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Dr. Bob is Robert Hsiung, MD,
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Posted by bridgey1128 on December 20, 2004, at 16:08:42
In reply to Re: Weight and meds--iris2, posted by banga on December 20, 2004, at 10:06:04
I just don't want to be fat either. ;) So I guess part of it is down right vanity and part of it is health.
Posted by rainy on December 20, 2004, at 16:28:27
In reply to Re: Weight and meds--iris2, posted by bridgey1128 on December 20, 2004, at 16:08:42
I just don't want to work--I'm so sick of cutting carbs, calories and "paying attention" to what I eat and being hungry--I'd like to just not worry about it. I've been weight obsessed since I was 11 years old, maybe younger and was buying Chubbette clothes at Montgomery Wards. I don't want to take medications now that haven't helped me feel better in the past, but have put me in adult Chubbettes. To quote you, Bridgey, Dur.
I know, though that I need to gain. I discovered this morning that I've lost four pounds without trying and I don't think it's because I've gone up by 25 mgs on Top for two weeks. I haven't changed eating or exercise patterns and it's a little freaky. But I want to gain it back naturally, not by some chemical change of metabolism that I won't be able to control. Go figure.
Have any of you had a pdoc fire you for noncompliance or the more pc term, "non-concordance?" If so, then what did you do? I'm afraid I'm going to get kicked out for inventing my own plan instead of taking her damn abilify, even though I told her I wouldn't without researching it. It is difficult to be a person in relationship.
rainy
Posted by bridgey1128 on December 20, 2004, at 18:00:28
In reply to Re: Weight and meds--iris2, posted by rainy on December 20, 2004, at 16:28:27
IF she "fires" you for noncomplience of your own body then I should say good riddance! She has no right to force you to take something you don't feel comfortable taking without researching it thoroughly first. If she does, then she isn't a very good Dr. I wouldn't worry about what your Dr thinks. Research it. If you don't like it, then tell her to pick something else. If she doesn't like it, and "fires" you then I think that would be rather unethical. I would equate that with someone picking up their toys and going home because they don't play by their rules. Let's hope she won't do that and will be understanding about the way you feel.
Posted by rainy on December 20, 2004, at 19:32:44
In reply to Re: Weight and meds--iris2, posted by bridgey1128 on December 20, 2004, at 18:00:28
yeah, well, this is one of the reasons I'm beginning the search for a new pdoc. The need to know and "my fears" about medication are "tying her hands" which makes me uncomfortable and I'm sure it frustrates her. It probably also impedes my progress, because as we've been discussing, when weight, lizard tongue and hair falling out issues emerge vs depression and hypomania of the irritable, foot in mouth variety, what do you do? Catch 33.
Gripe gripe gripe.
I always feel better when I read a novel or something so I'm going to go do that. Thanks for support, Bridgey. I think she's a good doctor, she just doesn't know what to do with someone who thinks she's her peer.rainy
Posted by rainy on December 21, 2004, at 6:12:11
In reply to Re: Weight and meds--iris2, posted by bridgey1128 on December 20, 2004, at 18:00:28
A long time ago I promised Redscarlet a web address that has med information: www.mcmanweb.com. John McMan also publishes a free newsletter that I've found interesting and useful called "McMan's Depression and Bipolar Weekly". His main focus seems to be on medications and research, all written in reader friendly language. He's very much an advocate for us, being bipolar himself. His last letter which came out a few weeks ago explained that he's almost through with a book (can't remember exactly what it's about, dopamaxed this morning) so the newsletter is on hold for now. I trust what this guy has to say.
rainy
Posted by redscarlet on December 21, 2004, at 13:28:35
In reply to Re: Weight and meds--iris2, posted by rainy on December 21, 2004, at 6:12:11
> A long time ago I promised Redscarlet a web address that has med information: www.mcmanweb.com. John McMan also publishes a free newsletter that I've found interesting and useful called "McMan's Depression and Bipolar Weekly". His main focus seems to be on medications and research, all written in reader friendly language. He's very much an advocate for us, being bipolar himself. His last letter which came out a few weeks ago explained that he's almost through with a book (can't remember exactly what it's about, dopamaxed this morning) so the newsletter is on hold for now. I trust what this guy has to say.
