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Re: confused struggling fatigue please read (rant)

Posted by surfergirl on July 7, 2009, at 11:30:39

In reply to Re: confused struggling fatigue please read (rant) » Phillipa, posted by floatingbridge on June 30, 2009, at 20:07:19

Dear floating bridge,
So sorry to hear of your struggles. Ranting is good sometimes. i have struggled with fatigue for over 10 years...doctors have not seemed to care. I gave up for a long long time. For me it is a complex thing-physical problems plus some mental health related. Finally found some good doctors & got lucky. I also found out that I have a sleep disorder-narcolepsy. That blew me away. Getting treatment for that has been life changing.

I spent a lot of time in bed when the kids were growing up & hated myself for missing out on those special times. At least my husband was there for them & involved. Ten years ago, when my kids were 10, 7 & 4 I spent over a year in bed. We read lots of books. I slept off & on. I was weak & extremely tired. Back then the best they could come up with was chronic fatigue. Children are all are pretty ok & still love me anyway.

I hope things look up for you soon & you get some help.

Mary


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