Posted by AlexCanada on August 11, 2012, at 22:46:26
In reply to Re: To all treatment-resistant people! » slabicki, posted by papillon2 on August 6, 2012, at 5:47:33
I am very similar in my symptoms. I would not be able to type this msg without medication. I would an emtpy lifeless, severely cognitively impaired, non social, zombie whom is unable to enjoy anything. Motivation to shower would even be difficult and I'd have to push myself to do everything.
Ritalin, Valium, Parnate have helped me all to a degree but parnate has lot so much of it's effect. Rhodiola Rosia helped tremendously cognitively, slightly for mood, and quite a bit for motivation.
Papillon... what meds have helped you the most? Please let me know. I am becoming desperate at times because I know that I may have to drop this parnate soon. It doesn't help the way it did years ago! rTMS I was involved in a 4 week trail. It did nothing for me that I could tell but suppossedly is successful for various patients (the hype states at least). I'm not sure but rTMS may have negatively impacted my horrendous memory problems further. I have Antero Grade Memory Loss... difficulty retaining new information. If I ever even feel like watching a movie (rare) I will forget most of it the next day. Only some miniscule details are ever able to stick. And if it's a year later then it's as if I'm watching the same movie yet... it feels ''fresh'' yet deja vu.
I hate living day to day like this. I have to take notes on everything or I'd be lost.
> Simplifying one's life is necessary. Stress avoidance. Trying to develop/retain good lifestyle factors: sleep, diet, exercise, relaxation. Keeping occupied but not too occupied - it's a delicate balance. CBT/DBT provides ways to cope/live with the illness even when it does not cause substantial symptom relief. Trying not to beat myself too much over the head when it is too hard to do these things.
> There are a number of experimental treatments in the works. Things like ketamine, rTMS, the use of psychostimulants as adjuncts. Perhaps look into these?
> I am treatment-resistant, but seemingly less so than you. I get a partial response to an ever dwindling number of medications, without which I am barely able to eat/drink/walk/communicate.