>
> rainy
rainy ~ Thank You so much, so nice of you... :-)I've had a couple of bad days and may need to up my Zonegran. But I'm just not sure, my doctor is out on vacation this week and even though some other doctor is filling in, he will not know me and I just don't feel like talking to someone I don't know and trying to tell them how I'm feeling....UGH !
I think I'll start taking an extra pill tonight and see how I feel in a day or two. I don't want to go through Christmas feeling like this. I don't think it will hurt me, just might not help thats all.Well, Thank You again for the website info... :-)
Posted by iris2 on December 21, 2004, at 14:28:44
In reply to Re: Weight and meds--iris2, posted by banga on December 20, 2004, at 10:06:04
Thank you for your response. I hope I too did not upset anyone. It is funny I have the same problem (if yours is a problem) with my family. They will not say be honest with me that I gained weight until it is a whole lot.
I hope everyone understands that the reason I posted all the personal stuff about my height and weight is so that people would understand me better and if they responded I would not feel like I was crazy so much.
Thanks again,
irene
Posted by iris2 on December 21, 2004, at 14:35:04
In reply to Re: Weight and meds--iris2, posted by bridgey1128 on December 20, 2004, at 16:08:42
In this society I think that is only being human. I think most of us would deal with being a little "fat" if it meant our mental health or physical health. If there is any alternative med that would not make me gain weight than of course I would want that. Even one that made me gain weight I decided to go off of because even though it helped my depression a little it was not much and compared to the "trauma" of the weight gain I did not think the trade off was worth it. I just wonder if other people who did not have an eating disorder too would have stayed on the antidepressant? I know we are all different but I have to try and figure out if I am thinking rationally or not.
Thanks everyone for all the help,
irene
Posted by iris2 on December 21, 2004, at 14:47:41
In reply to Re: Weight and meds--iris2 » bridgey1128, posted by rainy on December 20, 2004, at 19:32:44
Is your pdoc too closed minded to allow for you to have an opinion? I have found it helpful to be able to discuss a medication disagreement with mine at times. Sometimes I was persuaded to his opinion and others not. I was able to glean more information about the med and why the pdoc wanted me to take it or at times not to take it. Will the pdoc explain to you why he/she wants you to take the ablify? If you have your own information and can discuss it with her than it could be helpful to you. From what you have posted it does not sound like it though. Have you tried to ask her to discuss it? Most will not and think they are just so above you it is not worth their time but occasionally they can act human.Good luck,
irene
Posted by rainy on December 21, 2004, at 18:40:15
In reply to Re: Weight and meds--iris2 » rainy, posted by iris2 on December 21, 2004, at 14:47:41
No, she's not closed minded, exactly. She's let me have my say, but she doesn't like it. She verbalized this to my therapist who told me. Whether or not this was a breech of ethics I don't know, but I'm uncomfortable with this knowledge. I think I've been a good sport and swallowed a bunch of stuff that has done various bits of damage, none life threatening, without doing much help. I'd like not to keep repeating this process. I'm willing to put up with the Topamax aggravation (which is lessening) for it's benefits
You're welcome, Redscarlet. I hope you feel better. I'll be interested in hearing how your pdoc reacts to your tweaking of your meds.Time for bed and a book.
rainy
Posted by stresser on December 21, 2004, at 18:51:52
In reply to Re: Weight and meds--iris2 » iris2, posted by rainy on December 21, 2004, at 18:40:15
I remember Montgomery Wards! I think they went out of business when I was a teenager, I worked there when I was in high school during the summer.
Rainy- the topamax is making you lose weight ever without trying? I found a site called the Topamax Trip, and someome on there said it does not speed up the metabolism, so maybe you aren't eating enough? Do you think they could be wrong about the metabolism part?
