sick of taking meds. I seem to get more depressed, but if you read my last post, I have good reason....no?
Mercedes.....miss you
Posted by Rawudi on September 20, 2003, at 11:50:34
In reply to Re: withdrawal, posted by Debbie on April 17, 2000, at 16:53:21
I may be hoping too much here, but I'm not with any psychiatrist or on any medications or drugs and don't ever propose to ever take any!!!
Firstly, the fact of the matter is, ADHD is a made up disorder and doesn't exist. Some psychiatrist played a cruel and very S I C K joke on everyone, when he brought this baby into existence. You see he can't confront individuals being able to move freely and enjoy their abilities in a social environment. So, who best to target than little children. They can't fight back on the matter and then if they do anyway, they have another disorder called oppositional disorder!
The fact of the matter is you do not have unusual human symptons nor has it been of detriment to man down through the millennia of his whole track history and nor will it be presently or in the immediate future. There has been no research on the matter, there is no proof to the disorder other than a showing of hands by psychiatrists stating that the condition is a valid mental illness with a great show of authority, if only said pretentiously, it is still non the less fraudulently stated.
Hence, prescribing anything other than natural physical exercise, diets, alongside of a full medical examination to ensure you don't have something basic out with your body - such as allergies, organ dysfunctions, etc., would be pandering to the private and commercial needs of the drug manufacturers and psychiatrists back pockets.
As you are currently on these "drugs", my advise would not be to jump straight off of them. Far from it, as you would probably cause some damage. But rather, once you reduced your current consumption down to zero and then refrain from taking any psycho-tropic drugs completely. Search out a doctor that does locate the actual cause of any discomfort you have with your body. It will be there to be found and once found obtain natural remedies that handle the source of the problem.
Posted by zinya on September 20, 2003, at 15:19:29
In reply to Hi Zinya, posted by willie on September 15, 2003, at 7:23:20
hi Willie!
forgive me for being so erratic these days in checking in here... It's great to hear from you!yeah, well, my withdrawal... hmmm. Actually, so far the withdrawal itself doesn't seem to be causing too many side effects. Maybe taking teh Omega-3 is helping with this (boy, does Omega-3 SURE help with the constipation!?!) but i had a relapse in the energy dept. this past week, which was itself depressing -- I am increasingly realizing (not for the first time) that it's a zero energy state that Makes me depressed, not vice versa... My back goes out on me or something and my energy plummets -- and it gets damn depressing to have to curtail social activities as a result...
I'm still having the major sweats (one of my 3 reasons for quitting - just the other night again awoke so wet i had to change all clothing) but at least my heart is no longer pounding out of my chest after just gardening... I'm still at 75 mg til at least next week when i see md. and get some more to finish tapering off with...
Once or twice during w/d i've had a weird brain thing that maybe was the "zaps" people talk about but it wasn't too bad and did pass...
Frankly, i don't know quite what to make of this experience except that it makes me wonder if serotonin was my problem after all.
Sounds great that you can e-mail your doctor - i need a doctor i could do that with! I can with my chiropractor which is already a boon...
where in Florida are you going?
with hugs,
zinya
Posted by Dr. Bob on September 20, 2003, at 19:07:20
In reply to Re: withdrawal, posted by Rawudi on September 20, 2003, at 11:50:34
> Firstly, the fact of the matter is, ADHD is a made up disorder and doesn't exist.
You may not think people should be given the diagnosis, but please don't exaggerate or overgeneralize:
http://www.dr-bob.org/babble/faq.html#civil
> prescribing anything other than natural physical exercise, diets, alongside of a full medical examination ... would be pandering to the private and commercial needs of the drug manufacturers and psychiatrists back pockets.
Also, follow-ups not about medication should be redirected to Psycho-Social-Babble.
