Posted by lunesta on April 6, 2005, at 10:10:15
In reply to Re: Xyrem, posted by jerrympls on April 5, 2005, at 20:43:43
Yes its higher than oxycontin and morphine in trying to get.
Unfortunately I suffer fibromyalgia which severe pain and sleep dysfunctions exist and I am seeing a world reknowned expert doctor that knows Xyrem's slow wave sleep and growth hormone benefits in fibro.
I am on the list for clinical trials for it for fibro, i talked to Xyrem's director and the results of a new pilot study will be relased summer/fall this year with positive results.
Also it will be approved for FULL narcolepsy symptoms not just cataplexy , which has already been submitted to the FDA for review.
Fibromyalgi may tke till 2008 she said at the most, but will significantly make the price go down as narcolepsy is small population where if Xyrem is approved for fibro I aimgine it will be a huge profit for them and etc etc and more studies with GHB will be done.
Orpahn medical is a cool company because they study things for rare or hard to tret disorders. I highly respect them and NORD Foundation, because they provide Xyrem and other meds for free for rare diseases with minimal treatments depending on your income or insurance.
Right now, 1 Xyrem bottle is 250 dollars and at its stanadard dosage, I need one every 11 days.
I am applying for disablity also. I really need it. Im only 22 and my life is ruined.
I need pain control at the moment, But the doctor I am seeing is in NYC and far to get to. I need major pain help - I mean, I would want to die if I cannot get rid of this pain. I am on Tyleon #4, Neurontin high dose, NSAIDS and Xyrem + special IM injections currently but the pain is not being managed.
Someone, dr bob, please help me. All doctors are opiod-phobic, but i have medical documentation of my problems. I just dont want to wait weeks for these appts as Im feeling very bad.
lunesta
poster:lunesta
thread:479551
URL: http://www.dr-bob.org/babble/20050404/msgs/480632.html