Posted by bleauberry on January 27, 2010, at 18:09:40
In reply to Re: CFS! Lymes? CD? Cortisol fasting? Salty taste?, posted by Fivefires on January 27, 2010, at 1:53:28
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> I do understand you're saying I pretty much did not get the proper testing done, and it's verimportant to me no one pulls this on me.Well, this is arguable depending on who you talk to. There is not much agreement even from one doctor to another.
Keep in mind also, especially with Endo Specialists and the Infectious Disease Specialists, they follow rather rigid views which are a conglomerate of the involvement of insurance companies, lawsuits, CDC guidelines, and Board guidelines. Much of their God given creativity and wisdom is off limits for them to pursue even if they wanted to, due the convergence of these outside forces. Which is sad, because disease is very complicated. It cannot be made as rigid and simplistic as these big organizations of paper pushers make them appear.
For your kind of testing, the Integrative MDs, Alternative MDs, and Naturopaths have the most access and experience. They may or may not be your best option for actual treatment, but for sure will get you more thorough testing.
>I may not be the most deserving person, certainly don't feel it often..
I hope you don't mind if I bring God into the picture here, but that is exactly where Satan wants you to be stuck. He is the Great Deceiver and would love for you to feel undeserving. In the eyes of Jesus, you are completely deserving, as your own child would be in your eyes, even when they do wrong. A child may sing horribly, but to you it is wonderful sound. God sees you the same way.
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> I will see what I can do about the saliva test!?Tea had good ideas. You might simply ask the Endo for 4 samples in a day, 6 hours apart. You are the paying customer after all. You are ultimately the boss. I had a doctor question me once, and I said, "It doesn't matter why I want it, I just do. You don't have to find anything interesting in it if you don't want to, but it would be helpful to me and I want to do it. I'm going to make my copay on the way out today, so you're all set. I just need the prescription and there is no downside or risk to you in doing this." I later found out through google searches there are several places online where you can order just about any test you want. Without doctor prescription for it though, insurance won't pay. That's the only downfall.
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> Funny the endo didn't make mention of a saliva test.That isn't their normal mode of operation. Again, the rigid box they are in. Blood tests are fine. The important thing is to see the daily curve, not just one or two random points in a day.
Also to keep in mind is that regardless of what the tests show, that is not the problem. Low cortisol is not the problem. You'll feel better getting it treated, but still it is not the problem. Something else is the problem. Something else that caused the adrenal dysfunction. The cortisol dysfunction, if any, is a symptom of something else going on. The most common culprits I am aware of are unsuspected infectious diseases, especially if a diagnosis was made purely on the results of a lab test which have high error rates, candida, lead and/or mercury accumulation, and longterm SSRIs.
> Do you know if labs do the saliva test? And, I wonder if they're doing it for MRSA as well?
Based on anecdotal evidence in my own informal research, diagnosing MRSA is not that easy or accurate, as with most infectious diseases. The best treatment I've seen is actually natural...very high doses of garlic cloves or garlic supplements (not the deodorized ones).
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> I don't know many drs who are big on the Internet, or, many who are big on you chosing your own route to a dx. One has told me to stay off the net.I'm sorry to hear that. Not uncommon. What is that? A show of ego? Arrogance? Fear? Threatened? Ignorance of the web? I mean, the web is like taking every large library on the planet and putting them all at your fingertips. Sometimes I think some doctors see themselves higher than they are, and do not want to be challenged.
The best doctors I've ever seen were the exact opposite. They were very interested in my own research. They admitted that in their busy practice, they don't have the time to keep up or to see what's happening around them.
As an example, two doctors thought I was nuts for asking to add Zyprexa to my Prozac. I showed them the first of a couple small clinical studies that showed promise with this combination. It had never been tried in my town and they had never heard of it, and I wasn't schizophrenic so no way were they going to give me an antipsychotic, and yes they told me to stay off the net. A third doctor found it very interesting, studied the clinical tests I brought him, and said yes let's try this. He and I enjoyed an almost 8 year successful relationship as I got much better very quickly on that combination.
From that point on, he always asked me what new was happening in the clinical research world. And, he had dozens of patients now on Prozac+Zyprexa. The SSRI+AP combo turned out to be one of his best winning strategies as a GP treating depression. And it all started with me and my internet research.
Those doctors who would have none of it, I don't think they are even in business any more, but it doesn't matter because I no longer wanted them. I am the paying customer and I appreciate cooperation and respect. It is not the doctor's job to look down upon me and judge what I read or don't read, what I study or don't study, or where I do it or don't do it.
Those kinds of doctors...run away as fast as you can. They are not good if healing is the goal.
poster:bleauberry
thread:934569
URL: http://www.dr-bob.org/babble/20100122/msgs/935164.html