Bob
Posted by kcg33 on September 21, 2003, at 10:21:20
In reply to Anyone had success on Effexor XR? , posted by jp on October 24, 1999, at 14:59:14
I am so relieved to have finally found this message board. I have been taking Effexor XR for about 8 months. (one 75 mg capsule a day) I tried to get off of it once and OMG I thought I was dying. HORRIBLE HORRIBLE withdrawal. I couldn't stand up without holding onto something, I did everything the doctor said to wean myself off. First it was one every other day, and then after a week or so, I was to go every 3rd day. Let me tell you, I never made it past that every third day, and by the time 6 weeks of absolute HELL went by trying just to get through that every third day, I was so tired of being sick and dizzy that I had to just refill my scrip and start taking it daily again. I am feeling more anxiety trying to lose this drug than I was before I began taking it~ I am very angry that the drug did not come with some kind of warning regarding it's physically addictive qualities. If I had known that this "short-term solution" to my anxiety attacks was going to ultimately make me worse, I would definitely have never used it to begin with. This is the first time I have ever seen this website and I have spent all morning reading through the postings from the past 3 years. What I am wondering, is with so many people experiencing the EXACT SAME THING that I am going through, after 3 years, why the hell is this product still on the market? I'm shocked there has not been some sort of class-action lawsuit started to make the pharmaceutical companies acknowledge the problems. Has anyone gained like a huge amount of weight while on this drug? I have gained 30 pounds in 8 months and I wonder if I will ever be able to kick the drug and lose the weight and get back to what actually was a much more normal existence for me than after I started taking this nightmare of a "solution" to anxiety. What about perm. long-term side effects? How long can I expect to feel like walking death after I kick this medicine? ANY information you could provide would be helpful. (By the way, I'm sure this medicine has its good points, it actually did begin to feel much better symptom-wise when I FIRST began taking it. But the subsequent nightmares and the weight gain got so bad, (not to mention it costs a dang fortune), I needed to quit taking it. - the withdrawal is so horrendous that I'm not sure that its effectiveness for anxiety is a good enough reason to put my body through this ever again!) Please share any thoughts or information which might be helpful! Thanks!
Posted by BJL on September 21, 2003, at 11:16:03
In reply to Effexor XR , posted by kcg33 on September 21, 2003, at 10:21:20
Have you tried Benadryl or Dramamine? If not, try it. Let me know how it works. Others have claimed Benadryl to be a lifesaver.
Posted by zeldas on September 21, 2003, at 18:40:37
In reply to Effexor XR , posted by kcg33 on September 21, 2003, at 10:21:20
I am one of the people on this board who have found effexor to be a "shock to the system" if not tapered off slowly. THE KEY--taper slowly! However, I have NO complaints about the med itself. Effexor has been one of the best antidepressants I have ever used. So let us not throw out the baby with the bathwater.
I do think, however, people should be told before they go on it that even if you have never had a hard time going off another antidepressant relatively quickly, this one could truly not be such a piece of cake.
BTW--I don't think these drugs are truly addictive-as there is no psychologically addictive component. Even with blood pressure medication -- one must be very careful to lower the dose gradually. And I don't think a blood pressure med. would be called addictive. At least I wouldn't call it that.
To talk about taking it off the market? I really don't follow that. They key--one more time---taper off slowly. I don't get the impression that you were told to do it properly. Every 3 days?--That can be way to fast for some people.
Posted by kellie323 on September 22, 2003, at 2:40:55
In reply to Re: Effexor XR , posted by zeldas on September 21, 2003, at 18:40:37
I took Effexor XR for a year without noticable problems. I was on 150mg once a day for the last six months. Unlike some of the complaints about weight gain and nightmares I had the opposite happen to me. I lost 20 pounds and can't remember ANY dreams or nightmares. My doctor started me on Wellbutrin in addition to the Effexor a month ago. I'm not exactly sure why though since I thought I was having alot of success with just the Effexor.
I decided to take my self off both medications. Everyone I talked to said to taper off slowly but I just went cold turkey. On the fourth day without any meds I flipped out. I became violent and irrational and seriously wanted to die. I'm not sure if this had to do with new problems I was having or was a withdrawl symptom. Needless to say, at the time I really didn't care.
It's been twelve days now without any medication at all and I feel great. I am looking into more natural ways to deal with my depression and am hopeful for the future now. I do take Benadryl everyday because of sinus congestion(a withdrawl side effect?). It makes me a little tired but nothing I can't deal with. I hope people who are prescribed any medication will learn how to research the drug before deciding to take it. I trust doctors to a point but they are only human and don't always know whats best for everyone.
Posted by willie on September 22, 2003, at 7:27:23
In reply to Anyone had success on Effexor XR? , posted by jp on October 24, 1999, at 14:59:14
Hi Zinya...no worries about getting back to me so quickly, I only check the board every other day too. We are heading off to Lakeland, FLA on the 9th of October. We go every year during our Canadian Thanksgiving (Oct. 13th).
I'm anxious to go...work has been pretty stressful. I don't think I'd be able to handle all this work without effexor. I think back to when I was not on the drug and the pressure I was under was not as much as I am today. Tons of work and deadlines.
I wonder if there is anything out there to counteract the weight gain of effexor? I've got to get all new fall clothes because I don't have anything to fit me anymore. I'm close to 20lbs heavier than I was this time last year. I'm starting a couple of classes during the evening (cardioboxing and palates) which I hope to help in that area.
