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Help inform professionals about online groups

Posted by Dr. Bob on November 1, 2004, at 15:51:52

Hi, everyone,

This is a project to inform health care providers about online peer support groups. It started when Joshua Freedman, MD, thought Psycho-Babble might be an interesting topic for the Clinical Computing column that he edits for the Psychiatric Services journal:

I proposed inviting members to post their own perspectives and using that for a column and possibly presentations at professional meetings, and that's what we're doing.

Joshua is interested in: the history of Psycho-Babble, my interaction with members, its role in the community of psychiatric patients and psychiatrists, how it might empower you, how able you are to understand research and other mental health information, how long and how frequently you've used the site, how the information here has affected your treatment and your relationships with your treatment providers, some details of your illness and treatment course -- and any anecdotes that illustrate the above.

Here's how this will work:

Follow-ups posted to this particular thread during the next 2 weeks will be considered. Both positive and negative perspectives are welcome. Not all perspectives will necessarily be included. If included, they may or may not be quoted verbatim. We'll add an introduction and some statistics.

Remember that everything you post, even if not published, will be public, as public as if you put it up on an old-fashioned bulletin board in a supermarket, and that under certain circumstances, being linked to a post could jeopardize your job or lead to your criminal prosecution:

We intend to leave out posting names, though searching for a quote from a post by you may lead to that post and therefore to your posting name. If you *want* your posting name to be included, please say so explicitly. Publications may require that all posting names be left out, however, so if you don't want your post considered unless your posting name is included, please also say that explicitly.

No one is obligated to participate. Participating may benefit you directly because you may feel good about contributing to the education of health care providers and because Psycho-Babble itself may be improved. Because the feedback may be published or presented, this is being considered a research study and I'm serving as the principal investigator. Publication and presentation are contingent on getting enough appropriate feedback.

All registered Psycho-Babble members are eligible unless they're blocked from posting, younger than 18, or pregnant. If you're eligible and interested, please proceed to the informed consent procedure:

Questions and comments regarding this process may be posted to a different thread or emailed to me. They may be summarized or paraphrased, but won't be quoted.






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