Bridgey- Have you heard about your part yet?Nice to hear everyone is doing ok.-L
Posted by redscarlet on December 22, 2004, at 12:19:44
In reply to Re: Weight and meds--iris2 » iris2, posted by rainy on December 21, 2004, at 18:40:15
Update: Sense I was feeling so bad and thinking of upping my Zonegran on my own, I decided it would be best to call my doctors office even though I thought he was out of town already for the holidays and that I would have to talk to the fell in doc. Well it turns out I got the dates wrong for when my pdoc was leaving and he was still in the office yesterday...YEA ! So I got to talk to him and he did indeed increase my Zonegran. I hope to be feeling better by Christmas... :-)
Hope all of you are doing well, it's snowing here in Dallas !!!
Posted by stresser on December 22, 2004, at 12:33:05
In reply to Re: Topamax and metabolism, posted by stresser on December 21, 2004, at 18:51:52
I just went back and re-read the posts, so I can answer some of the questions you are asking. I don't think I am bi-polar, I have taken those self quizes and don't fit the type at all, but we will find out when I see my new pdoc in Jan. It will be interesting, I know there's something going on that's just not being diagnosed....I thing the rest of my family also suspects that. Is is possible to be bipolar and not have the usual symptoms? When I took the test on Physc. Central the Borderline Personality test fit me like a glove. It was FREAKY. Who knows.
Bridgey, you are correct, beging overwieght does make one depressed...I have been there twice in my life, and DO NOT, want to go there agian. It's a sad place where self-esteem has vanished, and digging yourself out of the hole seems much harder than staying there. Once you're out, you never want to go back, especially if you have worked to rise above it. Many things contribute to becoming depressed, some are medical and some come our own experiences. I feel that when I can help myself, I should do the most that I can, and went that's exhausted, then maybe a doctor can step and pick up the slack. We shall see.....the depression hasn't been as bad lately, although I don't know why? I'm trying to figure out that puzzle. For now, I will just keep doing what I am doing, and checking in with you wonderful people on this board for some great advice. -L
Posted by bridgey1128 on December 22, 2004, at 15:31:22
In reply to I just re-read the posts, posted by stresser on December 22, 2004, at 12:33:05
I GOT THE PART!!!!
Posted by redscarlet on December 22, 2004, at 15:43:21
In reply to stuff..., posted by bridgey1128 on December 22, 2004, at 15:31:22
Posted by rainy on December 22, 2004, at 16:35:53
In reply to stuff..., posted by bridgey1128 on December 22, 2004, at 15:31:22
Yaaaaaayyyy!!!! Bridgey !!
rainy
Posted by bridgey1128 on December 22, 2004, at 16:43:36
In reply to Congratulations (nm) » bridgey1128, posted by redscarlet on December 22, 2004, at 15:43:21
Shhhh quick! Lets talk about medication!
Posted by headachequeen on December 23, 2004, at 0:13:17
In reply to Re: Topamax and metabolism, posted by stresser on December 21, 2004, at 18:51:52
> I remember Montgomery Wards! I think they went out of business when I was a teenager, I worked there when I was in high school during the summer.
>
> Rainy- the topamax is making you lose weight ever without trying? I found a site called the Topamax Trip, and someome on there said it does not speed up the metabolism, so maybe you aren't eating enough? Do you think they could be wrong about the metabolism part?
>Topomax seems to be an appetite suppressant or something... it does help one lose weight without dieting or struggling with drastic exercise programmes...
I did not do anything other than my normal routine and lost weight... but I also changed my interest in food...
for instance today, one meal only...
and that was hard to finish... a small steak and that was it... a little of the potato that accompanied and no more...
and if the person with me had not nagged I would not have finished that...