Take care...Willie
Posted by BJL on September 22, 2003, at 9:52:05
In reply to Re: Effexor XR , posted by kellie323 on September 22, 2003, at 2:40:55
I just thought that I'd mention if you are taking Benadryl for sinus congestion, it's not meant for that. It's an antihistamine....itchy, sneezy feelings, rashes, that type of stuff is what it works for...allergies. It's not a decongestant. Sudafed is a decongestant. Of course, they say Benadryl works for withdrawals...I am tapered down to 37.5 mg of Effexor and starting to get the withdrawals, but not seriously yet, mostly in the afternoons. And, I definitely am feeling a mood change. When my husband came to bed last night, I was wanting him to just GO AWAY. I mean I actually was disgusted that I had to sleep next to him and wanted the bed to myself. This is wierd because I adore my husband and always love to snuggle up to him. I hope this feeling goes away. It scares me.
Posted by Brad_HNL on September 22, 2003, at 18:49:03
In reply to can't sleep lying down..., posted by Alabama on September 15, 2003, at 22:23:14
Yeah -- I've had the same experience, except instead of my jaw it has been my feet. Very glad to hear you say this, thought I was going a bit (more) nutty. For me, it's nearly every night, and it's nearly all the time I am off more than 3 hours on a given dose. I can be dead ragged tired, lie down, and my feet start jumping and twitching. I sit up and I can doze off, though never for very long. These symptoms usually last 4-6 hours after I take it. I am on 225 mgs a day but have dropped myself to 150, and they seem to be less severe at this level. Given my schedule and the fact that we are supposed to take it with food, I can't always follow a 6:30/18:30 schedule. I have never missed more than a dose since I started on it in March.
hope this helps!
Brad
Posted by Salty_Dog on September 22, 2003, at 18:55:53
In reply to Re: Effexor XR , posted by zeldas on September 21, 2003, at 18:40:37
I agree with Zeldas, we should not forget the positive effects.
Almost every serious medication I have taken indicates not to stop takening the med until you have consulted with your Dr.
The Manufacturing leflet found in the bottle at the Pharmacy will indicate withdrawl problems and indications. I know, I have about 20 of them and they all indicate withdrawl problems.I am currently have adverse effects from a med called Lamictal. I followed the instructions to the letter and sure enough, I got the rash all over my face and some of my chest in the last three days. I see my Nuerologist tomorrow. I saw my regular Dr. today and he reinforced my feelings.
I am still taking 600 mg of Effexor XR daily with predictable sweating behind my knee's and on my back. I stops the minute I get near a Dr. :)
I am completely free of depression. I also take Neurontin to eleviate the jitters from that high of a dose of Effexor. I will be stopping the Neurontin as suggested (tapper off) by my Dr.Effexor XR is working where all else fails.
Posted by skp on September 23, 2003, at 8:28:55
In reply to Re: Anyone had success on Effexor XR? YES! , posted by Shel on July 18, 2000, at 1:35:45
I'm having terrible 'white noise' and ringing in my head on Effexor 75xr..and have been on it for 2 weeks now..is this normal??
Posted by skp on September 23, 2003, at 8:32:38
In reply to Re: Anyone had success on Effexor XR? YES! , posted by Shel on July 18, 2000, at 1:35:45
I have been on Effexor 75xr for 2 weeks now, it doesn't seemed to have helped the depression yet...should I wait, and how long does it usually take to work?
Also been having many side effects, worse one being sinus problems...I have looked at all listed side eefects, but cannot find this one...has this effected anyone else in this way?
Posted by KimberlyDi on September 23, 2003, at 8:37:57
In reply to Re: Effexor XR , posted by kellie323 on September 22, 2003, at 2:40:55
I agree that more people should have information on the difficulty of withdrawal on some of these SSRI's. I also believe that doctors should all be informed of a withdrawal procedure that WORKS. I have my plan written down.
1. 1 months supply of 100mg X 2 daily of the Immediate Release (IR) Effexor.
2. 1 months supply of 75mg X 2 daily of the IR Effexor.
NOTE: both of these have the capability of being broken down into smaller pieces, meaning you could stretch the withdrawal process out for several months if needed, and not use the remaining.
3. 1-2 months Anti-Vertigo/Anti-Naseau med.
4. Low dosage of another SSRI-type AD (maybe Prozac) to fool the brain, OR the next AD I might decide to try.About sinus problems, I've noticed that when I'm not emotionally centered/stable and not feeling well, my allergies are worse. If I don't take care of myself, my allergies are worse. If I drink, the same. And BTW, everyone is having allergy problems right now at work. It's something in the air. So, just take care of yourself and wait for the allergy season to pass.
