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Re: SLS update on you thanks » phillipa

Posted by SLS on November 3, 2012, at 11:05:46

In reply to SLS update on you thanks, posted by phillipa on November 3, 2012, at 9:49:53

Hi Phillipa.

> Scott haven't heard how you are doing now on your combo. And update would be appreciated. Hoping it's a good one. Phillipa

Thanks!

I am doing better and better, now that I have settled in on the optimal dosages of each drug I take. I am convinced that minocycline produced a robust improvement when I first began taking it. However, I am not convinced that it continues to contribute to my improvement. Optimizing my dosing with prazosin has made a huge difference. At some point, I will want to test for the contribution of minocycline to my treatment response. I don't necessarily have a desire to be without it, but, rather, wish to be free of the red-tape that regulates its chronic administration. My doctor says that he must write a new script without refills each month for minocycline and requires an expensive follow up visit before prescribing it. He deals with many Lyme Disease cases and treats his patients with chronic antibiotic therapy. Some regulatory agency is requiring him to follow these rules. I know nothing more than this. Meanwhile, my pharmacy sees prescriptions for tetracylcines with refills. I guess if I claimed that I had acne, I would be okay.

:-(

My power and cable service has been interrupted by Sandy. I will have only occasional access to the Internet.


- Scott


Some see things as they are and ask why.
I dream of things that never were and ask why not.

- George Bernard Shaw

 

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poster:SLS thread:1030585
URL: http://www.dr-bob.org/babble/20121029/msgs/1030587.html