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Re: Went off nardil 1 week ago. HR/BP problems persist » mantus

Posted by floatingbridge on July 27, 2011, at 21:58:57

In reply to Re: Went off nardil 1 week ago. HR/BP problems persist » jono_in_adelaide, posted by mantus on July 27, 2011, at 20:21:40

> > It seems unlikely that nardil has permamently changed your autonomic nervous systme - its been around for 50 years and this hasnt been reported.
> >
> > Give it a couple of weeks to get out of your system before you panic.
>
> Well, I agree with exactly what you are saying, the problem is there was a moment after dealing with this every day for months and not having any doctor listen to me, that basically
I just gave up on any idea positive thoughts of this problem resolving itself. I have been basically living in a state of pure anger every day when I stand and tell it is there again, try to walk and go a very short distance before my body just says no. I am 26 years old, I have played sports and exercised my entire life. Now, I feel like I am 50 years older and because
no doctors give me any real confidence that they have any idea why this happened, or that it is even going to resolve on its own, I can't help but be irrate. My other concern is that there also exists little to know research of anyone developing POTS while on Nardil with absolutely no improvement and actually it just worsening over time. It just leaves me thinking that I am the exception to the research, and I'll likely keep thinking that until one day something changes on its own.


Hi Landon, my current health situation is beyond ridiculous, but my own self dx'd POTS type situation predated medication. I had no idea what the heck it was until about maybe two years ago when I tried to describe to my doctors that standing up was way too fatiguing, that if I could sit, I felt better. Other stuff, too. No one even registered this simple observation. After awhile, just bumped into this POTS thing and just knew if anyone put me on a tilt table, I would have big time trouble.

In your case, well, still don't panic, because if it is chemically induced, the chances are it will remit. Have you googled medically induced POTS or sudden onset POTS? I think the point Jono makes is a good one. Either way, you won't know until you have the Nardil out of your system which might be longer than two weeks.

All that said, that someone is not taking your very real medical situation a little more seriously seems medically unsound. Your pdoc knows and just says wait? Your gp knows? I, too have spent precious time with experts to end up feeling like, wow, I am justva piddling person and how come I know information than this particular specialist. I've often thought that in very few professions does one have to pay money up front for a service without any garuntee of performance than medicine. This is not saying I demand a cure for my money. That would be absurd. But I have paid line $800 dollars to be patronized and told it's in my head or it's a sx of depression. I mean, well yeah. But that doesn't mean there are not comorbidities that deserve medical attention. Dollars to doughnuts, if I did not mention *my* depression, some people would take things a bit differently.

That was my vent :-/. I am not too keen about you having to go through the extremes you are describing alone. Can you see a therapist (insurance?) because anger is a legitimate feeling, so is panic and being concerned about your health. Not to mention the physical aspects you describe.


 

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