Posted by dancingstar on January 7, 2005, at 1:53:43
In reply to Re: i really really need help - effexor, posted by Dan Perkins on January 6, 2005, at 22:00:58
Thanks, Dan.
Sometimes I wonder. But after what I went through, I feel like people deserve the right to know what can happen to our bodies when we take these drugs. If I only knew it was the drug that was making me sick for three years, well, gee, I could have stopped taking it. Please just give me the information and let me make my own decision. I figure others feel the same way. Lots of people read these things, and I hope that they can get some information that they need to make an informed decision for themselves. (Dr. Bob's site is actually amazingly kewl in many ways.)
AND when I finally decided to stop taking EffexorXR one day in September just to see if it was making me gain weight, I was so innocent. Didn't have a clue that I'd get so sick...not a clue!! Boy, was I in for a surprise. I'm just now finding my way out from under.
Most doctors don't yet know how bad it can be if you have the wrong body chemistry for Effexor, and the wrong body chemistry is likely to be that you are not physically, chemically depressed. Even what little is being released by Wyeth now was only released as recently as June 2004, and it hasn't hit what seems to be the mass market of doctors' reading material. Patients are at a deficit until it gets out there.
And what about the long-term studies? From what I can tell from my research, the research that is used for presentation by Wyeth is usually based on intervals of two four-week studies from which they allude to conclusions and recommendations regarding the use and efficacy of Effexor. Well, gee, what happens to our bodies after 12 weeks? six months? One year? Three years? Nine?
If Wyeth knows the answers, they are not available for us to find them on the internet...or I can't get to them yet, and I'm going after this in every way that I can imagine.
Some of you guys have certainly helped me, that's for sure. That one link is amazing to me, I'm absolutely shocked -- stunned!! -- that no one has commented on it, and I got it right here on this website. It has all the research and Wyeth's conclusions that there are no conclusive withdrawal problems. That is clear and obvious, beyond any question, flat-out not true. So we are dealing with a company that doesn't tell the whole truth.
If your body is not able to tolerate Effexor, what kind of damage is it doing to us? Is this what caused the pain that I no longer have? The fatigue that's gone? Depression that surfaced from nowhere, from out of the blue? (In my case it was not prescribed for depression) Heart problems for some. Liver problems for others. Why can't we see long-term studies? Inquiring minds want to know.
Well, Dan, all you did was say something nice. I'm sorry for getting on my soapbox. I need to step down now. It does seem to be a daunting task. Lawyers want people to be dead before they take a real stand...but I think we are getting somewhere. We will not have a problem getting the labeling changed...again. I want those long-term studies out, too. At the very least we need to be able to go to Congress with guns blazing (please -- it's just a metaphor) and yes, I may need some major help if there is any out here.
I will post more informational links as soon as I can -- there's so very many of them -- but for the next week or so, I have to take care of the business of life; so someone please take care of everyone that needs help. I know you guys will. You took care of me.
If anyone has any great information or insights, pass them my way if you don't mind. The rest I've turned over to some legal people and God. If I'm doing the right thing, I'll know.
Blessings,
Bebe0217@aol.com
poster:dancingstar
thread:437311
URL: http://www.dr-bob.org/babble/20050103/msgs/438878.html