Posted by Larry Hoover on September 5, 2004, at 10:42:02
In reply to Re: diagnosed with pyroluria - need help!, posted by tendency on September 3, 2004, at 16:52:08
> >
> > I think you should see a real doctor, and ensure that a diagnosis of porphyria is not valid.
>
> I'm about to start seeing a holistic osteopath who comes highly recommended in this area. I'll make sure to get his $.02 on the subject.
> >
> > In porphyria, it is possible to see a dramatic increase in urinary PBG (a pyrrole). Porphyria can manifest as psychiatric symptoms, and go undiagnosed for many years.
> >
> Porphyria?! Never heard of that..how would I go about getting tested for it? For that matter it may be a challenge to even find a doctor that's familar with it..
>
> Thanks for tips and articles. More food for thought.Food for thought. Exactly.
See: http://www.porphyriafoundation.com/about_por/testing/testing01e.html
Lar
poster:Larry Hoover
thread:385742
URL: http://www.dr-bob.org/babble/alter/20040901/msgs/386653.html