It does not change the metabolism but it does change the interest and obsession with food...
and it really helps
kat
Posted by rainy on December 23, 2004, at 6:39:50
In reply to Re: Congratulations, posted by bridgey1128 on December 22, 2004, at 16:43:36
no pun intended. Geeze. When I typed my name on the form I typed "ranty" which is how I sometimes feel on this board. Anyway, I've been doing a lot of reading about bipolar and meds these past couple of weeks. I've learned that for a fair number of people the appetite changing effect of Topamax (if it occurs) poops out after awhile and that some studies are finding that it is most effective for dealing with the craving for alcohol in alcoholism. Almost nobody in the medical community thinks it's a winner as a solitary mood stabilizer.
I'm actually hungrier as I gradually titrate up toward the dread 400 mgs--I hate to think what I'm going to be like when I get there--325 is bad enough--cognitively that is. The holidays are no time to be tweaking meds, especially when public performances are required. I'm having to withdraw from stuff, both because of foot in mouth syndrome which is worse going up on Top and anxiety (which magnesium citrate, 400 mgs, expensive, seems to help). Withdrawing means cutting short a trip to the grocery store as well as turning over my small group at church to my co facilitator. I'm waiting to go to 350 Top until after the Candlelight Service tomorrow, which my husband and I are doing, because there's social stuff before and after.
Well, crumbs. This turned into a rant after all. My bias, for all to see is that Topamax is not a drug for weight loss per se. It's apparently good for other stuff that's just now emerging and may be a decent adjunct mood stabilizer. I'm going to ask my pdoc about trileptal when I see her next week.
rainy
Posted by iris2 on December 23, 2004, at 14:00:09
In reply to Re: Topamax and metabolism » stresser, posted by headachequeen on December 23, 2004, at 0:13:17
This might seem dumb but I cannot remember what "foot in the mouth" means?
Topomax never changed my appetite either. I suppose if it might have helped with the binging and purging, as I cannot recall that I was doing any of that at the time I took it. Medicines work so different on different people.
Kat, I don't think eating one meal a day is the healthiest thing. Nor is it a good way to loose or maintain weight. If you eat several meals a day your metabolism will be steady and your body will burn calories more efficiently. I used to take a medicatoin that made me not hungry ever and I always tried to eat some small meal at least three times a day. I really had to force it sometimes but I wanted to be healthy and have energy and I still lost weight.
Stressor, I read you are into personal fitness and nutrition. I have always understood one should eat several small meals a day. What have you learned is the best way to eat? My eating habits are so messed up right now I could use some advice. I was going to ask the trainer I am having at the gym but I do not know if he has that trianing or not.
irene
Posted by stresser on December 23, 2004, at 14:57:12
In reply to Re: Topamax and metabolism » headachequeen, posted by iris2 on December 23, 2004, at 14:00:09
If the topamax doesn't make you hungry you should probably still try to eat something. You can make it low calorie, of course. You should be eating six meals per day, dinner in the pm being your last. I always need a snack later in the evening, so I save some calories for that. Iris, you are correct, you need to eat to keep you metabolism going.....and eating six times per day does just that. That way you body doesn't hang onto every calorie waiting for another! Ask your trainer at the gym, he probably does know what you should be doing, or can ask someone who does. Lifting weights will increase your muscles mass, and that also speeds up your metablolism....do you do any weight resistance? High repititions with low weight will not make you big, just toned and burn fat faster 24/7. If you have any more questions you can always babble me, ok. Thanks for asking, it seems it's always me asking so many questions and driving everyone crazy!!!-L
Posted by iris2 on December 23, 2004, at 15:26:59
In reply to Re: Topamax and metabolism » iris2, posted by stresser on December 23, 2004, at 14:57:12
Thanks for the help, I do not know what I am doing at the gym as I have not gone for years and am in terrible shape. I don't take Topomax. It was Parnate that decreased my hunger so much but I do not take that anymore. I just need to eat better.
