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Re: I got XYREM » ed_uk2010

Posted by Michael Bell on August 30, 2010, at 18:30:03

In reply to Re: I got XYREM, posted by ed_uk2010 on August 30, 2010, at 15:15:26

I never knew I had it either. Actually, I had the opposite of narcolepsy for almost my whole life until I was 25 or so. Meaning insomnia, literally tossing and turning until 3 or 4 in the morning every night. Racing thoughts, etc. I also would often fall asleep in class in college and highschool, but I figured this was the insomnia. Then one day, I mean literally one day, I started falling asleep at the drop of a dime at night when it was time to go to bed. No more insomnia. Problem solved, right? But despite sleeping through the night, I still was getting sleep attacks during the day. This has been going on for years. I have gotten into multiple car accidents while driving. Fell asleep at work practically on a daily basis. Had two sleep studies with both showed neurological issues that don't allow me to reach deep stage sleep. The daytime sleep study showed that I have excessive daytime sleepiness and enter into REM sleep within minutes of falling sleep, which is also abnormal. Since I also have mild apnea, I was prescribed a CPAP machine at night for apnea to see if that was the issue. Unfortunately, that very expensive piece of equipment did not help. After trying provigil, nuvigil, dexedrine and vyvanse, the doctor suggested xyrem.

So yes. To answer your comment, I have narcolepsy. And social anxiety.


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