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Re:topamax weight loss??? » stressed

Posted by headachequeen on September 27, 2004, at 15:39:24

In reply to Re:topamax weight loss???, posted by stressed on September 27, 2004, at 15:25:40

> I have another question for you all.....as far as my daughter not wanting to binge, do you know when that urge will start to go away? I am going to take your advice and make sure she does not go up too quickly. Thanks so much for this infor.

As with so many things and so many meds, topomax works differently with different people...
I found that it killed my interest in and my obsession with chocolate and junk food and my need or desire or demand or whatever it was to eat when I was bored or lonely or .....
it was a form of binge eating I have come to realise now...
and that it did it very quickly... and I have also come to understand that my particular form of binge eating was attached to my epilepsy; when things were really active and my seizures were making my life difficult, I was always groggy and tired and could not get out to do things, could not be active and therefore happy, I would eat for want of other activity and to overcome my feelings of deprivation... my interpration of events, based on recent events and discoveries...
topomax really put a stop to these mass attacks on fridge and chocolate bar counters...
and really made a difference in my weight...

we have a very important wedding on 09 October -- we are surrogate parents to the groom and his siblings (their parents both died of cancer about ten years ago, ten months apart) and I am anxious about the day, it will be a long one with the service at noon and the dinner, a thirteen-course banquet, from six-thirty until almost 0100... and I must not have a seizure... after the last battery of tests, my nocturnal seizures have been occurring during the day and have been really horrendous, not the tonic-clonic type, but a type that put me into a coma for up to an hour, totally unaware of my surroundings followed by a day or two of being unable to focus or read, sometimes unable to speak clearly...
this I do not need at that time...
to make it worse, I am unable to find anything to wear to the service... I have a dress and jacket for the dinner but do not want to wear it to the service... too fragile for the afternoon demands... so have decided to wear a suit I absolutely love... but have to have it taken in... SIX sizes at least.... and having decided today that it is what I want to wear.. the only alternative is a suede suit, the skirt I can manage but the jacket is big enough for my husband to share with me....
so that is out of the question...
here I go trying to find a dressmaker willing to do the work in time... and a hairstylist willing to do my hair and makeup at 0700 so I can leave in time to be in Ottawa for the service... can't hope to be steady enough to do eye make-up that morning... that would be the day that my hands would have tremors so badly that I would poke out an eye :(....
the tegritol has been upped to almost triple and is controlling the seizures, so my doctor thinks that it too much and wants it back to what it was... of course, let's drop it down and have more seizures...
the topomax he has not thought of, so it is holding the fort as it were, and I am only having the occasional seizure... as in one or two a day... and with the new timetable I have worked out with the doctors in emergency it is working its way back to nocturnal... but I am going to work back to the heavier dosage of tegretol AND topomas to get through the wedding...
cross your fingers...

and Stressed, do not expect the topomax to kick in overnight...
I started losing weight in the first week, three pounds and have lost a lot but it has taken a long time....
and given time and a slow approach to the increase in meds it will work... but it does take time

kat


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poster:headachequeen thread:5053
URL: http://www.dr-bob.org/babble/20040927/msgs/395862.html