KDi in Texas
Posted by BJL on September 23, 2003, at 9:40:38
In reply to sinus headaches form Effexor?, posted by skp on September 23, 2003, at 8:32:38
YES!! I am down to 37.5 mg (today is my last day on that and I'm off....scared). Anyway, I have been noticing my sinuses are getting more congested and that my forehead at my eyebrows is aching more and more....like sinus pressure. I'd say it must be more than coincidence.
Posted by JaneB on September 23, 2003, at 9:56:18
In reply to sinus headaches form Effexor?, posted by skp on September 23, 2003, at 8:32:22
> I have been on Effexor 75xr for 2 weeks now, it doesn't seemed to have helped the depression yet...should I wait, and how long does it usually take to work?
> Also been having many side effects, worse one being sinus problems...I have looked at all listed side eefects, but cannot find this one...has this effected anyone else in this way?Yes, I had sinus problems on Effexor. But try convincing a doctor!
Posted by skp on September 23, 2003, at 10:32:42
In reply to Re: sinus headaches form Effexor?, posted by JaneB on September 23, 2003, at 9:56:18
> > I have been on Effexor 75xr for 2 weeks now, it doesn't seemed to have helped the depression yet...should I wait, and how long does it usually take to work?
> > Also been having many side effects, worse one being sinus problems...I have looked at all listed side eefects, but cannot find this one...has this effected anyone else in this way?
>
> Yes, I had sinus problems on Effexor. But try convincing a doctor!Did the symptoms go away..and what were they like for you...do u think they were related to Effexor? I have trouble with sinus congestion and this causes headaches...also extreme 'white noise' in my head all the time! Psy say it's not linked!
Posted by Music on September 23, 2003, at 10:36:08
In reply to Anyone had success on Effexor XR? , posted by jp on October 24, 1999, at 14:59:14
I get head aches often. Right above the eyebrow usually as well. I am on 150 mg Effexor XR twice daily. Any suggestions for relief?
Music
Posted by zeldas on September 23, 2003, at 10:45:59
In reply to sinus headaches form Effexor?, posted by skp on September 23, 2003, at 8:32:22
> I have been on Effexor 75xr for 2 weeks now, it doesn't seemed to have helped the depression yet...should I wait, and how long does it usually take to work?
> Also been having many side effects, worse one being sinus problems...I have looked at all listed side eefects, but cannot find this one...has this effected anyone else in this way?Also--I am not sure if 75mgs. is even a therapeutic dose (high enough). It took 3 weeks for effexor to kick in for me at 150 mgs.
Posted by zeldas on September 23, 2003, at 10:56:27
In reply to Re: sinus headaches and noise from Effexor?, posted by skp on September 23, 2003, at 10:32:42
Most side effects diminish within a few weeks. And you have not been on this medication very long or at a very high dosage. Maybe you should visit your doc. I wouldn't give up on it yet.
Posted by skp on September 23, 2003, at 11:14:19
In reply to Re: sinus headaches and noise from Effexor?, posted by zeldas on September 23, 2003, at 10:56:27
thanks for advice...It's a relief to find this site!
I am on the 75mg Effexor extended release...and have been for 2 weeks...no change to my mood yet, still feel low, but also vey tired and distant!
The worse bit is the sinus headaches...has anyone else had sinus related problems on Effexor, and did it eventually go away?
Also the noise in my head ...it's like Iv'e been to a 'Trash Metal' gig...what's all that about?!
Posted by slinky on September 23, 2003, at 15:27:33
In reply to sinus headaches form Effexor?, posted by skp on September 23, 2003, at 8:32:22
> Also been having many side effects, worse one being sinus problems...I have looked at all listed side eefects, but cannot find this one...has this effected anyone else in this way?Hi..
Yes..this is one reason why I am now stopping efexor- sinus and eye pain.
Posted by kellie323 on September 23, 2003, at 16:43:01
In reply to Re: sinus headaches form Effexor? » skp, posted by slinky on September 23, 2003, at 15:27:33
I appreciate the feedback from everyone on this site. I have been off Effexor for almost two weeks and still have sinus pain and headaches every day. Benadryl and Sudafed seem to help. I also take Motrin when it gets too bad. I have researched vitamins and minerals and have decided to try that approach instead of the less natural ways that apparently haven't worked. My mood is better now and I'm able to deal with the problem that caused the depression in the first place. Trust your insticnts.
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