Posted by RN320 on March 30, 2007, at 22:14:59
In reply to Re: 10 months on EMSAM!!-/Dopamine, posted by stargazer on March 30, 2007, at 18:51:50
> RN320,
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> How are you? Why were you in the hospital? What did they find was wrong?
>
> Hope you are better and that they were able to fix you up.
>
> M.Hi M-
Thanks for asking about me and my health problems. I had some very strange and rapidly developing symptoms back on my 50th birthday.My internist had this look of fear when she saw me and told me that she had to get me to the hospital quickly....that she would be direct- admitting me. She's usually a fun person- always cheerful and bubbly, but the tone of seriousness and speed of the way things were happening right there in her office, I figured that whatever it was, it must be bad. She told me that she feared that I was either in renal, heart or liver failure.
I told her that I had to go home to make sure that some key bills got paid, cats were going to be cared for, throw some clothes in a bag, take out the trash, etc. and told her that I needed a couple of hours. After much argument she told me that I had 1 hour. Well, it took me 2 1/2 and by the time I got there everyone she had consulted- cardiologist, pulmonologist, heme/onc, my psychiatrist, and yes- my Internist had all been looking for me.
Things got worse from there and after a battery of tests it has been determined that I have Primary Pulmonary Hypertension. My PA pressure was 60, my PaO2 was 54, very alkalytic, anemic. The Pulmonologist says that his alarm comes from the fact that I don't appear symptomatic, so I must have had it for awhile and my body is now failing from the depth of it.
Right now I have was discharged home a few days ago on O2 24 hrs around the clock. I'm at 3lpm during the day and 4lpm at night. I have the ability to be very portable what with the O2 systems today used by homecare companies, and I am trying to just go on with life at this time because I know if they don't find the root cause for this and if I don't keep the oxygen on at all times that I will most likely die- possibly soon.
I feel that I have the absolute best healthcare providers in the world- I've had such losers off and on in my life who called themselves physicians and all of these folks now are very nice, compassionate, very intelligent- a couple I would say are in the category as brilliant. They've also showed an interest and willingness to try and work with me. You can just palpate the awareness and gravity of the situation. Things have been spelled out very clearly to me what they know, have found, and the sense of urgency to identify the root cause. There are several that apply to me, so they need to run with that and get busy!
I'm very emotional, and in pain (from the unresolved Trigeminal Neualgia- and the use of a nasal cannula is also a trigger for the spasms), almost paralyzed with fear and sadness; then on the other hand I am almost indignent that yet again something happens just as I'm stable on the EMSAM and other depression meds, pretty stable with the diabetes, BP, and the heart disease and now, having survived 6 years of hell with all the other stuff that's happened- I may be dead soon. I am just not ready to leave the world- or better stated- I'm not done with the world yet!!
Not meaning to blather on, because I appreciate your concern in asking about me. All I can ask for is the prayers of anyone who cares about me. Thanks,
/m
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poster:RN320
thread:739754
URL: http://www.dr-bob.org/babble/20070327/msgs/745655.html