Posted by JadeKelly on November 7, 2008, at 5:45:33
In reply to Re: What is your definition of a 'Miracle Drug'?, posted by yxibow on November 7, 2008, at 0:01:33
I guess I see in this that there are a lot of people who are stabilized successfully on medication and are enjoying their lives.
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> Yes, its semantics.
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> But it also begets "perfection" and a bit of "magical thinking".For who?
I'm not saying for everyone -- but that there is a superdrug combination that won't have side effects some time down the road that will never be able to be predicted, there is no such thing.
How is that relevant? Each of us has to decide what our "miracle" is, and from the post, it seems for most its returning to plain old normalcy!! We're on the medical board so discussion of drug use to get there IS relavant.But I didn't see much of that anyway.Personally, I'd like to take one med. But if 2 puts me in remission? I'm gonna do it!
> I think better living through chemistry is a fine idea, but chemistry isn't perfect.
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> There's hard work to be done besides the chemistry, and that involves other changes in life than merely medication.I can only speak for myself ,Jay, tried it all. I truly now believe that my brain chemistry is deeply impaired, and I can't repair that without chemical help.
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> I'm sure I'm projecting because of my experience of 7 years with over a dozen substances, some that have had totally unexpected and unpleasant rare results, but I'm just trying to put perhaps what realism I've come to get from those who are caring for me.I'm truly sorry about that, maybe if I were in your shoes...but I can't help but think that along with a good dose of realism, should come a healthy dose of hope.
> I absolutely wish some of my medications didnt "poop out" or however people like to describe it, but they're holding me at bay -- while I still wish they would work like they did.
I have a close loved one that has to be drugged every day for several problems, emotional and physical. My "miracle" for him was when we d/c'd all the atyp anti psych meds, put him only on Depakote and Seroquel, and his personality is back. He can handle it and so can we. Thats a miracle to me. He will be on meds the rest of his life, and is cognitively impaired as a result. But he's amazing, and he has a life, and friends, etc. because we insisted he be taken OFF so many meds. Is this a "perfect miracle" no. But a miracle in my book nonetheless. and that was from DIS-continuing 2 meds. NOT recommending this either w/o Dr. consent. I better just shut up now.
So, semantics and interpretation of a word.Jay, if it bothers you I have no need to use that word on this board again. (I reserve the right to use a similar one when I get better!!!)
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> You can't go back, you can only experience the presence like everyone of us does. And sometimes that plain sucks. Really does.I wish it didn't.
But I will never give up this fight and settle. I just won't do it. I want my life back. Not euphoria, just myself.
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> To new agents, to new scientific research in our lifetimes. But we have to accept then the results of those will also have side effects and to be careful what you wish for, because newer isn't necessarily safer, and if you look up any drug on Google, you'll be bound to find the lawyer sites.
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> I'm not trying to put a downer -- maybe I have, and its through my teary eyes that I do -- I just think that to wish, to have realistic expectations, and above all to have hope is the best cure.I agree!! I hope you see hope too, and maybe thats enough for right now. Don't give up hope. You just never know whats to come.
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> I hope I see hope.
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> -- JayJay, I know we've disagree on this, but it really is just semantics to me. I suffer from Atyp/Tr MDD, for going on 3 years. I'm not myself. I'm actually numb. My kids miss the old me. I've done all the work of trying to climb out of this hole with and without drugs. I won't blame myself anymore. My brain shutdown for reasons I won't go into, but yes, if a drug comes along that gives me my life back? I'm gonna consider it MY "miracle" drug. I can see why people with other disorders, or who have suffered for a very long time, it may not be healthy for them to hear repeatedly "miracle" drug. I get it, I do.
I have to be honest with you tho, what I'm doin here its not living. So if a drug comes along that I fully or even mostly respond to, and get my life back? I'm gonna take it if its been approved. Why would I worry about toxic side effects now, when If I don't get well, I'll be a different person by then anyway?
So you see the paradox were in?
If its wrong to hope, and believe that someday a drug/treatment/herb/whatever/therapy "miracle" whatever will come along and put each of us into some kind of bearable remission, (each person's "miracle", what ever that may be)-----is it not just as wrong to extinguish someone else's flame, however they choose to term it, because you don't believe in that much hope? Don't get your hopes too high! You may have a bad reaction in 5 years! If we start doing that I am SURE I could find documentation that just about every drug currently on the market may have some long term adverse effects. The effect of years of MDD on my spirit, body, and chemistry is far more dangerous to me IMHO.
I really do understand what you're saying. I just don't think its fair to shut people down when they're feelin extra hopeful. Even if it doesn't happen for em that time. I'm not refering to this post or SLS.
Friends? I hope so.
Jade
poster:JadeKelly
thread:861166
URL: http://www.dr-bob.org/babble/20081106/msgs/861266.html