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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 7 of 7. This is the beginning of the thread.
Posted by heaven help me on June 2, 2006, at 22:29:35
Really, I am freaked out by all this about the movie (that I can't seem to download). I've done a search on MedlinePlus.gov and see TD as a *possible* side effect. But what I really want to know is there ANYONE who has been taking Geodon for a while, or long term, and done great on it? Ar at least not terrible??? ANYONE? ANYONE??????
mary
Posted by yxibow on June 3, 2006, at 12:00:35
In reply to ok, wrong time to ask but anyone GOOD w/ Geodon?, posted by heaven help me on June 2, 2006, at 22:29:35
> Really, I am freaked out by all this about the movie (that I can't seem to download). I've done a search on MedlinePlus.gov and see TD as a *possible* side effect. But what I really want to know is there ANYONE who has been taking Geodon for a while, or long term, and done great on it? Ar at least not terrible??? ANYONE? ANYONE??????
> mary
I took Geodon for a short period but it proved to have too much EPS -- akathisia. Tardive Dyskinesia is not a side effect, it is a condition caused by all neuroleptics marketed to date, except Clozaril.
Large amounts of EPS (side effects) may indicate future TD, but this is not always true. One has to examine the word tardive -- that means late, as in, usually years after treatment. Sometimes it happens earlier -- it can also remit during treatment.
The mechanisms of TD is not completely understood. But as I have posted many times, a doctor who prescribes a neuroleptic should clearly describe that TD is always a possibility -- that is what is known as "informed consent." They should also know how to do an AIMS exam, establishing a baseline of muscular movements, and repeat this during the course of treatment to find any signs of TD.
There is no prediction of when or whether TD will occur -- it is just something that in the back of one's mind, has to be thought about but not obsessed about. Treatment will not be effective if there is constant worry as there is always a component of placebo effect for any regiment.
In general, the low potency atypicals are less likely to cause TD than old antipsychotics, but this has never been conclusively proven. If one does get TD, the neuroleptic can be discontinued, or switched to another one, or a host of different things.
TD can be permanent for 30% of the population, 30% the same, and 30% remit completely -- this is only a guideline, as I said, since we still don't completely know the reasons for it, there are tricks that can be played with switching around neuroleptics and a host of other remedies, none of which have been double blind studied completely.
I wish I could offer better advice, but ultimately it is up to you.
-- tidingsJay
Posted by heaven help me on June 3, 2006, at 13:41:45
In reply to Re: ok, wrong time to ask but anyone GOOD w/ Geodo » heaven help me, posted by yxibow on June 3, 2006, at 12:00:35
Jay,
You have explained things so clearly to me, that is what I really needed (guess I tend to obsess too!). Thank you for doing it in understandable terms.
I do have 2 questions for you,
1) do you think a lower dose of Geodon would decrease the potential occurrence of TD?
2) Do you know the percent of people on neuroleptics that end up with TD?I'm going to talk to my PA about AIMS testing, and I THANK YOU, again, for your words of encouragement!
blessings
mary
Posted by yxibow on June 3, 2006, at 14:03:47
In reply to Re: ok, wrong time to ask but anyone GOOD w/ Geodo, posted by heaven help me on June 3, 2006, at 13:41:45
> Jay,
> You have explained things so clearly to me, that is what I really needed (guess I tend to obsess too!). Thank you for doing it in understandable terms.
> I do have 2 questions for you,
> 1) do you think a lower dose of Geodon would decrease the potential occurrence of TD?
> 2) Do you know the percent of people on neuroleptics that end up with TD?
>
> I'm going to talk to my PA about AIMS testing, and I THANK YOU, again, for your words of encouragement!
> blessings
> mary
1) I'm not a psychic nor a psychiatrist, but I would hesitate a guess, possibly.2) There has been only one study in the BJP that I have quoted, if I recall, that showed the incidence of TD in a wide population of Zyprexa users to be 1/2% per year. But you can only extrapolate so much from that, because everyone's brain is different. Someone could take Haldol for years and not get TD. The only harbinger, and I posted this once and I don't want to scare people, including Jeroen, because its not an exact science and I realized that I may have overstepped, is that there is a possibility of future TD if your EPS (side effects like akathisia) are so severe that it is intolerable to take the medication, or somewhere in that range.
I wish I could offer you more advice than I could offer myself.
- tidings-- Jay
Posted by Phillipa on June 3, 2006, at 22:05:56
In reply to Re: ok, wrong time to ask but anyone GOOD w/ Geodo » heaven help me, posted by yxibow on June 3, 2006, at 14:03:47
I don't believe in antipsychotics unless you are psychotic. just me Love Phillipa
Posted by yxibow on June 3, 2006, at 22:40:18
In reply to Re: ok, wrong time to ask but anyone GOOD w/ Geodo » yxibow, posted by Phillipa on June 3, 2006, at 22:05:56
> I don't believe in antipsychotics unless you are psychotic. just me Love Phillipa
I'm not psychotic but I use them for the reason that they are a dopamine blocker and part of my disorder is connected to D2 -- I wouldn't otherwise, I never had any intention to do so. There's some response to them, so they obviously (Seroquel) do have some play in what is going on inside me.
People with bipolar are not necessarily psychotic but respond to things such as Zyprexa and Seroquel for manic phases -- lithium can have its own set of unpleasant side effects.
But the use of them for pure anxiety. .. mm.. only in special circumstances I think. There seems to be some anecdotal evidence for ultra low dose Seroquel for sleep, I wouldn't use it just for that but some do well.
Posted by Phillipa on June 3, 2006, at 23:41:11
In reply to Re: ok, wrong time to ask but anyone GOOD w/ Geodo » Phillipa, posted by yxibow on June 3, 2006, at 22:40:18
Agree. Love Phillipa
This is the end of the thread.
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