irene
Posted by bridgey1128 on December 23, 2004, at 16:46:39
In reply to Re: Topamax and metabolism, posted by iris2 on December 23, 2004, at 15:26:59
Kat to answer your question, I got the part!! Yay! As for Topomax as the sole mood stabilizer, it's going to have to do because I found out that I have a $2000 cap on my drugs for my insurance. I broke down and cried. Luckily it was at the END of this year and not in the middle of I would have had to just stop taking it. If I had KNOWN that the 25mg pills were so much more FREAKING expensive I would have just stuck with the 200mg tablets!! That one prescription is $500!!!!! I only found out because they were trying to make me pay $200 something dollars and I was like..what? SO I called and found out I was over my cap. I had no idea I HAD one! If I stay with the 200mg tablets I think I will be ok. That prescription is only $135. OMG!! Can you believe the difference?? They really do pay by the pill. I REALLY wish they had told me that. I usually only have to pay a copay. That is just what the insurance company is billed. Boy I sure am glad that my mom in law is a nurse and can get me my Zyrtec D for free or I would be up a creek without a paddle. *sigh* The joys of the American system...
Posted by headachequeen on December 24, 2004, at 16:42:33
In reply to Re: Topamax and metabolism, posted by bridgey1128 on December 23, 2004, at 16:46:39
> Kat to answer your question, I got the part!! Yay! As for Topomax as the sole mood stabilizer, it's going to have to do because I found out that I have a $2000 cap on my drugs for my insurance. I broke down and cried. Luckily it was at the END of this year and not in the middle of I would have had to just stop taking it. If I had KNOWN that the 25mg pills were so much more FREAKING expensive I would have just stuck with the 200mg tablets!! That one prescription is $500!!!!! I only found out because they were trying to make me pay $200 something dollars and I was like..what? SO I called and found out I was over my cap. I had no idea I HAD one! If I stay with the 200mg tablets I think I will be ok. That prescription is only $135. OMG!! Can you believe the difference?? They really do pay by the pill. I REALLY wish they had told me that. I usually only have to pay a copay. That is just what the insurance company is billed. Boy I sure am glad that my mom in law is a nurse and can get me my Zyrtec D for free or I would be up a creek without a paddle. *sigh* The joys of the American system...
Well done, Bridgey,,,
as for the extra cost... I cannot get the 25 mg tablets as my doctor prescribed 200 mg twice a day at this point and that means 200 mg... so the pharmacist will not give me 25 mg regardless...
had he prescribed 200 mg in 25 mg tablets it would be all right.. .go figure...
sometimes I wonder....
I have been cut back on the topomax as well as on the tegretol to see how the increase on clobozam works... I can tell them how it works, it knocks me out and I still have seizures; my husband came to bed last night after the football game and I was under the blanket and bedspread and he knew there was a problem as I do NOT ever put my head under the blanket... convinced I will run out of oxygen... so he had to waken me to be sure I was all right and in the same universe as he...
and that took some doing...
maybe old tegretol wasn't so bad after all???
right now I am starting that wonderful saran wrap routine, having to fight my way out of it...
a fugue, the neurologist calls it...
and here I used to think of fugues as beautiful music... HA! so much for that idea...
kat
Posted by rainy on December 26, 2004, at 14:15:35
In reply to Re: Topamax and metabolism » bridgey1128, posted by headachequeen on December 24, 2004, at 16:42:33
Kat, I just read this morning in Newsweek of all places (prescribing info for Topamax, big ad for migraine relief) that Tegretol reduces blood plasma levels of Topamax by 40%. I'm sure your medicine man is aware of this, but you aren't getting as much Top by almost half as you may have thought you were. Unless you already knew this. Hence the continuing seizures??
The friendly supermarket pharmacist confirmed this fact and stated this is true with trileptal as well--something I want to ask my pdoc about as a mood stabilizer. Hoo boy.
As for titrating up on Topamax, I'm on day three of 350 mgs and noticing that I'm beginning to have repetitive thinking--the same sentence keeps running through my head, or I rehearse conversations over and over, always taking the same part. Sort of like learning lines. Bleahg.
At least so far I'm not as mean and nasty as I was last time I went up, but this is as far as I got, too. Pdoc expects me to be at 400 by now, I think--she didn't instruct me. I saw her three weeks ago and have an appointment on Wednesday. I'm really dreading the appointment.rainy
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